Showing posts with label chronic pain. Show all posts
Showing posts with label chronic pain. Show all posts

Back to work



I’ve spent weeks preparing for two plumbing jobs under the house. In olden times, I would have taken measurements, bought my materials, and set to work, all on the same day. Now that I’m in pain and out of shape, I’ve been planning every detail with the goal of making the jobs as easy as possible, mostly through breaking them down into manageable portions, and trying to minimize how much I will have to crawl around under the house on any given occasion. 

I’m now through with my planning, purchasing, and pipe preparation, and I’m just waiting for good weather to crawl under there, lie on my back in dripping sewage, and remove three 1 ½ ” galvanized drain pipes with a circular saw that will be running inches from my face and burning my scalp with sparks. Oh, the joy! I love hard and dirty projects as much as I love going camping with Peggy. They make me feel like a man. They give me a chance to use my skill and my intelligence to accomplish something that I can stand back and look at with pride for as long as I live in this house, which might very well be until I die.

Peggy has pleaded with me repeatedly to hire a plumber, but the job might suck either way. If I hire someone, I’ll feel that much worse about myself; I’ll miss out on work I enjoy; and we’ll be out hundreds of dollars. If I don’t hire someone, I risk causing myself weeks of pain. Peggy doesn’t understand how important such work is to me because to her it just looks like something hard and filthy that's best left to someone else, no matter what shape one is in. To me, it's what I need if I’m to find value in being alive.

I wrote the above a few days ago, and did one of the jobs yesterday. I spent five hours straight under the house because I had the clothes washer and kitchen sink disconnected (during my next project, the whole house will be disconnected), making it necessary to see the job through. I could have crawled out to take breaks, of course, but I wanted to spare my joints, and I could best do that by not by crawling anymore than necessary. I’m excited to report that I had a good night last night. I was awfully sore, but my joints were no worse for wear. I’ve been slowly getting better for a couple of months now, and the work I did yesterday far exceeds anything I’ve taken on for years, joint-wise. I am becoming guardedly hopeful.

Both photos are from yesterday. I'm not through hanging pipe in the top picture, but I am through replacing it. Peggy took the second picture when the job was done.

Maybe cancer; maybe not


My prostate antigen level in April of 2011 was two. This April, it was 4.5. This week, it’s 4.9. I’ve had a few biopsies over the years—including one of my lower abdomen and another of a neck vertebrae for which the surgeon had to go through the front of my throat—but I never believed I had cancer. This time, I think I do.

I would hate like hell to leave Peggy alone. I would also hate to leave my "bloggy friends" as Nollyposh used to call them (she was one of four bloggy friends I lost to cancer). A lot of people will find out that they're dying just in the time it takes to write this post, and that won't be long because I'm still doing my experiment with minimal editing.

A few years ago my 56-year-old neighbor, John, drove three hours, climbed a 10,358-foot peak (3,157 meters), and drove home. I saw him that evening, and he complained of fatigue. I laughed, but he said that, no, this fatigue was different. He died a year later of prostate cancer. (I can hardly hold out to clean house anymore, which is one of the reasons I think I have cancer). John died next door, but I never went to see him because I didn’t really know him, and I wasn’t sure I would be welcome. He was also a lawyer, and I hate lawyers. I now wish I had gone because it would have been the right thing to do. I also like being around people who are dying.

Doc Martin is phobic of blood; Nurse Peggy is phobic of cancer. She's so scared that she’s been having to struggle to keep from hyperventilating. 

I've often wondered whether it would be easier to have a terminal illness than to live in pain. One advantage of living in pain is that I have a sense of time stretching before me, and that gives me reason to hope that I will either beat the pain eventually or at least learn to tolerate it better.

My odds of survival are probably good even if I have cancer, but there’s still that 3% chance that I’ll be dead within five years. After ten years, the chance is 30%, and it keeps going downhill from there. As cancer goes, only lung cancer kills more Americans than prostate cancer.

I won’t be getting any more teeth crowned until I have a prognosis. The damn dentist crowned one in January, and that alone drained my insurance for the rest of the year. He wanted to crown another one in April, but I said no, so he squirted some gook into the hole in the hope that it will last until January 2013.

Helter Skelter captures my mood today just as it captured the mood of America in the late ‘60s. To represent the early ‘60s, I chose Johnny Angel. How, in a single decade, do you go from songs about cars and teenage romance to songs about drugs, death, defeat, confusion, alienation, insanity, and injustice?

I like things that mess with my head, so I like Helter Skelter. The good thing about music is that I can turn it off if it gets too intense. With real life, I have to divide myself into two parts. One part thinks, feels, and acts; the other part dispassionately observes the part that thinks, feels, and acts. Pain can become so consuming that it draws my observer part into it, and that's when I go to pieces. I assume that this can also be true of cancer. I really must learn to do better, and I think I'm succeeding. I've felt stronger than ever since my meltdown on Sunday.


P.S. Shelley Fabares is a goddess.




Today's barely edited


I didn’t feel old until a year or two ago. I attribute this sudden oncoming of antiquity to the pain. Except for misdiagnosed sleep apnea (which cost me two needless surgeries) and the pain of the last six years, I’ve been healthy as an adult. In fact, I used to marvel at my good health because I would — sometimes for months—feel such sadness that I was just sure it would eventually eat its way from my heart and into my flesh, causing me to sicken and die. The fact that I stayed in such good shape was curious to me.

Then came the sleep apnea, and I grew increasingly desperate over a period of five years until it was diagnosed and treated. Three years later came the pain. For the longest, I thought I would beat it. I told myself that my species, despite its many faults, is very clever in various ways, and that medicine has been one of the major benefactors of the explosion of knowledge that has occurred during my lifetime alone (I would have died had the sleep apnea hit 15 years earlier). How hard, therefore, could it be to eliminate my little old pain? It might be impossible as it turns out.

For much of my life, I held doctors on such an intellectual pedestal that if a doctor couldn’t cure me of something, I would assume that he wasn't trying hard enough—maybe he hadn’t run the right test or asked the right question. I later met doctors whom I trusted as good men as well as good doctors, and when they told me there was nothing they could do, I believed them. Even with this recent pain and the urging of one reader to see a pain specialist, I have no thought of seeing a doctor. For what? Pills? I’ve got pills, and if there were other pills, I would know about them. Dosages? If I want to dicker with those, I have more confidence in the Internet than I do in any given doctor (I've discovered two serious errors in my prescriptions by looking them up on the Internet). Tests? Diagnoses? Surgeries? I could probably get several more of each if I wanted to start from scratch with new doctors, but I don't.

