Pancreatic Cancer: Part 5: A Deeply Personal Perspectivve

 

Marc Uemera

I'll begin with a brief update for those who don't know what's going on. Peggy, my wife of 53-years--has been told that she has pancreatic cancer that has spread to her hip. She is in pain, is constantly cold, is growing progressively weaker, and spends much of her time in bed, some of it in tears. Our lives have become a living hell in which we have been abandoned by some of the people we looked to for support, most notably Peggy's sisters who I wrote about in my last post. This morning, I sent them the following:

"You responded to my cry for help for Peggy and me by trashing me for my supposed weakness. This has caused me to hate you, but I can live with that. A far worse result is that by trashing the very man who is one with your sister and who is doing everything he possibly can to help her, you have made it impossible for Peggy to share her grief and terror with you. I can't imagine why your contempt for me is so strong that you would allow it to alienate your sister when she is in fear of death and desperate for your help, but that has been your sole contribution to her care. I have no idea how you can repair the devastation you have inflicted upon someone you claim to love, but if you don't at least try, she will continue to be gone from your lives at any intimate level."

I don't expect a response, but I felt that I had to at least try to make them aware of the damage they have done. Week before last, a biopsy was performed on Peggy's pancreas by sticking a tube down her throat and cutting through her stomach wall into her pancreas. As expected, the tissue came back positive for cancer, and she was referred to an oncologist named Marc Uemera  (https://www.oregoncancer.com/physicians/marc-uemura-md-mba) who she saw last Monday. Marc said that she will most likely be dead in six months if she chooses palliative care only, and in one to two years is she chooses aggressive treatment. She chose the latter and was referred to a surgical oncologist named Diego Muilenburg (https://www.peacehealth.org/care-providers/diego-j-muilenburg-md) for the installation of a port-a-cath, a device through which chemotherapy drugs are injected. 

Diego asked her why she hadn't had a biopsy of the tumor on her hip to verify that it is cancer and that if it is cancer, the cancer came from her pancreas. We said that we had asked Marc to do this, but he said it wasn't necessary. Diego said that he was uncomfortable with her not having a bone biopsy because pancreatic cancer rarely spreads to a person's bones, and although such a biopsy can cause a great deal of pain, there is a 5% chance that the tissue sample will be negative for pancreatic cancer. If this should be the case, he could hopefully cure her pancreatic cancer by removing her pancreas, and then treating the tumor on her hip as a separate problem. Diego's words gave us the first ray of hope that we have seen since her diagnosis.

When we jumped at his recommendation, he said he would ask Marc for permission to do the biopsy. In surprise, I asked why he couldn't do it even if Marc said no, and he said that, technically speaking, he could, but he smilingly implied that doing so would damage his relationship with Marc. In response, I said that if Marc denies permission, we will find an oncologist who will give it. Diego advised against this, saying that Marc is the best pancreatic oncologist in Eugene. So it was that Diego texted Marc for permission, and Peggy called Marc's office on the way home to say that she wanted the biopsy. 

An hour later, permission was given, and so it is that the torturous wait has begun for yet another desperately needed procedure. Peggy has given me her medical power of attorney, and she and I are both assertive when it comes to speeding things along, but there is often nothing we can do aside from insuring that she isn't forgotten (it is my experience that patients who are unassertive are sometimes put on the back burner, even when speedy care is essential.

In my last post, I described myself as the lion at her gate, and this is true when it comes to being an aggressive partner in her fight against cancer. However, I sometimes feel like lion who has smoked meth, and this can pose a problem when dealing with caregivers whom I am trying to persuade to do something. Two weeks ago, there was a day that would have been shitty without her medical issues, but was shitty times twelve times over because of them. At one point when I got off the  speaker phone from calling a doctor's office, I asked Peggy if the woman to whom I had spoken seemed defensive, and Peggy said that she did, and that the reason might have been that I had seemed frantic all day while trying to get appointments made and procedures done. I knew that I felt frantic, but I didn't know it showed. It is hard for me to avoid becoming so overwrought that I can't calm down. This makes it impossible for me to sleep at night even with 25 mgs of Ambien and 3,600 mgs of Gabapentin. I feel like I'm about to fly apart, and this gets in the way of me adequately representing Peggy.

Another major problem is that Marc told Peggy that her hip is so weak that it could break if she walks much, and that if it does break, an orthopedic surgeon would be reluctant to repair a cancer ridden bone. Because long walks are Peggy's major form of exercise and relaxation, it is very hard for both of us that she has to give them up. We have an exercise bike, but her hip hurts too much to use it.

Yet another problem is telling people--especially friends--the bad news because it upsets them, and they don't know how to respond. Sometimes, we make the spur of the moment decision to tell near strangers or even complete strangers. For example, when my dentist asked how I was, I told him the truth, and, to my surprise, he spent ten minutes asking medical questions about her care. Unfortunately, I suspected that his interest had been based upon curiosity rather than concern. 

I'm 76, so I've seen a lot of life, but nothing has prepared me for what I'm going through now. Peggy's illness has taken both of us to lows we never thought possible. On the bright side, it has made our bond stronger, and has allowed for a degree of emotional honesty that we have never shared. For example, I have always been uncomfortable with letting others see me cry, including Peggy. Now that I cry on and off throughout most days, I can no longer hide my tears, and I have lost all shame in allowing her, or anyone else, to see them. Fortunately, I've been able to hold myself together in doctors' offices, and that's important because what I want from doctors is their best thinking, not their sympathetic support.

Bone and Pancreatic Cancer: Part 4: Life Turns to Shit

 

Dianne, Jimmy, my father, and Peggy, in our trailer home, 1972
 

I haven't written sooner because too much has been happening, and it is also for this reason that I haven't visited anyone's blog. Just know that I offer you my sincere thanks for your support, the moreso because I have become so nearly reclusive in the past decade or two that I know only person who lives nearby, and with whom I can share the full extent of my misery, and I haven't seen him for three years. It's not that I don't want friends; it's that I've become vaguely disappointed with what other people have to offer, and with how little other people seem to value what I have to offer. Now...