Maybe my "barely edited" experiment is connected with my need to transcend the pain because while I've lost all hope of escaping it completely, I haven't lost faith in my ability to someday live well despite it. I think at least one of you might have worried about me euthanizing myself after my last post, but I wouldn’t do that. I thought a lot about it for a long time, and I must have decided against it because I don’t dwell on it much. Not that I was ever really close to suicide; it’s just that I considered it a reasonable and reassuring option. If you hurt as I do, and you killed yourself, I could respect you for it if you only had yourself to think of (If you were married, I would consider it necessary for you to get your spouse's blessing to kill yourself it unless your spouse opposed suicide on principal). But even if you were alone or had your family’s blessing, I would suggest that you hang in there. You’ll be dead-meat in a few years anyway and you'll stay dead for all eternity, so why not stick around? You might do some good, you might have a few laughs, and you can always decide to off yourself later.  

The photo is of me, from yesterday. It did me good to go to the woods.

A second experiment with posting in the moment




Given how much I bitch and whine, Peggy might not realize that I try to spare her from the worst of what I feel, but I can’t do it today. I had a horrendous night last night that followed a day spent trying to recover from another bad night. Dilaudid didn’t help, so I lay awake for hours and I am just about through the roof right now. I smoked some pot an hour ago hoping it would help, but unlike yesterday, I’m experiencing something similar to a bad acid trip. I feel like I’m caught in a nightmare, and I don’t have the strength to find peace in the storm. I work everyday to stay calm and hopeful, but when I’m really hurting, really exhausted, and really without any means to control the pain without knocking myself out, I just can’t find it in me. I’m unfit for anything but to shake and cry, yet, there’s something here for me. I know it, but I can't find it even after years of looking.... I've heard enough Mary Wells and going to listen to some Goulet. Before marijuana, I didn't care about music. Now, it's one of my main comforts, it and plants.

An experiment in not editing—much anyway


I’ve been thinking about posting more and editing less because it’s making me crazy that I can’t stop editing. Even after I post something, I continue editing for days. So, here goes.

It’s a good day to live in Eugene (the photo is one that I took of some area scenery). The six months of drizzle are at an end, and the drought hasn’t arrived. It’s our second 80-degree day (27 C), 80 being 15 degrees above my ideal, but still pleasant enough.

I did yard work yesterday and suffered a lot for it last night. In fact, I’m such a wreck today that I’m avoiding unnecessary chores. I had intended to at least march in a pro-marijuana parade, but my knees were hurting too bad. I did bike to the library and got some books about war (I just finished—and can recommend—American Sniper, The Autobiography of the Most Lethal Sniper in U.S. Military History). I also bought some eucalyptus incense—which I’m now enjoying—and biked around the downtown area looking at the freaks. I like freaks—if they’re pleasant freaks. I also enjoy homeless men. Years ago, I considered them disgusting, so one day I passed a panhandler without speaking to him although he said something to me. He got up and followed me, demanding in a loud voice that I at least show him the respect of acknowledging his existence. I walked on in silence. I now shed tears when I remember that man. I could have done good, and I chose evil.

My right shoulder is hurting me a lot today, but I do my damnedest to avoid drugs in the daytime with the exception of marijuana, and I’m already so strung-out from the drugs that I took last night that I don’t dare use that. I literally feel like I’m losing my mind, and marijuana could make it worse. I’m also so tired that I'm sick, and marijuana could make that worse too. Then again, it could make me hyper. It's not a predictable drug, at least in my case.

Kurt and Jackie are coming for supper. Their cat was killed the day before yesterday, and although we rarely see them more than a few times a year, I thought it good to invite them to supper for the second week in a row. They accepted with an enthusiasm that made me sad for them.

I have two other recommendations for you. The first is an interview entitled A Portrait of Maurice Sendak. It's the heaviest thing I've ever seen on film, yet it's only 39 minutes long. He died a few days after I watched it, and I've seen it a few more times since then. My last recommendation is Memoirs of an Addicted Brain: a Neuroscientist Examines His Former Life on Drugs. The author reminded me a friend from 30 years ago named Larry. One day Larry and were smoking pot with another man when the other man handed Larry a handful of pills and asked if Larry knew what any of them were. Larry had no idea, but he swallowed them down without even asking. After that, I thought of him as a starving dog.


So, I took a hit, and I'm happy to report that I feel a little better. The pain is still with me, but it doesn't hurt like it did.

Drugs and addiction


It’s a rare night that I can sleep without drugs. For pain, I take Cymbalta, Dilaudid, oxycodone, and Neurontin. For sleep, I have Ambien, Dalmane, Restoril, and marijuana. All of these drugs have overlapping benefits and they work best in combination, but with the exception of marijuana I seldom mix them because of the increased risk of side effects. Also, except for marijuana, I never take any of them during the daytime. The one exception was when I took oxycodone two weeks ago for that anxiety attack caused by the Cipro.

My most effective painkiller/sleep aide, is Neurontin. Oddly enough, considering how strong it is, Neurontin doesn’t make me high unless missing doorways and bouncing off walls counts as being high. To avoid tolerance problems, I save it for when I’m desperate. For example, I hardly slept three nights ago, and when that happens, I go for broke the next night, so I took three doses (900 mgs) of Neurontin at once and spent the next several hours flat on my back. One of the ways I minimize pain is by turning over a lot, so when the pain finally awakened me, I was hurting pretty bad, but the drug still had enough kick (about 16 hours worth altogether) that I was eventually able to get back to sleep. 

Last night, I was so tired that I did my best to sleep without drugs, but that only lasted for five hours before I took a 10 mg Ambien, which is my short-acting favorite. Taking so many drugs means that I'm pretty much permanently snookered. I'll give some examples of the annoyances this causes. One. When I got up this morning, I couldn’t find my sunglasses, so I finally left the house without them. When I got home, there they were, right where they were supposed to be, which was the one place I didn’t look. Two. I’ve already looked once today, and I still can't remember if this is 2011 or 2012.

I’m going to address addiction since some of you expressed concern about it following my last post. I was surprised that one person was especially worried about marijuana because I consider marijuana to be the least harmful drug I take in terms of tolerance, dependency, side-effects, or—in the case of narcotics—addictiveness. It strikes me as exceedingly odd that the least scary drug I use is the only one that's illegal. Marijuana can be habituating, of course, but then so can jogging or eating ice cream. Narcotics are a whole other animal because they bring about permanent changes in the brain and hellacious withdrawal symptoms. As I write, I haven’t used marijuana for five days (I sometimes get tired of being high) without the least problem. If I used narcotics as often as I normally use marijuana, I would be under medical care for withdrawal.