Peggy and I are on the verge of collapse. Some examples of what I mean... We are so consumed by fear that we can't think straight and we keep losing things. Our home phone went missing for three days. Books, shoes, wallets, stereo controls, car keys, shopping lists, and garage door openers, have all disappeared, some of them multiple times. Twice, I've taken a half dozen or so things from the big freezer in the garage in order to reach something in the back, and both times, I failed to put them back. For my entire adult life, my blood pressure was around 125/70. Today at the endodondist (I just had a five hour root canal over a period of two days) it was 195/128. As was getting out of the shower yesterday, I spent a long moment trying to remember how to turn the water off. I'm functioning so poorly that I'm terrified by the knowledge that Peggy's very existence could depend upon my ability to function well. Even so, our 54-years together have made us as one, and I am determined to be the lion at her gate, so I must be strong and vigilant no matter what, but it's so very hard. I'll use yesterday as an example of how both of us are doing.

It was a day on which we were dealing with one overworked druggist and three doctors, and because I'm legally authorized to speak for Peggy, I spent nearly as much time on the phone as she did, and that was a lot. Yet it was one of those days when it seemed like everything that could go wrong did go wrong. Peggy's pain was worse. Two packages were stolen off our porch. Doctor visits that we were trying to schedule ASAP were delayed because insurance hadn't approved them; or because one person had failed to call another person; or because a doctor hadn't filled out a particular form. We walked to the pharmacy to get our Covid boosters and to pick-up Peggy's Tylenol 3 and my Buprenorphine, only to learn that the pharmacy was out of vaccine; and that our regular doctor was out of the office, and his replacement had denied our refill requests (we finally got them approved). I now stop breathing twenty times an hour while sleeping, so each time, I partially awaken to gasp for air. I'm told that I need a new sleep study, but I don't want to take time away from Peggy to get it done. I could go on, but I will stop here because there's something else I want to share. I question the appropriateness of what I'm about to tell you, but I'm going to do it anyway. Because it's a story that  could take pages, I must of necessity condense it somewhat.

After Peggy learned that she had pancreatic cancer, I pondered the fact that we have little support to help us survive the coming ordeal. I soon hit upon the idea of forming a sister-based support group that would primarily focus upon Peggy, but would also support me and everyone else, by which I mean Peggy's sisters Pam and Dianne, and Dianne's husband, Jimmy. I will now tell you about the result, but the story is so strange (in my view at least) that I will preface it as follows. While I have never argued with any of these people, I have also never felt close to any of these people, and I've only seen them twice during the 39-years since Peggy and I left Mississippi. 

Even so, I was confident that everyone would embrace my idea. Jimmy said that he was interested; Pam said, "You need to get over yourself"(?); and Dianne didn't respond at all, although she later told Peggy that I was only wanting to form "a pity party"). I was so shocked by this hostility that I seriously wondered what I had done to make these women hate me. On the upside, they had told me where I stood, and knowing this would spare me disappointment later on. 

Before I leave the subject, I'll share my final email exchange with Dianne, which occurred on Saturday. It's obviously a continuation of an earlier exchange, but you can still make sense of it. In the following, when I used the word yesterday, I was referring to a procedure that Peggy had a day earlier in which a endoscope was run into her stomach; a hole was cut through the stomach wall; and tissue was taken from her pancreas. It was the first of perhaps two biopsies, and it conclusively verified that she has pancreatic cancer:   

ME: "I acknowledge that you too need support. I tried to give you support yesterday by texting frequent updates and by having Peggy say hello to you on my behalf. It is such gifts of affection as these that I want to give to you on a regular basis, but to do so, I need your affection in return."

Dianne: "No" 

After sending this one word response, she texted Peggy as follows:

"I have blocked Lowell from my phone. I don’t ever want to hear from him again. He feeds on this kind of stuff and I refuse to take it anymore. I’m sorry you are hurting. I am too." 

By "kind of stuff," I suppose she meant that my sharing of emotion is excessive, perhaps unmanly. As for blocking my calls, the number she blocked is the number of our landline from which Peggy often calls her, but I never do, In fact, I don't think I have ever called Dianne from any phone, but if I did, it was only to leave a message. Peggy is so hurt by her sisters' behavior that she has ended contact with Dianne, and has said that if one of them should propose a visit, she would say no. As for my reaction, I feel terrible that my attempt to form a supportive group led to a Titanic-size disaster. Peggy saw it coming (possibly from things her sisters had said about me) and even warned me that my attempts might lead to ruin, but I saw no reason for her concern, so I didn't listen.

Bone Cancer: Part 3: PET-CT Followup in Kirk's Office





Kirk (see photo) said that the PET/CT Scan showed two areas where cancer is likely. One is the ping pong ball lesion on her ilium that we already knew about; the other is a spot in her pancreas that we didn't know about. Although Kirk assured us that her life can be prolonged, I later learned online that her odds of surviving until next year are only 10%. 

During our visit with him, she asked that Kirk do the following: 

(1) Prescribe something for her rapidly worsening pain. (He gave her Tylenol with Codeine, and told her to let him know when she needs something stronger.) 

(2) Put a note in her chart saying that she wants to begin the process of obtaining life-ending medication through the Oregon Death with Dignity Act. He readily agreed to do this, and added that it's best to apply early (perhaps, he was thinking of instances in which people have been accused of goading a sick relative into suicide).

When we got up the next morning, the results of the blood tests that she had on her way to Kirk's office were online. They were normal with the sickening exception of the CA 19-9 pancreatic tumor marker. The normal value for this test is 37; Peggy scored +1000.

As we were leaving Kirk's office the previous day, my eyes had met his, and I saw in them an expression of horror unlike anything I've ever seen on anyone. I couldn't imagine the reason for this because I had thought that, since Peggy's body wasn't riddled with tumors, we had years, together, rather than months. When I got home and googled pancreatic cancer survival rates, I knew the reason for his anguish.

For decades, he has never seen one of us without also seeing the other, but I fear that we're nearing a time when, for however long I live, I will see him alone. 

I was working on my grocery list while waiting for Kirk to enter the exam room. When I turned the paper over to write on the back, I found a poem that I had written in the late '70s. When Kirk arrived, Peggy shared it with him, and he spent a long moment pondering it.

I would take Peggy's disease into my body in a heartbeat and count myself lucky to do it, so why is it that I cannot escape the selfishness of continually thinking of my own pain? 

Bone Cancer: Part 2: May 19: PET/CT Scan

Bone Cancer: Part 1

The following was written on May 13, and is the first segment of an ongoing narrative. Please forgive me for leaving you in the lurch; I will get you caught up as soon as I can.

In February, Peggy began to complain of pain shooting down her upper right thigh. On March 5, she went to her internist of 35-years, Kirk Jacobson for diagnosis and treatment. Kirk thought the pain was coming from her hip and ordered a hip x-ray. When nothing was found, he ordered a lumbar spine x-ray. When Peggy saw Kirk again on April 11, he ordered an MRI of her lumbar spine. When bulging discs and stenosis were found, he sent her to a pain specialist named Adam Kemp for a possible nerve block. Peggy saw Kemp on April 24, and was told that the pain might be caused by an inflamed tendon in her right hip, so he ordered an MRI. She had the MRI done six days later, but couldn't see Kemp's schedule for a follow-up appointment until June. 

Because her pain was worsening daily, she called Kemp's office on May 7, and said that she couldn't wait until June to see him. She also asked for a copy of her MRI results but was inexplicably refused. Due to a cancellation, she was able to see Kemp the next day (May 8). While she and I were waiting for him to enter the exam room, a woman walked in, handed Peggy a piece of paper, and walked out. Peggy saw that the paper contained her MRI results, which alluded to "the possibility of metastatic bone lesions to the iliac bone." Kemp hadn't looked at the results prior to entering the room, and, upon seeing them, blamed Oregon Imaging for not alerting him to their seriousness. 

He then ordered three additional imaging tests, but when Peggy called later that day to make an appointment she was told that one of his orders needed clarification. An order that didn't need clarification called for a CT scan of the right hip, and Peggy had one done on May 10, two days after seeing Kemp. This time, she asked Oregon Imaging to send her the results directly. On May 12, they emailed her a report which contained the terror-instilling words: "This most likely represents osseous metastatic disease". 

Eight days later, Oregon Imaging still didn't know what Kemp wanted done despite Peggy, Oregon Imaging, and me making repeated and impassionedd (at least on my part), efforts to find out. She called Kemp's office a final time on May 14, to say she was done seeing him so there was no need for him to clarify his orders. His office called the next day to say that his orders had been clarified. During the week that we wasted calling Kemp, Peggy called Kirk (her internist), and explained the situation. Kirk immediately ordered a PET-CT scan, which is to be done on Monday, May 19.
 
Bone cancer that originates in the bone constitutes only 1% of all cancers. Secondary bone cancer is terminal and can originate in many places. In women, it most commonly migrates from the breasts or lungs. If she has boner cancer and if it came from her breasts (she has yearly mammograms), her odds of being alive in five years is 13%. If the cancer spread from her lungs (she has had lung problems since getting Valley Fever in Fresno, California, in 1986), the likelihood is that she will be dead this time next year.

An Afternoon in Heaven



Looking west from near the summit, source unknown

1,518-foot Mt. Pisgah got its non-Indian name 175-years ago when an early settler felt such joy upon seeing Oregon's Willamette Valley from its summit that he named it after the mountain from which Moses saw the Promised Land. The 2,363-acre park that encompasses Pisgah today offers oak prairies, fertile bottomlands, a dense conifer forest, 17-miles of trails, and a 209-acre arboretum, along with deer, rabbits, bobcats, coyotes, numerous hawks, and an occasional bear or mountain lion. We invariably see multiple large hawks and an occasional buzzard riding the mountain's air currents. On our last visit, we saw a colorful bird called a paraglider.

Pisgah was born 40-million years ago as a pool of subterranean lava that, over the millennia, hardened into basalt, diabase, and a smattering of snow white mesolites. The erosion which exposed the mountain continues to keep the depth of its soil shallower than the length of my hand. At the flat bottom of the mountain, the soil is deep and rich thanks to erosion from Pisgah itself and to deposits that were carried from the Cascade Mountains by the Coast Fork and the Middle Fork of the Willamette River. 

February through May are my favorite times to visit Pisgah because that's when leaves open, flowers bloom, and hundreds—perhaps thousands—of burbling streams bring beauty to the eye and music to the ear. I get a thrill from finding the very place where one of these streams breaks through to the surface.



In the photo, Peggy is relaxing on one of scores of benches that honor dead loved ones. A nearby bench commemorates the life of a 31-year-old murder victim, and another contains drawings done by the six-year-old girl to whom it pays tribute. I'll enclose a photo of one of the many dedications that touches me. The mountain in front of Peggy is 2,058-foot Spencer Butte, the highpoint of a 12-mile trail that will someday encircle Eugene.


After moving to Oregon in 1986, Peggy and I climbed Pisgah three times a week with a group of six to twelve friends. It was still a working ranch, and despite being afraid of the cows, Peggy called it my holy mountain, and everyone would sing The hills are alive with the sound of music...when we summited. We climbed year round in good weather and bad, although it meant descending in the dark of winter. Now, the rancher's cows are gone; the park closes at dusk; most of our friends have moved or died; and we almost never hike to the summit. 

We seldom choose to a destination, but when we do, it's often a mysterious labyrinth within an abandoned quarry. Because most visitors take primary trails, we usually have the quarry to ourselves, and we enjoy examining the offerings that were left since our last visit.

We recently spotted two coyotes. They were too fast for me to film, but I got a photograph of their scat and Peggy recorded their voices (turn your volume up and note the distant reply). Ten minutes later, we met a woman who excitedly reported seeing a bobcat. We later found bear scat.

A barn and a large Quonset-hut remain from ranching days, and we sometimes picnic in the latter while enjoying Fancy Cloud Friends' latest artwork: https://www.threads.net/@fancycloudfriends .



In January of 2024, Eugene was hit by an ice storm which closed the park for two long months. Its effects remain obvious in the form of downed limbs and broken trees--note the Douglas Fir Cone on the standing trunk of a dead maple. Soon after I moved to Oregon, a forestry student who has since died taught me to identify these cones by looking for the tails and hind-feet of scurrying mice. Each of these tiny cones can produce dozens of 330-foot-tall trees.

I'll close with an example of Mt. Pisgah's seasonal streams. While they might be less memorable than booming waterfalls hundreds of feet high, my life is far more enriched by these humbler members of the waterfall family. I am pleased to say that I have the good fortune of living but nine miles from the one place on earth that I most enjoy visiting. 