To further compare narcotics and marijuana; I prefer marijuana because it causes me to think about the world in deeper and more interesting ways, ways that are so profoundly true for me that they seem to be coming from the core of my being. The drug rarely leads me to euphoria while it not uncommonly makes me anxious, dysphoric, and sometimes downright miserable. I often go for months during which I start most days with marijuana and coffee and then continue to use marijuana until bedtime. I do this because I like the mental stimulation but also because pot works far better as a sleep aide if I use it all day. Sleep is my major challenge not just because of the pain but because I have four separate sleep disorders—insomnia, sleep apnea, nocturnal myoclonus, and nocturnal bruxism.

Narcotics differ from marijuana in that they do induce euphoria, although I find them boring in terms of thought stimulation (who needs to think when he’s euphoric?). I’ll use an analogy to describe how I envision narcotic addiction. Imagine that you’re rafting down a slow and muddy river. The hot air is stifling and the scenery boring. You too are stifled and bored, and you wish with all your heart that you could feel like you were getting somewhere, but your entire life has come to seem like a failure no matter what you do. Then you come to a whirlpool (narcotics), but you don’t realize it's a whirlpool because it's so wide. You’re just pleased to find that you’re moving, although you can’t really remember why you ever wanted to be someplace else. The breeze in your face is cooling, and the same scenery that bored you a few minutes ago is now fascinatingly beautiful. Happiness seems so simple and natural, and sadness so twisted and complex that it's hard to imagine that you were ever unhappy. By the time you see Death at your side, you might be too far gone to turn back. I’m not talking about me, but neither do I remain cocksure that addiction only happens to other people, people inferior to myself. When you're desperate for a way out, even a bad option can look better than no option.

My narcotic mainstay is oxycodone (when it comes combined with acetaminophen, it’s called Percocet) because I’ve been approved for a years’ worth without even having to go back to my internist. I limit myself to 30 mgs at a time (the starting dose is 5-10) three or four times a week. Unfortunately, I feel less euphoric and get less pain relief from thirty than I once got from ten, but I'm afraid that if I take a higher dosage even once, I’ll be tempted to do it again. Why did I set 30 as my limit when my prescription calls for 10-20? Because I was taking 30 when I got scared, and since I was handling that okay—except for the hellacious constipation—I stayed with it. Narcotics are so insidious that even though 30 no longer gets me high for more than a half hour, I crave it on my narcotic-free nights. On the nights I do take it, I have trouble waiting until bedtime to do so because the rush initially makes me too happy to fall asleep, so I want to be up doing fun things. There's nothing like high on narcotics and marijuana and then baking crackers while watching a movie. Yep, that's right, I can carry on real well even while real high, so well in fact that even Peggy can't even tell if I've had anything.

I sometimes imagine that narcotics are talking to me. They say they’re my friends, and that there’s really no reason for me to be in pain when all I have to do to feel better is to take a few milligrams extra. They assure me that, just as most people can safely relax in the evening with a few drinks, so can I relax with a few narcotics. Besides, don’t I deserve a little euphoria? Hell, I’m in pain; my brain—the one I once took pride in—is a turnip; I can’t do many of the things that I used to find meaning in; I look like shit, having gone from 180 pounds of muscle to 160 pounds of skin, bones, and a little round belly; and, worse yet, I have no hope of ever escaping the pain or ever regaining my strength and intelligence. As a matter of fact, the whole goddamn rest of my goddamn life looks pretty fucking bleak, and even after years of pain, I still don’t have a clue how to handle that. Narcotics tell me that they’ll handle it for me and make me deliriously happy.

The words that I say to myself are a bit different… "Why can’t I handle this better? I know people who are worse off but appear to be doing fine. Why can’t I be like them and cut through adversity like a knife through warm butter? And why, when I spent years trying to stay healthy and more years trying to regain my health, am I like this while people who are older than I and never gave a thought to diet and exercise are doing fine?"

So far, I haven’t been tempted to take a higher dose of narcotics or to take them during the daytime (except for two weeks ago when Cipro took me to the doorstep of panic). I’m helped in this by reminding myself of what George Peppard (see photo) said about drinking: “You have problems, you think drink helps, then you have two problems.” I never knew him, and he has been in his grave for years, but I sometimes imagine him beside me, looking the way he looked toward the end of his life when his arrogance was gone. I don't only want to be strong for myself and for Peggy; I also want to be strong to honor his memory because every little bit of inspiration helps, and George Peppard's tortured existence and eventual triumph has certainly inspired me.

The bareass truth is that I need drugs to sleep, mostly because I’m in too much pain to sleep without them, but also because I’ve taken them for so many years that normal sleep is all but impossible. Yet, drugs are robbing me of myself almost as much as the pain is, not because I’m addicted but because when you take mind-altering drugs everyday, you start to lose sight of who you are. I’m desperate to give up drugs as a way of life, but I’m desperate for sleep too, and I can’t have it both ways. You might look at my situation and think you could do better, and I hope you could because you might have to someday, but where I am is where I am despite the years I’ve put into trying to either get well or get strong. 

I just came off a five-month break from even trying to help myself—well, except for diet, drugs, writing, physical therapy exercises, and buying potted plants. When I started getting scared about how much I was looking forward to narcotics, which wasn't too long ago, I signed up for a Qigong class. My classmates are mostly old ladies, and I'm having trouble keeping up with them. I would have already quit the class, but where do you go after Qigong? It would be like dropping out of kindergarten. 

As the saying goes, “You either get tough or die.” I’m not all that tough, but then I’m not dead or on a psych ward either... I grieve my life. Although, for years now, my experience of it has hardly been in the league of a walking death, it seriously sucks. My chief support has come from Peggy, my doctors, and you. Two bloggers who were dying (Renee and Nollyposh) gave me a generous portion of their time and compassion, and that still helps even though they're gone. I wouldn't be surprised but what many a life has been saved by a single act of kindness on the part of someone who had no idea of the significance of what they were doing.

An experiment in shame

When people praise me for my bravery in sharing so much about myself, I think it means they would be embarrassed to do the same. Ironically, I’m more like them than they know because I too withhold things that would embarrass me. And what sorts of things embarrass me? The ones I haven’t forgiven myself for. I’m going to experiment with sharing some of these things in the area of religion. I’ve chosen religion because I’ve long been bothered by the fact that I write about it a great deal, yet I’ve purposefully withheld some things that are important for a proper understanding of my journey. Such withholding constitutes lying, and I’m here to correct my error.

I’ve belonged to four churches. I was baptized into Central Church of Christ when I was twelve, which is about the customary age. What you do when you want to join the Church of Christ is to walk to the front when the invitational is sung and tell the preacher what you want. He then asks you in front of everyone if you accept Jesus as your Lord and Savior; you say yes; and he baptizes you right then and there for fear you might go to hell if the ceremony is delayed and you die in the interim. The country church at which my best friend, Grady, and I spontaneously walked to the front one night during a revival didn’t have a baptistery, so we were taken to one in town.