 


A Tour of my Refuge and Sanctuary

This is my bedroom. The walls of my bedroom are pink, and the walls of Peggy's bedroom are green. Every two weeks, we clean house, and it is then that I change out many of my decorations. It is for this reason that you might see the same item in two locations. We bought the silk painting atop the mirror in Nuevo Laredo, Mexico, in 1972. When silk-paintings of John Wayne and Elvis Presley became popular, Peggy wanted to discard our desert scene. I go along with most of what she wants, but on this occasion I demurred. The cat painting to the left of the mirror came from a St. Vincent de Paul Store in Eugene, and the wall-hanging above my BiPap is a pressed-plastic picnic scene that came from a junk store in Wisconsin
 
 
The brown heart to the right of the second photo was a gift from a British blogger. I call both Peggy and the sleeping squirrel to the left of the photo, Fluffy, Fluffer, or Fluffy Squirrel.

 
I used to have 44-plants in my bedroom, but am now down to the ones in the photo plus an Aglaonema that stays in the den. The white cat was a gift from an elderly neighbor named Helen who has since died. In front of the white cat are wasps' nests (I love wasps and bees), petrified wood, and ceramic pieces by the same British blogger who gave me the heart.
 
 
In January, my collection of Civil War books reached the point that I paid $50 for the above bookcase at a Habitat for Humanity store. When the ensuing book shuffle was complete, my Civil War books were in the hall, and my new bookcase contained books about cats, knots, and domestic plants. The poinsettia blanket is one of several bed-coverings that I use to keep cat fur off my spread.
 
 
Our youngest catfive-year-old Harveyis relaxing amid my cat library. His luxuriant ruff isn't visible, but his snarky expression is. He is so beautiful that I become the world's first bitch to a cat.

 
I bought the white rabbit holding the carrot at a junk shop sixty miles from town while on an outing with my friend Walt (https://snowbrush.blogspot.com/2023/11/invitation-to-suicide.html). Determined to maintain my manly image, I didn't buy it that day, and so it was that Walt had to drive me back for it the next day. The plaster-of-Paris animal to the right of the rabbit was so well-cuddled that it's identity is indecipherable. I love many damaged possessions. For example, I used to collect broken-legged horse knick-knacks because I couldn't bear the thought of the store throwing them away. I didn't realize that my father knew about my horses until he started crying about them the year he died.
 
The dark-colored cat below the stuffed cat is Bastet, my only overtly religious symbol. I bought the fox to the right of Bastet at the Jackson, Mississippi, zoo when I was seven in honor of a wolf that spent his nightmarish existence pacing rapidly back and forth inside a small cage. I thought my fox was a wolf until twenty years ago Peggy laughingly informed me of my mistake. The blue mug to the right of the "wolf" contains bookmarks that I cut from Christmas cards. 
 
 
My mother made the needlework tree as my Christmas present in 1976.

 
The wolf in snow came from a long-forgotten antique store run by a delightful lady named Penny who died of Alzheimer's. The rock on the floor fell from Symbol Rock, a 40-million-year-old Cascade Mountain basalt formation that an extinct Indian tribe worshiped, as do I.
 

 
I read in bed from 10:00 until 1:00 each night and am often joined by four cats (all four are in the photo). A fifth cat joined us until he got mad at me for swatting his tush when he attacked my defenseless girl cat, Scully (she's sitting in the photo). That dire event occurred five years ago, yet I'm lucky if he joins me twice a year. I have multiple nicknames for my various cats. For example, Scully answers to Girlfriend, Beauty Girl, White Whiskers, and Pretty Lady Cat. As is the way with men, my love for my male cats often wears a disguise. For example, Brewsky (the tabby at my feet) is Sweet Man, Patriarch of the Cat Side of the Family, and Lard-Ass; while Harvey goes by Sweetheart, Pretty-Pretty Cat Man, Most Beautiful Cat on Earth, and Shithead
 
Albert Schweitzer well-expressed my own delight in cats when he wrote:

There are two means of refuge from the misery of life, music and cats.            

Please Accept My Apology


Since Donald Trump's inauguration; the beauty of my bedroom; the solace of nearby Mt. Pisgah; and the affection of Peggy, our cats, and some of you, are like islands in a stormy sea. What I would like to do right now is to share a pleasant post that I have been working on for weeks about my bedroom. Unfortunately I feel ethically compelled to first apologize to you for what is happening in America. I'm especially concerned about the feelings and opinions of readers who live in Britain, Canada, Australia, India, and—prior to the invasionUkraine (https://dablogfodder.blogspot.com/). It is they who constitute nearly all of my active readership, and this is what I want them to know:

(1) I am ashamed of what my nation has become, and I am frightened that it will continue its hellish dissent into totalitarianism.
 
(2) I cannot divorce my personal identity from my national identity. 
 
(3) I worry that my non-American readers will also be unable to divorce my personal identity from my national identity, and that this will lead them to abandon me.
 
(4) Only a callous, arrogant, petty, and vicious nation, could elect a demon like Trump and stand passive while he destroys its democracy. Although offering you my apology might seem pointless, I don't know what else to do, and it is surely better to apologize than to behave as though everything were normal.

On Having Money

 

Peggy, our five cats, and I, live in a modest 69-year-old house in a slowly deteriorating neighborhood. In the past five months we’ve spent: $11,000 for a new roof; $12,000 for plumbing repairs; $4,000 for property taxes; $2,000 for cat care; $3,000 for rain gutters and gutter screens (we installed the screens); hundreds for house paint (we did the painting); and an uncalculated sum of money on four vacations that Peggy took. Neither of us inherited wealth nor did our combined salaries exceed a middle class income, but because we saved and were frugal, we have never bought anything—including four homes in three states—that we couldn’t have paid cash for.

My pilgrimages to the marble and granite cathedral that was State Bank and Trust Company, are among my happiest childhood memories for several reasons: my town didn’t have another building half so beautiful; I enjoyed watching my money “grow”; and the young women who recorded my fifty-cent deposits treated me like an adult and had smiles that dwarfed the sunrise.

My parents also saved, but Peggy’s parents saw things so differently that saving money was the only thing her father ever criticized me for because he interpreted it to mean that I was putting my faith in “mammon.” instead in of God. He advised that I should, in the following order: donate 10% of my income to the church; pay my “just debts”; spend the remainder as I pleased; and trust God for help if I ran short. I considered his words the stupidest and most unwarranted piece of advice I ever heard, plus it left me to wonder how he could be completely ignorant of the fact that his daughter hated his Southern Baptist religion and shared her husband’s values. In fact, mine and Peggy’s only significant disagreement over money occurred soon after we married when I decreed that we economize by drinking powdered milk. A three-times-a-day milk-drinker, Peggy objected bitterly, but because she still had a vestigial amount of respect for her husband’s intelligence and had been raised to believe that “the husband should rule the wife even as Christ rules the church” (not that it worked that way with her parents), she grumblingly went along for several weeks before staging an all-out coup during which she would toast my health with “real milk.” (I drink powdered milk to this day.)

Peggy’s father wasn’t my only critic. Most commonly I’ve been warned, “You can’t take it with you when you die” (three such people later asked for loans), but I consider frugality a virtue; I would loathe owing interest; I like not having to worry about how to pay for things; I feel more secure for having money; having money means not having to deny myself; and despite my critics’ argument that unspent money is wasted money, I feel good about leaving money to charity. While it’s true that the squirrel who stores nuts for winter might never enjoy the fruits of his labor, it would be a silly squirrel who refused to store nuts. But then a squirrel is not a grasshopper…

One December when I was eight, my parents put me on a plane to travel the hundred miles to visit my 19-year-old half-sister, Anne, who was attending college in New Orleans. Our mother expected Anne to drive me home, but because Anne had no car—and no money, for that matter—she borrowed one. Upon discovering that the car had no gas, she asked me for a loan. Despite her promise to pay me back when we reached Mississippi, I refused. I don’t know where she got the money, but her considerable anger didn’t prevent her from covering me with her coat when she realized that the car’s heater was broken. 

Despite her goodness, the wound I inflicted festered to the point that I don’t think she ever recovered. Because I was a child, perhaps the severity of her hurt can be partially explained by previous hurts she suffered over money. Her first hurt was inflicted by her father, Dustin, who, in the midst of the Great Depression abandoned his impoverished wife and two small children to pursue a playboy lifestyle. Upon Dustin’s death at age 36, Anne’s destitute mother entrusted her two children to Dustin’s siblings. Anne went to Dustin’s miserly brother, Ernie, who made it clear that she was a financial burden who wasn’t his real daughter. Worse yet, he interpreted Anne’s generous heart as evidence of improvidence, which he attempted to correct by sharing an Aesop’s fable entitled “The Ants and the Grasshopper”:

One bright day in late autumn a colony of ants were busy drying the grain they had stored for winter, when a starving grasshopper with a fiddle under his arm begged for a bite to eat.

“What!” cried he nearest ant, “haven’t you stored food for winter? What were you doing all summer?”
“I was so busy making music that I didn’t have time to harvest food, and before I knew it the summer was gone.”

“Making music!” the ant retorted as he turned his back on the starving grasshopper. “Very well; now you have the leisure to dance!”

When Anne later learned that grasshoppers are doomed to die at summer’s end no matter how much food they have, she condemned her uncle’s story as a lie.

My friend, Walt—whose death I described a few posts ago—had a Washington state friend who was beyond frugal. One day when Walt was vexed that Bob never visited him, he said, “Bob spends as little as possible on everything he buys, which is why he doesn’t have a car that will hold together for a trip to Oregon. When you buy, you buy quality. You’re frugal; Bobs cheap.”

Years ago, I won a trip to a luxury resort. That trip was the only time in our long marriage that Peggy and I lived like rich people are said to live. One morning while lying in our plush bed and watching ships on the Pacific, I had the thought that I would be enjoying myself more if I were lying in the bed of our van and looking through steamy windows while drinking coffee brewed on a Coleman stove. I don’t know if it was luck or intelligence that led me to marry a woman who has never once said, “My idea of roughing it is to stay in a Holiday Inn.”

I’ve known people who consider their purchase of new, trendy, name-brand items as proof of refinement, but used items cost less, off-gas less, offer a wider selection, and don’t deplete the earth’s resources. A 94-year-old American investor named Warren Buffet wears plain clothes and drive an old pickup despite being a billionaire 150-times over. If I were Buffet, I would give more to charity; buy flood insurance; replace three missing teeth with implants; and re-roof my patio, but that’s all I can think of, and I could do them now if I wanted.

Even so, I never feel completely secure because I believe that wealth consists of having enough money in enough kinds of investments that Peggy and I would have enough to live on no matter what happened. This is not true for us, so a flood, costly medical bills, an economic depression, a prolonged stay in a nursing home, or Oregon’s coming +9.0 earthquake, could really hurt us. Although most risks can be mitigated, such measures are often expensive and come with their own risks. For example, flood insurance would cost us $8,400 a year, and we’re not even in a flood zone.

A final factor in mine and Peggy’s spending habits is that after being frugal our entire lives, we’re not inclined to spend money simply because we can, and there are also charitable bequests to consider. People talk as though unspent money is wasted money, but because I already have everything I want, I’m happy to know that charities will profit from my death.

Life Gets A Mite Hard: A Check-In

Today is Sunday. On Wednesday, Peggy left on her fourth vacation of the year. I kid her about only leaving home when the house needs cleaning, but this time was worse than that because all five cats were—and are—sick with URIs (upper respiratory infections), an extremely infectious illness commonly caused by feline herpesvirus. As with herpes in humans, herpes in cats is permanent, and can come screaming back when the cat is upset, after which he or she spreads it to other cats. It is often accompanied by a second viral or bacterial infection.

Saturday before last, I was out shopping when two of our sick felines started panting. We only have the one car, so Peggy had a friend take her and them to the emergency vet. Five hours and a thousand dollars later, they were sent home with meds, and we were advised to keep them quarantined so they wouldn’t make the other cats sicker by increasing their “viral load.” The room I’m in (the computer room) is where we put them. The day before she left, Peggy and I took the sicker of the two—Scully—to her regular vet and came home $250 poorer and with a week’s worth of Azithromycin.