My second church was The Episcopal Church of the Redeemer, which I started attending when I was eighteen. The Church of Christ was as plain as concrete, both in its looks and in the way the service was conducted. By contrast, the Episcopal Church was a veritable heaven of beauty and ritual. They still used the formal 1927 liturgy, and then there were all the decorative accouterments (the photo is of Redeemer Church the night Peggy and I were married in 1971).

I also adored the priest, Father Hale, although I didn’t realize how much I adored him until years later when I got a better handle on how rare good men are. He was so clumsy at conducting the ritual that I think he must have had a learning disability, but this failing seemed like nothing compared to his gentle, loving, unpretentious nature. He listened to me more intently than any man I had ever known.

When Father Hale moved away, the fact that I had no faith settled back upon me like an icy fog. It wasn’t long before I started attending American Atheist meetings 100 miles away in New Orleans, and I eventually became a non-resident editor for American Atheist Magazine. I knew several inspirational people in that organization, most notably Madalyn Murray O’Hair who was the most imposing person I’ve ever met. If she had possessed physical strength and ferocity to equal her mental strength and ferocity, she would have scared people off the sidewalk. She asked me to call her Grandma because she liked my writing. This was in the early or mid-eighties.

My next adventure in faith—or the lack thereof—started in 1988 at the First Unitarian Society of Minneapolis (you would be corrected if you called it a church). Its minister, Khoren Arisian, and most its large membership were atheistic, and I took to it like a duck to water. This was during my group marriage phase, so Vicki and I joined together in 1989 simply by walking into the business office one day and signing the registry. Peggy never had any interest in religion, atheism, or anything in-between, so she stayed home. If she and I hadn’t moved to Oregon when things with Vicki fell apart in 1990, who knows but what I would still be a Unitarian.

St. Jude’s Roman Catholic. This is the one that I most hate to tell you about. First, some background. Peggy and I went through years of hard times in the ‘90s, much of it due to me being in a state of deep anguish for reasons that I won’t go into. In my desperation, I attended an Episcopal Church for a few months, but I thought it seemed more like a social club than a place of worship. I then took a class called A Course in Miracles at a Unity Church (not to be confused with Unitarian). This was way out in woo-woo land, but I grabbed onto it like a life preserver for about six weeks, after which I realized that there was no way I could ever really force monistic idealism down my throat.

Then, I started thinking about all those Medieval Catholic statues, crucifixes, triptychs, and so forth at the Minneapolis Institute of Art. I had been blown away by their antiquity, their beauty, the talent that went into them, and the deep reverence I felt in their presence; I grieved that they were now 2,000 miles away. And so it was that I came to long for the art, tradition, architecture, and liturgy of Catholicism, this despite the fact that I despise almost everything else about the church. I soon signed up for confirmation classes at St. Mary’s, the oldest and largest Catholic Church in town. Doing this was an instance of magical thinking (more accurately, magical hoping) on my part, my hope being that the very act of becoming a Catholic would cause me to feel deeply connected to many things, for instance, the sense of oneness of which the mystics write, and to the ancient carvers and painters who created all that wonderful art. I believed that such a connection would heal me of my anguish.

Unfortunately, St. Mary’s was a conservative parish, and the priest who interviewed me quickly concluded that I was a poor candidate for Catholicism. No problem, I just drove across town to St. Jude’s, the most liberal Catholic church in the area, and the priest there was fine with me joining. I’ve since wondered if I might have been a tad less forthcoming with him than I was with the priest at St. Mary’s, but that was too long ago for me to even remember what we talked about. The class lasted for several months and climaxed in a confirmation ceremony. At the class’s outset, everyone was assigned a sponsor to meet with him or her once or twice a week until confirmation, and then to vouch for his or her worthiness to join at the start of the confirmation ceremony.

My sponsor was a man named Gary who had devoted years to the study of church history and theology. As did the priest at St. Mary’s, Gary quickly concluded that I wasn’t fit to be a Catholic, but he said he would continue as my sponsor if I was hell-bent on joining. Then, he looked me dead in the eye and warned that I would never be forgiven if I should join another church after converting to Catholicism. Because he didn’t respect me, Gary gave as little of himself to our relationship as he could without violating his conscience, and this discouraged me from volunteering information or even asking very many questions. As for the class itself, I enjoyed that very much.

I was horribly sick with a cold the night of Holy Saturday, 1999, when the class was to be confirmed, but the priest strongly encouraged me to attend, so I did, only to discover that a Catholic with a cold feels just as crummy as a non-Catholic with a cold. Aside from feeling a little disappointed (though not surprised) about that, I was so touched by the ceremony that I shed tears. This embarrassment occurred when the time came to baptize those who had never been baptized (my Church of Christ baptism was considered sufficient). One of the baptismal candidates was a fourteen-year-old girl whom I had known through the class. As she stood there in her new shoes and lovely white dress, I felt that I was looking upon the very essence of sweetness and innocence, and I wanted more than anything to protect it and was sick to the heart that I could not. I determinedly held myself together until the priest poured the Holy Water over her head, and then my tears flowed. After my confirmation, I attended mass no more than five times before I took my little crucifix off the wall and packed it away with my rosary. The first priest and Gary had been right.

Since then

I’ve gone to Sunday school from time to time at liberal churches, not because I had any thought of joining, but because I lack a permanent community in my life and because I enjoy studying at least parts of the Bible. Church is also the only place where anyone ever seems to discuss morality, and, aside from fraternities, it’s the only place a person can participate in a communal ritual. I might still attend an occasional Sunday School session if living with pain didn’t tire me so.

I remember desperately trying to sleep—in a recliner—on a particular night after the second of my three shoulder surgeries. I had been in significant pain for several years by then, and I had ice packs on both shoulders, a heating pad on my chest (to keep the ice packs from freezing me), and was loopy on narcotics. As I sat there, hour after weary hour, despondent and hurting too much to sleep (at least without taking so many drugs that I would have feared for my life), I began to wonder if it just might possibly make me feel even a little bit better to pray. I got to wondering this because I was becoming focused on suicide, and on that particular night, I had the urge to get out of my recliner and run head-long into the stone fireplace mantle. In my desperation, I finally started to pray, but I didn’t get far because I immediately felt completely asinine for betraying my intellectual and moral integrity yet again in a desperate attempt to attract the notice of a deity that I didn’t believe in and would have hated if I did.