Cats can’t blow their noses, so everytime the two sickest cats exhaled, they blew bubbles, and their fur became matted with snot which they put there while bathing. Snot also ran from their eyes, and their frequent sneezes left spots on windows, floors, and walls. The room even smelled of snot, but it being too cool to open windows, I had to live with it. I took Scully out of quarantine on Thursday, but Harvey was still so sick that I called the emergency vet for advice that same night. I thought they might tell me to bring him in, but I was instead told to apply warm compresses to his sinuses. I doubted that this would work, and when it didn’t, I got out a hot plate and a steam kettle, and imprisoned him in front of the kettle in his cat carrier. He liked the steam so much that I have kept him there for an hour a day for four days. To insure that he stayed warm, I also built him a cozy den in a cardboard box with a jerry-rigged roof. He preferred it to his regular bed as I discovered when I got up several times each night to check on him.

The other cats were so upset about Harvey being in quarantine that they shredded the hall carpet while trying to dig under the door. When I took him out of his weeklong quarantine yesterday, he walked around the house for a few minutes after which he returned to the computer room and showed every indication of wanting to make it his permanent abode. As of today, Harvey’s congestion has returned, and the other cats are sneezing, so I don’t know but what everyone is going to be sick again—two vets have warned that this could happen indefinitely. 

When Peggy is away the heart goes out of our home. I no longer have nearby friends, and if I didn’t have her, I would probably live in isolation. I still enjoy people—except on days when I can’t bear to be around them—but I no longer want to socialize. This is the opposite of how I spent much of my life. I understand that it’s not unusual for aging men to feel this way, whereas aging women often expand their friendship circles, as has been the case with Peggy. 

Additional reasons for my disinterest in socializing are a voice problem I’ve developed that makes it hard for people to understand me, and the fact that the back pain I suffer from is distracting, robs me of energy, and makes me feel vulnerable. I can’t even make plans to do things with people because I never know how much pain I’ll be in.

Because Peggy is away, I’ve been reflecting upon the fact that if I should, for whatever reason, need help, I don’t know anyone I would feel good about asking. I know people who I could ask, should it come to that, but I would feel like I was imposing because they and I don’t have a relationship built on reciprocity. In a few more years, my isolation could become a real problem, especially if I have to give up driving. 

This week has been especially hard for me, what with Peggy being gone, the cats being sick, and me being out of narcotics and sleeping pills. So it is that my days have been spent nursing—and anguishing over—cats; doing as much housework and yard work as I can manage; watching my beloved Grenada Television Sherlock Holmes series; and sitting up most of each night reading what is by far the most gory and depressing book about America’s Civil War that I’ve yet encountered (The Civil War Soldier, A Historical Reader). 

Despite how bad things have been, I can at least feel good that Peggy hasn’t been here because I have only negativity to offer, and all that would accomplish would be to make her feel bad and me feel worse. The good thing about cats is that, as long as their meals on time, they don’t seem to care how I feel. I can say what I want and do what I want, and they bear it extremely well unless I’m a half hour late with one of their three daily meals or their midnight snack. 

The Siege of Vicksburg As Experienced by a Woman

Emma Kline
 Hundreds of women served at Vicksburg in one way or another. A Confederate woman named Emma Kline was arrested for smuggling, and a Union nurse known as “Mother Bickerdyke faced sexism from doctors while caring for the wounded of both sides. At least three women disguised themselves as men and served as soldiers while other women worked as laundresses. Former slaves became paid servants (aka pet niggers) to Union soldiers, and currently enslaved women braved the bombardment to prepare food, wash laundry, and run errands for their cave-dwelling mistresses. Women also numbered among Vicksburg’s war diarists. Among them were Emma Balfour, a Mississippi-born Confederate; Alice Shirley, a Mississippi-born Unionist; Dora Richards Miller, a Northern traveler who had become trapped in the city; and New York born, twenty-six-year-old, Mary Loughborough. This post will contain excerpts (in green font) from the diary of Mary Loughborough.
Mother Bickerdyke
By the time Mary was five,
her mother was dead, and Mary was living in a New York City almshouse. By age thirteen, she and her father had moved to St. Louis, Missouri, where she later married James Moore Loughborough, a prominent lawyer. When war came in 1861, Missouri remained true to the Union, but Moore joined the Confederate army. That same year, the couple’s toddler died and Mary and their remaining child began following Moore as his unit moved through Arkansas, Tennessee, and Mississippi. In May, 1863, Mary and two-year-old Jean were in Jackson when word came that Grant was approaching. As the city panicked, they took one of the last trains to Vicksburg where Moore was stationed:

A Transgender Soldier?

The depot was crowded with crushing and elbowing human beings, swaying to and fro—baggage being thrown hither and thither—horses wild with fright, and negroes with confusion; and so we found ourselves in a car, amid the living stream that flowed and surged along—seeking the Mobile cars—seeking the Vicksburg cars—seeking anything to bear them away from the threatened and fast depopulating town.

Upon arriving in Vicksburg, she wrote:

Ah! Vicksburg, our city of refuge, the last to yield thou wilt be; and within thy homes we will not fear the footstep of the victorious army, but rest in safety amid thy hills! and those whom we love so dearly will comfort and sustain us in our frightened and panic-stricken condition—will laugh away our woman’s fears, and lighten our hearts from the dread and suffering we have experienced.

The Shirley House
Her hope of safety was short-lived for, even as she traveled, the rebel army of John Pemberton was retreating to the Big Black River Bridge where it lost a sixth battle that was meant to stop Grant from reaching the city. After burning the bridge, tens of thousands of hungry and exhausted Confederates streamed into Vicksburg where they were jeered by the city’s frightened women. Meanwhile, Grant’s 77,000-man army was ten miles away crossing the Big Black on inflatable pontoons.

“What can be the matter?” we all cried, as the streets and pavements became full of these worn and tired-looking men. We sent down to ask, and the reply was: “We are whipped; and the Federals are after us.” We hastily seized veils and bonnets, and walked down the avenue to the iron railing that separates the yard from the street. “Where are you going?” we asked. 

Mary Loughboroug
Mary Loughborough

No one seemed disposed to answer the question. An embarrassed, pained look came over some of the faces that were raised to us; others seemed only to feel the weariness of the long march; again we asked: “Where on earth are you going?”

At last one man looked up in a half-surly manner, and answered:

“We are running.”

“From whom?” exclaimed one of the young girls of the house.

“The Feds, to be sure,” said another, half laughing and half shamefaced.

 “Oh! shame on you!” cried the ladies; “and you running!”