Perhaps you’re wondering why, instead of joining churches, didn’t I join some other kind of religious group. Well, there was that Unitarian Society, but it’s true that I’ve put a lot of energy into Christianity. This was largely because it was almost certainly my forbearers’ faith (my white forbearers anyway—I’m ¼ Native American) for well over a thousand years, and some of them were even clergymen. I wanted to tap into feeling that I was a part of that history and community because I often feel crushed by the thought that I am but a dot in time and space, a dot that is completely cut off from every other dot, all of which are themselves cut off from one another. Sure, I checked out Baha’ism, Buddhism, Wiccanism, New Age Sufism, and lots more isms, but all I felt a familial connection to was Christianity and Native American spirituality, and I never could find much about the latter that interested me.

During those hard times of the ‘90s, I think I mostly wanted to believe that there exist these wonderful places where everyone really is loved and really is welcome. I knew that was hopelessly naïve, and I doubted that such an institution would welcome atheists if it did exist. But then what about John Spong, the atheist who became an Episcopal bishop? From the time I joined the Episcopal Church in the ‘70s, I had been astounded by its diversity of belief, and this was why, in the ‘90s, I considered returning. I thought it would be fairly easy to find a spot where I could sit comfortably under the Episcopal umbrella much as Jonah did under his vine.

However, there is one way in which I differ dramatically from every Christian in the world—even the atheistic ones—and it is that Christians respect the person and message of Jesus (not that they agree about who he was or what he meant to communicate), whereas I view Jesus as delusional, bigoted, hypocritical, conceited, contradictory, judgmental, bad-tempered, nasty to his family, a purveyor of bad ideas, quite possibly fictional, and so on. This means that I wouldn’t be fully accepted—or fully accepting, for that matter—in a church presided over by the most non-dogmatic atheistic Christian in the world. The Bible is simply too divisive even among those who don’t take it literally. In my relationship with religion, I spent a lot of time determinedly trying to ride a horse that was clearly dead. My attempts to be a Christian after any fashion were doomed by my twelfth year to be disheartening and self-destructive. I sought comfort at the cost of integrity and didn’t get it anyway.

You trash him now, but what would you do if God suddenly started talking to you from your monitor?

If he didn’t resort to the cheap trick he played on Job (scaring him half out of his wits) I would say, “Hello, God.” Then, I would ask which God he was unless, of course, he had his name on his shirt above the little alligator. If he said, “I am Jehovah, the God of the Bible,” I would say: [After much thought, I’m going to delete what I wrote here because leaving it would offend people for no good reason that I can see.] Afterwards, I would stop smoking pot and consult a psychiatrist.


So, how did my experiment with sharing something shameful go? Writing helped me to better understand why I behaved as I did, and, although I still consider it regrettable, I’m less ashamed of it. I doubt that there are many who, if under sufficient stress, wouldn’t violate their integrity, but it’s not useful to hold onto mortification, and it’s probably not even justified. In my case, a scary religion got me early and held me tight, so given the kind of person I am, it’s unreasonable to expect that my escape would be a straight path. I think it might even represent the biggest battle of my life.

My experience with marijuana versus narcotics for chronic pain

Oxycodone is at least a little useful for relieving my pain, plus it makes me very, very happy. Some people say that narcotic happiness isn’t real happiness, but the only difference I can see in how drug happiness feels versus how natural happiness feels is that drug happiness is usually deeper, mellower, and disconnected from the events of one’s life. The problem with oxycodone—and all narcotics—is that if five milligrams will take you to heaven today, you’ll need 25 the day after tomorrow if you keep taking it. I think of the drug as like a Siren that—thanks to my genetics—has been unable to pull me beneath the waves. As an example of people who weren’t so blessed, I’ll mention two addicts who held up local pharmacies at gunpoint but didn’t take money, just oxycodone, Percocet and Oxycontin (the last two being products that contain oxycodone).

Marijuana interests me more than narcotics and works as well for pain, but I never become accustomed to losing what little control I have over my thoughts as they are cycled rapidly from happy absorption in almost anything, to befuddlement, to extreme anxiety, and back again. Despite such feelings—if not because of them—I enjoy the drug (god help you if you're ever in chronic pain and sincerely despise psychoactive drugs), and I’ve enjoyed learning to carry on a normal life while using it. I do handyman projects; go to doctors’ appointments; conduct business on the phone and the Internet; cook, shop, do housework, and take care of the yard. If marijuana took away my considerable desire to be active, I wouldn’t like it nearly so well. Oxycodone does make it all but impossible to carry on a normal life plus it leaves me feeling groggy, which is why I only take it at night, and never more than twice a week. The rest of the time, I either take marijuana alone or I mix it with Neurontin, Dalmane, Ambien, Requip, or sometimes Dilaudid, which is a bit stronger than oxycodone. Ironically, I’m able to live more like a normal person when I’m drugged than when I’m straight because drugs are less distracting than pain and sleeplessness.

Many users believe that marijuana has made them better people. I’ve thought about this a lot, and I doubt that there’s anything to it. I get along more harmoniously with others—including Peggy—when I’m high because I’m more patient, tolerant, and sociable, but I have no confidence that this would continue if I stopped the marijuana. On the downside, the longer I use marijuana, the harder it becomes to express myself through my writing. I discard post after post, and when I do put something online after days of editing, I continue the editing even after most of the responses have come in. Other downsides are temporary memory loss, a feeling of floating out of reality, and the impossibility of accurately judging time and speed. As with many useful drugs, medical marijuana is a case of damned if you do and damned if you don’t.

During my adult years in Mississippi—in the seventies and eighties—I only had two friends who weren’t pot smokers, them being alcoholics only, but I never saw anyone too stoned to stand. Now, it happens to a lot of people, not because they want it but because sophisticated growers have succeeded in making marijuana so strong (just ¼ of one of my little marijuana cookies packs quite a punch) that you can get in over your head before you know it, especially if you’ve been away from the drug for years. Marijuana’s strength combined with its inability to kill me (well over 100,000 Americans die from legal narcotics each year) are two of its most attractive attributes. I have every confidence that, however bad marijuana’s long-term effects might prove to be, I won’t die from it, and when you take as many drugs as I do, that’s a significant recommendation. With this as with many things, our national policy is the opposite of what makes sense to anyone who is looking at the issue from the inside.

...I hate smoking anything, so I cook my marijuana. First, I run the dried leaves though a blender until they look like green flour. I put two ounces of this flour (twice the suggested amount) into a crock-pot with a pound of butter, and cook it on low for about eight hours. I then double the amount of butter in a Betty Crocker sugar cookie recipe, being careful to weigh the dough so that each unbaked cookie contains exactly one ounce. The main challenge to eating marijuana is simply getting the amount right, which is why I only use the one recipe. I wrote about the results of eating too much in my entry of August 8, 2011.