“It’s all Pem’s fault,” said an awkward, long-limbed, weary-looking man.

“It’s all your own fault. Why don’t you stand your ground?” was the reply.

“Shame on you all!” cried some of the ladies across the street, becoming excited…

“We are disappointed in you!” 

“Who shall we look to now for protection?”

“Oh!” said one of them, “it’s the first time I ever ran. We are Georgians, and we never ran before; but we saw them all breaking and running, and we could not bear up alone.”

The women’s terror was partly due to the behavior of Grant’s army in northern Mississippi a year earlier when, repulsed by the sight of wealthy planters living on the backs of overworked slaves, and embittered by their heavy losses at Shiloh, entire regiments defied orders to respect civilians and their property. Smoke filled the horizon in every direction as troops burned what they could burn; stole what they could steal; killed pets and livestock; and destroyed family heirlooms.

Even the threat of execution failed to deter men whose officers were their partners in crime, and instead of feeling ashamed, they boasted of their misdeeds in letters home. Another reason for the women’s behavior was that, after a winter spent watching mud-encrusted Northerners skulk in the willows on the far side of the mile-wide Mississippi, many had come to believe the propaganda about hardy Southerners whipping ten times their weight in pasty-faced Yankees. Later that day, the courage of Vicksburg’s women revived when fresh troops arrived from below the city. 

As the troops from Warrenton passed by, the ladies waved their handkerchiefs, cheering them, and crying:

“These are the troops that have not run. You’ll stand by us, and protect us, won’t you? You won’t retreat and bring the Federals behind you.”

And the men, who were fresh and lively, swung their hats, and promised to die for the ladies—never to run—never to retreat; while the poor fellows on the pavement, sitting on their blankets—lying on the ground—leaning against trees, or anything to rest their wearied bodies, looked on silent and dejected.

After the war, the Loughborough family settled in Arkansas where Moore served as state senator and Mary published the popular Southern Ladies’ Journal. In 1876, forty-two-year-old Moore committed suicide. Eleven years later, fifty-year-old Mary Ann died of an unknown illness while expanding her magazine, which died with her. What follows are additional excerpts from her 138-page Vicksburg diary, which covers the period from April to July, 1863. Because the entries are undated, I will preface each with an underlined introduction.

The Nighttime Sinking of a Union Troop Transport: The lurid glare from the burning boat fell in red and amber light upon the house, the veranda, and the animated faces turned toward the river—lighting the white magnolias, paling the pink crape myrtles [see photo], and bringing out in bright distinctness the railing of the terrace, where drooped in fragrant wreaths the clustering passion vine: fair and beautiful, but false, the crimson, wavering light. I sat and gazed upon the burning wreck of what an hour ago had thronged with human life; with men whose mothers had this very night prayed for them; with men whose wives tearfully hovered over little beds, kissing each tender, sleeping lid for the absent one. Had this night made them orphans? Did this smooth, deceitful current of the glowing waters glide over forms loved and lost to the faithful ones at home? O mother and wife! ye will pray and smile on, until the terrible tidings come: “Lost at Vicksburg!” Lost at Vicksburg! In how many a heart the name for years will lie like a brand!—lie until the warm heart and tried soul shall be at peace forever.

Pink Crepe Myrtle

Housekeeping: And so I went regularly to work, keeping house under ground. Our new habitation was an excavation made in the earth, and branching six feet from the entrance, forming a cave in the shape of a T. In one of the wings my bed fitted; the other I used as a kind of dressing room; in this the earth had been cut down a foot or two below the floor of the main cave; I could stand erect here; and when tired of sitting in other portions of my residence, I bowed myself into it, and stood impassively resting at full height.

Bombardment: Terror stricken, we remained crouched in the cave, while shell after shell followed each other in quick succession. I endeavored by constant prayer to prepare myself for the sudden death I was almost certain awaited me. My heart stood still as we would hear the reports from the guns, and the rushing and fearful sound of the shell as it came toward us. As it neared, the noise became more deafening; the air was full of the rushing sound; pains darted through my temples; my ears were full of the confusing noise; and, as it exploded, the report flashed through my head like an electric shock, leaving me in a quiet state of terror the most painful that I can imagine—cowering in a corner, holding my child to my heart—the only feeling of my life being the choking throbs of my heart, that rendered me almost breathless. As singly they fell short, or beyond the cave, I was aroused by a feeling of thankfulness that was of short duration.
Union Artillery Battery
The Death of A Child: Sitting in the cave, one evening, I heard the most heartrending screams and moans. I was told that a mother had taken a child into a cave about a hundred yards from us; and having laid it on its little bed, as the poor woman believed, in safety, she took her seat near the entrance of the cave. A mortar shell came rushing through the air, and fell with much force, entering the earth above the sleeping child—cutting through into the cave—oh! most horrible sight to the mother—crushing in the upper part of the little sleeping head, and taking away the young innocent life without a look or word of passing love to be treasured in the mother’s heart.


I could not hear those sobs and cries without thinking of the night—that last night—when I held my darling to my heart, thinking that, though so suddenly stricken and so scared, she would still live to bless my life. And the terrible awakening!—to find that, lying in my arms all my own, as I believed, she was going swiftly—going into the far unknown eternity! Sliding from my embrace, the precious life was called by One so mighty—so all-powerful—yet so merciful, that I bowed my head in silence.

Still the moans from the bereaved mother came borne on the pleasant air, floating through the silvery moonlit scene—saddening hearts that had never known sorrow, and awakening chords of sympathy in hearts that before had thrilled and suffered. Yet, “it is better to have loved and lost than never to have loved at all.”  


Pretty Airs: That evening some friends sat with me: one took up my guitar and played some pretty little airs for us; yet, the noise of the shells threw a discord among the harmonies. To me it seemed like the crushing and bitter spirit of hate near the light and grace of happiness.

The Following Was Written After Moore Moved Mary from the City to A Cave at the Front

Wounded Federals: I was distressed to hear of a young Federal lieutenant who had been severely wounded and left on the field by his comrades. He had lived in this condition from Saturday until Monday, lying in the burning sun without water or food; and the men on both sides could witness the agony of the life thus prolonged, without the power to assist him in any way. I was glad, indeed, when I heard the poor man had expired on Monday morning. 