As for cost, I get my marijuana free from a generous and idealistic grower, but if I had to pay for it, it would run $5 to $8 a gram on the legal market (to be legal, you have to register with the state, and you can’t make a profit). One ounce contains 28 grams, so this comes to $140 to $224 per ounce. Again, this is on the legal market, so it should be relatively cheap. I have no idea what the black market would charge. Critics of the Oregon law argue that every Oregon drug addict and his cat are trying to get a medical marijuana card just so they can buy pot cheap—or grow it themselves—and not worry about getting busted. In this scenario, a druggie would learn what he needed to say to a marijuana doctor (a doctor who spends her days recommending patients to the state of Oregon for billfold-size marijuana permits) to qualify for a card, pay the doctor a few hundred dollars for the consultation, mail another $100 to the state of Oregon, and, voilà, get a permit. I’m sure this happens, but it doesn't justify scrapping a program that is vital to the welfare of thousands of people. When you hear the government claim that marijuana is a dangerous drug with no medical uses that can’t be better served by a prescription drug, you can rest assured that it's lying.

Thoughts about medical marijuana

Now that I’ve been on marijuana for months, I have to ask myself how good it is for pain. I would say that for long term use, it’s as good or better as narcotics and sleeping pills and a lot less scary. However, nothing significantly reduces my pain; it just makes it easier to bear by either getting me high or knocking me out, and marijuana has the advantage of taking me far higher with far less risk than other drugs.

Now that I’m used to it, I can put away a fair amount of pot and still conduct normal activities, and when the high wears off, I don’t feel hung-over. For weeks now, I’ve been more or less high all day everyday (I start my mornings with marijuana and coffee), and the most notable differences are that I’m happier, and Peggy and I are getting along better. I’m not an easy person even in the best of times, and what I’ve been through over the last several years has been, up to this point in my life, the worst. Peggy and I haven’t had a fight since I started the pot. Marijuana makes me float through my days, my heart filled with peace and goodwill but also a high degree of compassionate candor.

Maybe marijuana should scare me more, but I’m not finding the science to prove that it’s that bad. The worse downside—and it’s truly annoying—is short-term memory loss. As for what this looks like, I’ll give some examples. (1) Unless I’m still doing it, I probably can’t tell you what I was doing five minutes ago. (2) More often than not, when I walk into a room, I have no idea why I’m there. (3) I will become so absorbed in a long and intricate train of thought that I’m barely aware of the world outside my head, that is until all memory of what I was thinking leaves me completely. (4) When I’m really high (late at night usually), I sometimes forget such essentials as my name and address, and I don’t just mean my street address, I mean the state I live in. Such experiences have helped me to understand what early dementia must be like. Yet, pot doesn’t turn me into an idiot; it simply suppresses my left-brain even while it makes my right brain explode with perceptions and insights. Marijuana, at its best, has the power to bring me face-to-face with pure being.

As annoying as it is, I can overcome the short-term memory loss enough to function fairly well even in business situations. I’m helped in this by the fact that I’m more interested in, and sympathetic toward, other people when I’m stoned than when I’m straight. I would even suggest that people like me better when I’m high, although I do tend to say more off-the-wall things more—the kind of things we all think but feel embarrassed to talk about.

I have no idea where I’m going with my marijuana experiment. On the one hand, I like pot a lot, it is grown for me at no charge by someone I love, and Peggy and I agree that we get along significantly better when I’m high, but on the other hand… Well, I’m not sure what’s on the other hand. It just seems a little odd to stay stoned all the time. Decades ago when I smoked pot, I never smoked more than a joint a day, and it was usually closer to two or three joints a week. Now, on any given day, I use more marijuana than I would have used in a month back then.

Do I still want to be using pot a few years down the road? I don’t know what I want to be doing a few years down the road. Sometimes, I don’t feel that I have enough years left to bother about. Time flies faster everyday, and I just sit here and watch it with a sense of wonder at how strange life is. To think that we exist here in this unimaginably small spot in the universe for an unimaginably finite fraction of time. Against this backdrop, what should any of us do? Just hangout and try to make our time here pleasant for everyone, I guess. Such an outlook would eliminate a lot of misbehavior if we all took it to heart, and that’s what I’m trying to do.

Hopalong and me

Now that Peggy’s gone. I get up between 10:00 and 11:00, eat oats or Grape Nuts for breakfast, work all day while I listen to Western audiobooks, watch a Western movie at night as I eat sardines and tidy-up, down 8mgs of Dilaudid, take a hit of bud (despite what my pain specialist says, pot and Dilaudid makes for one hell of a delightful combination), and read a Western novel until the words start floating off into space—this doesn’t take long. Then I lie in a warm glow until sleep overtakes me within anywhere from two minutes to two hours depending upon whether the drugs keep me so entertained that I can’t sleep. It’s a good life, this working everyday and getting loaded every night, although I do hate being repeatedly awakened by the pain.

Taking on what is to me a hard physical project makes me feel like a man again. Only people who have been there can understand the extent to which pain and disability can take away a person’s pride, especially if his entire adult life was devoted to physical hobbies and occupations. I’m happier than I’ve been in years because I know that if I can survive this job, I can survive other jobs too. It’s just a matter of keeping a good supply of drugs. I had rather die than to go back to being unable to work.

I wrote most of the following paragraphs in the comment section, but am going to add them as an appendum.

It’s not that I have suddenly decided to take on hard projects despite the pain, but that I have improved enough that, with narcotics, I can now bear what pain there is when I take on what is for me a hard project--this project being my test of that. There was a time when movement hurt so much that I had to grasp my shoulders with my hands in order to walk, and I couldn’t even dust furniture for the pain. For an entire year, not a night went by that I didn't sleep in a recliner while taking narcotics every few hours and using ice packs continually, and I would still hurt too bad to sleep for more than brief periods. If I were in such pain now, I would be screaming in agony were I been silly enough to attempt my current project. It would be like fire to my body.



I don’t know what to attribute this recent improvement to. I went back to physical therapy with yet another new therapist a month ago, and he is the first therapist who has been able to devise exercises that I can bear. I’m also taking Sam-E and Cymbalta, so maybe all three of these things or none of these things are responsible for my improvement.

Although I long since stopped trusting that good times will last, these last few weeks have been the best period I’ve had since the pain got really bad four years ago, so it is tempting to be hopeful. However, both the pain specialist I saw last week and my physical therapist have told me that I will always be in pain (the longer a person is in pain, the less chance there is that he will recover). In fact, the therapist asked me whether I'm more interested in building strength or in reducing pain, and I told him unhesitatingly that I value strength above reduced pain. Being strong helps me to want to live. Some people seem able to slide into invalidism with little angst, but I can’t imagine ever reconciling myself to such a life.

I take great comfort in knowing that, whatever is causing my pain, at least it can’t be as bad as syringomyelia or chronic regional pain disorder, two of the diagnoses I’ve had that turned out to be wrong.


The painting is by Frank Earle Schooner (1877-1972), and is entitled “Hopalong Takes Command.” It's owned by the Delaware Art Museum

What I've been feeling and doing, and why I'm not visiting blogs

I saw my new pain doctor today, and he loaded me down with Lidoderm, Cymbalta, and Butrans (I already had Dalmane, Ambien, Restoril, Neurontin, Dilaudid, oxycodone, Vicodin, Demerol, Fentanyl, Requip, and probably a few more that slip my mind at the moment). He also referred me for acupuncture, hypnotherapy, physical therapy, biofeedback, and a half dozen other therapies, and finished off by telling me to consider a TENS unit and a lidocaine infusion (I obviously looked wealthy). All this plus a new diagnosis. No, it’s not CRPD like my internist said, and it’s not even syringomyelia like my last pain specialist said, and it’s hardly a complete mystery like my surgical neurologist said. Oh, no, it’s CPS (central pain syndrome, whatever that means—I rarely even Google diagnoses anymore). I damn near fell on the floor laughing when he said that. God, I could diagnosis myself by closing my eyes, opening a medical encyclopedia, and pointing at a disease, so what the hell do I need these overpaid morons for? Oh, drugs. That’s it. I need them for drugs, man.

I’m going to rant—or should I say “continue ranting”? The son of bitch had me piss in a goddamn cup so he could fucking test me for drugs (“I told you what I’m taking,” I said. “Don’t take it personally,” he said). He even insisted that I bring all my medications so he could look at the bottles, but he wasn’t content with just looking at them; he counted the pills—or rather his nurse did. I knew that a drug test awaited me before I went in, so I hated him from the start, and tortured myself about whether to go at all since I didn’t really expect any good to come of it anyway (you lose faith after your 30th doctor). I agonized right up until the last minute, at which time I concluded that I would put up with his drug test shit until the first of the year when my insurance cycle starts over, and I have to start paying through the nose again. The whole time I was there, I kept wanting to slap him silly. If I were a hair’s breadth less stable, I would have too. Although I’m not entirely unsympathetic to a doctor's need to protect himself in the event of a lawsuit, I doubt that it sets well with many people to be forced to prove they’re not lying.

After I left his office, I went to another doctor’s office for an Orthovisc shot in the knee. He missed the joint three times, and kept having to jab that long old needle around. (Why, yes, thank you, it did hurt about as bad as it sounds like it would). I’m glad that I’m able to handle pain as well as I am. I’ve been so near absolute panic and/or despair so many times that I’ve lost count, yet I persist in believing that I handle pain better than most people. I’m probably a fool for thinking this, but it somehow helps me to maintain that illusion, if it be an illusion.

I’ve all but stopped smoking the medical marijuana (I’m still eating it in small amounts). After I poisoned myself (see August 8), it just never felt the same. When I smoke it now, the first thing that happens is that everything that makes me anxious or unhappy hits me at once and is multiplied by a factor of ten; and the second thing that happens is that I become a complete idiot. I can still write—I’m ripped right now in childish rebellion against the fact that the pain specialist told me not to mix pot with one of my new drugs—and it even makes me write when I wouldn’t otherwise want to, and about things I wouldn’t otherwise write about. Like now. Peggy’s off to New England for two weeks, and I had just as soon be working at a job that I started three days ago after postponing it for years for fear the pain would become unbearable. That job is painting the laundry room and building a new shelf unit for it. The work entails filling holes, moving heavy things, scrubbing the walls and ceiling with trisodium phosphate, cleaning up the mess, and then applying three coats of paint. Six years ago, it would have been a small job, but now it’s killing me. It’s also making me very happy because I do love manual labor.

With Peggy gone, I let Bonnie the dog and Brewsky the cat sleep wherever they please instead of locking them away like we usually do. Surprisingly, Brewsky has taken to sleeping with me in my twin bed. Two dudes together, you might say. I feel badly that Bonnie can’t join us, but it would be a bit much for me even if it wouldn’t invite trouble between her and Brewsky—it would also mean a move to Peggy’s double bed.

So, there you have it; I’m busy, so I’m not visiting blogs, and I wouldn’t be writing in one now if I hadn’t smoked that pot, because I really want to get this job done as a surprise for Peggy who after forty years still hasn’t learned that I’m dumb enough to do such a thing.

Things that go bump in the night

I’m going to betray a tree that has provided me with beauty and shade for the 21 years I’ve been in this house. The tree is a Ponderosa Pine that stands ten feet from my back bedroom. Fifteen years ago, an ice storm sent limbs crashing from that tree like artillery shells. For three days, I slept at the other end of the house while Peggy remained in the very bedroom that was most likely to be hit (this is the same woman who worries that airplanes will fall on her). After the ice melted, I told her that there was no way I was going to pass another winter wondering if an evergreen limb four inches in diameter was going to impale us in our bed. She objected strenuously to my pruning proposal, but I used her old mountain climbing gear to get myself to the top of that 80-foot tree, and I pruned it anyway (I’m a woos about crossing Peggy, so this constituted a rare act of defiance). I thought the tree might die from such a severe pruning, but it didn’t even slow down, so last summer, I had to do the same thing again. The tree still looks healthy, but it’s none too pretty, what with most of one side and twenty feet of its top gone—and even after all that, there’s still the possibility that it might heave our foundation.

So, I’m going to have an arborist give me one estimate for cutting the whole thing down and another estimate based upon me cutting the limbs and him cutting the trunk. Ten years ago, I would have rented a chainsaw with a long bar and done the job myself, but given how bad a shape I’m in anymore, even the limbs—which will have to be cut into sections and lowered with ropes—are more than prudence dictates that I tackle, although I probably will.

I’m not doing well with my ever-worsening health situation, but I must say that I’ve gotten enormous comfort over the years by reflecting upon other people’s misery. Based upon my own experiences and what I’ve read, I’ve learned two things about chronic pain: there’s often very little that doctors can do to alleviate it; and the only limit to how much pain a person can experience is determined by the point at which he passes out, and even then he has to wake up again. I’ve read about people whom, if I were them, and had I been able to use a gun on myself, I would have run to that gun. I draw two conclusions from such somber reflections. One is that I’m lucky compared to how bad off I could be. The second is that to truly allow the knowledge of such pain into my heart has made life seem a lot more serious. When I was young, I pretended that life was simply a game that I would someday tire of, and then go back to my real existence; but, no, our lives are as real—and sometimes as horrific—as when a leopard crushes the windpipe of an impala.