Another soldier left on the field, badly wounded in the leg, had begged most piteously for water; and lying near the Confederate intrenchments, his cries were all directed to the Confederate soldiers. The firing was heaviest where he lay; and it would have been at the risk of a life to have gone to him; yet, a Confederate soldier asked and obtained leave to carry water to him, and stood and fanned him in the midst of the firing, while he eagerly drank from the heroic soldier’s canteen… Truly, “the bravest are the tenderest; the loving are the daring.” [Quotation by Bayard Taylor]

Amusements:
They amused themselves, while lying in the pits, by cutting out little trinkets from the wood of the parapet and the MiniÉ balls [a large caliber rifle bullet
see photo] that fell around them. Major Fry, from Texas, excelled in skill and ready invention, I think: he sent me one day an arm chair that he had cut from a MiniÉ ball—the most minute affair of the kind I ever saw, yet perfectly symmetrical. At another time, he sent me a diminutive plough made from the parapet wood, with traces of lead, and a lead point made from a MiniÉ ball. I had often remarked how cheerfully the soldiers bore the hardships of the siege. I saw them often passing with their little sacks containing scanty rations, whistling and chatting pleasantly, as around them thickly flew the balls and shells.

Worn and Pale: I am told by my friends, who call, that I am looking worn and pale, and frequently asked if I am not weary of this cave life. I parry the question as well as possible, for I do not like to admit it for M——’s sake; yet, I am tired and weary—ah! so weary! I never was made to exist under ground; and when I am obliged to, what wonder that I vegetate, like other unfortunate plants—grow wan, spindling, and white! Yet, I must reason with myself: I had chosen this life of suffering with one I love; and what suffering, after all, have I experienced?—privations in the way of good and wholesome food, not half what the poor people around us are experiencing…To reason with myself in this time of danger was one of the chief employments of my cave life.

Eloquent Suffering: One evening I noticed one of the horses tied in the ravine, acting very strangely—writhing and struggling as if in pain. One of the soldiers went to him and found that he was very badly wounded in the flank by a MiniÉ ball. The poor creature’s agony was dreadful: he would reach his head up as far as possible into the tree to which he was tied, and cling with his mouth, while his neck and body quivered with the pain. Every motion, instead of being violent, as most horses would have been when wounded, had a stately grace of eloquent suffering that is indescribable. How I wanted to go to him and pat and soothe him! The halter was taken off, and he was turned free. Going to a tree, he leaned his body against it, and moaned, with half closed eyes, shivering frequently throughout his huge body, as if the pain were too great to bear…

Becoming restless with the pain, the poor brute staggered blindly on. And now my eyes fill with tears; for he has fallen, with a weary moan, between the banks of the little rivulet in the ravine, his head thrown on the sod, and the bright, intelligent eye turned still upon the men who have been his comrades in many a battle, standing still near him. Poor fellow!—those low and frequent moans and trembling limbs tell them that death has stricken you already—that you are far beyond human sympathy. In the midst of all the falling shells, cannot one reach him, giving him peace and death? I see an axe handed to one of the bystanders, and turn suddenly away from the scene.

A Gray-headed Soldier: One old, gray-headed, cheerful-hearted soldier, whom I had talked with often, was passing through the ravine for water, immediately opposite our cave. A MiniÉ ball struck him in the lower part of the leg; he coolly stooped down, tied his handkerchief around it, and passed on. So constantly fell projectiles of all descriptions, that I became almost indifferent to them. Only the hideous noise of numerous shrapnell could startle me now.

The Death of Henry: A soldier, named Henry, had noticed my little girl often, bringing her flowers at one time, an apple at another, and again a young mocking bird, and had attached her to him much by these little kindnesses. Frequently, on seeing him pass, she would call his name, and clap her hands gleefully…

Afterward I saw him come down the hill opposite, with an unexploded shrapnel shell in his hand. In a few moments I heard a quick explosion in the ravine, followed by a cry—a sudden, agonized cry… Henry—oh, poor Henry!—holding out his mangled arms—the hands torn and hanging from the bleeding, ghastly wrists—a fearful wound in his head—the blood pouring from his wounds. Shot, gasping, wild, he staggered around, crying piteously, “Where are you, boys? O boys, where are you? Oh, I am hurt! I am hurt! Boys, come to me!—come to me! God have mercy! Almighty God, have mercy!” 

My little girl clung to my dress, saying, “O mamma, poor Henny’s killed! Now he’ll die, mamma. Oh, poor Henny!” I carried her away from the painful sight. My first impulse was to run down to them with the few remedies I possessed. Then I thought of the crowd of soldiers around the men; and if M—— should come and see me there—the only lady—he might think I did wrong; so I sent my servant, with camphor and other slight remedies I possessed, and turned into my cave, with a sickened heart.

A Jaybird: We were now swiftly nearing the end of our siege life: the rations had nearly all been given out. For the last few days I had been sick; still I tried to overcome the languid feeling of utter prostration. My little one had swung in her hammock, reduced in strength, with a low fever flushing in her face. M—— was all anxiety, I could plainly see. A soldier brought up, one morning, a little jaybird, as a plaything for the child. After playing with it for a short time, she turned wearily away. “Miss Mary,” said the servant, “she’s hungry; let me make her some soup from the bird.” At first I refused: the poor little plaything should not die; then, as I thought of the child, I half consented. With the utmost haste, Cinth disappeared; and the next time she appeared, it was with a cup of soup, and a little plate, on which lay the white meat of the poor little bird.

After the Surrender: On the hill above us, the earth was literally covered with fragments of shell – Parrott, shrapnel, canister; besides lead in all shapes and forms, and a long kind of solid shot, shaped like a small Parrott shell. Minie balls lay in every direction, flattened, dented, and bent from the contact with trees and pieces of wood in their flight. The grass seemed deadened – the ground ploughed into furrows in many places; while scattered over all, like giants’ pepper, in numberless quantity, were the shrapnel balls.

Vicksburg Passes from View: Saturday evening, Vicksburg, with her terraced hills—with her pleasant homes and sad memories, passed from my view in the gathering twilight—passed, but the river flowed on the same, and the stars shone out with the same calm light! But the many eyes—O Vicksburg!—that have gazed on thy terraced hills—on thy green and sunny gardens—on the flow of the river—the calm of the stars—those eyes! how many thou hast closed on the world forever!