One of the things I miss most is the ability to believe that I will ever again be strong and healthy. Life just seems too damn sad most of the time, and what joy I find comes in little pieces, and most of them when I’m writing (I write far more than I share) or spending time with Peggy. I figure that as long as I have her, I can put up with almost anything. I’m 62, and I’ve never been alone or even wanted to be alone. In three months, she and I will have been married forty years—we met in August and were married that December. Scores of people have passed through my life since I met Peggy, but somehow she has remained.

Just as I finished this, a blogger who is surely a lot tougher than I posted her own update (http://black-horse-design.blogspot.com/). It will give you a taste of the kind of cold comfort that I get from other people’s suffering. Bloggers like Carmon almost make me ashamed to complain at all. Yet, I can’t find the strength to bear my lot in silence, and besides, my greatest supporters have often been those who were worse off than I.

Ancient teachings

I know that some of you weary of my drug experiences, but I would ask for your compassion as I travel the dark road of pain upon which guides are few. For now, the marijuana is taking me more deeply within, and although it is a frightening journey, it is the only way that I know to proceed. Daily pain that lasts for years and leaves one increasingly disabled is not a shallow experience, and it requires all the depth and courage that I possess to live a rewarding life in its presence. Sometimes, every new day feels like a new failure, partly because I know that there are those who are doing ten times better despite being in twenty times more pain. I can’t even tell that I am growing. I used to know who I was; now I have lost my life, and I don’t know where to look for it.

The worst fears come when I go to bed. They are many, but Peggy’s death is the greatest with my own death being second. The fear would be there anyway, but since my nightmarish trip on marijuana, the drug has consistently taken me to the edge of panic. Yet, I continue to use it because I must look into the pit. Pain and terror are within, death is at my heels, and there is no place to run.

Yesterday, I came home from my daily bike ride to the library with books on aging by Ram Dass and Jimmy Carter. These men are religious (Carter is a Southern Baptist, and Dass defies labeling), but they write from the heart rather than the pulpit. This absence of dogma enables me, an atheist, to hear them, and to find common ground with them. It is a very good feeling. Last night, I started with Dass.

Ram Dass had a stroke in 1997 when he was just a little older than I, and he still needs 24 hour a day care. When a man like that talks about pain and fear and death, I listen. As I read him last night, peace settled over me. When I was ready for sleep, I both ate marijuana butter and smoked marijuana, and it was very good. This morning, I found the courage for hashish, which can be thought of as a concentrated form of marijuana. After I smoked it, I put on some harp music, and Peggy massaged my shoulders, as she does every morning. My mind raced, but the fear did not return.

Increasingly since the bad marijuana experience, I see death everywhere and in everyone, the young as much as the old. Like Buddhist monks who meditate upon impermanence as they sit beside decaying corpses, so has my life become a meditation upon death. “I surrender,” I said to death last night. “From now on, I will do all that is within my power to embrace you.” For guides, I, like Dass, must turn to other cultures because my own society is but a shallow wasteland.

I’ve been helping Peggy with some research she has undertaken about ancient Greek and Roman mythology. I had no idea how many gods they had, and I was even more surprised to find that so many of these gods speak to my experience, or at least to what I would like to be my experience. For example, Thanatos was a gentle and benevolent god who ruled over non-violent death, but his sisters, the Keres, were fanged, screeching, taloned women who wore bloody garments, and reveled in violence. Their power was such that even Zeus could not restrain them. Acheron, the lord of pain, was also a benevolent spirit. He had been transformed into one of five rivers of the underworld, and was considered an agent of healing rather than punishment. Old age was Geras (the Romans called him Senectus), a malevolent spirit who was portrayed as a shriveled old man. Homer described him as standing: “…someday at the side of every man, deadly, wearying, dreaded even by the gods.” I see my own life in such descriptions, and their timelessness comforts me.

I’ve watched ten or twenty people die, and I’ve helped prepare scores, at least, of others for burial. I was fourteen when I saw my first human death; seven when I watched my first dog die; and eight when I first killed a living creature (oh, how I regret shooting that little mockingbird). For some reason, I remember individual corpses better than I remember individual deaths. There were the newlyweds who tried to clean their gas oven with gasoline. As I stood over their black and swollen bodies, my heart was as heavy as if I had known them. They didn’t deserve to die for trying to clean their oven. Then there was the carpenter who had a heart attack. As I removed his striped overalls and untied the shoes that he himself had laced, my eyes were repeatedly drawn to his face. We would have been such good friends, I thought. He was gone, yet I could almost imagine that he was there beside me. I still imagine that he is beside me. So many dead bodies! People who I kept looking and smelling more or less alive so that their mourners wouldn’t be reminded of the putrefaction of the grave. The more I worked in funeral homes, the more I came to regard the American handling of death as a sickness.

I am horrified to think that I too will rot (I want to be burned, but that’s just an accelerated form of rotting). Yet, the worst thing that I can imagine would be the very thing that my mother wanted, which was to be buried in a concrete vault so that her remains would be prevented from nourishing other lives... When I picture myself as a corpse, I worry that I will have died with my eyes open, and that no one will close them. Being dirt doesn’t frighten me; it’s the getting there that’s the problem. Yet, I will rot, and so there is nothing to do but to embrace death. After all, I will be dead infinitely longer than I will have been alive.

Fentanyl

So, I go to the doc, and I say, doc, I want a prescription for Fentanyl, and he says, okay, since your life won't ever contain anything but misery anyway, you’ve got it. Then I say that I don’t want some candy-ass dose, I want enough to know that I’ve taken something, and he says I needn't worry my pretty little head about that.

I pick up my Fentanyl—which I’ve never had—and I stick one those 50 microgram per hour patches (Fentanyl is 100 times stronger than morphine, and is measured in micrograms rather than milligrams) onto my belly, and sit down to read the directions. Shit, I discover, this dosage is the equivalent of 68-112 mgs of oxycodone, an amount that I should think would almost certainly kill me. Reading on down, I find that, yes indeed, if I haven’t been taking that much oxycodone day and night for at least a week, Fentanyl will hit me about as hard as a ten pound horseshoe (this was underlined and in bold letters, only without the part about the horseshoe). Whoa! I hardly ever take oxycodone or any other narcotic anymore simply because I’m unwilling to keep piling ever higher doses of dangerous drugs into my body, yet here I am with enough Fentanyl on my belly to, to, what? –kill a horse. Yeah, that’s it; kill a horse. I consider ripping that patch off right then and there, but I first run what I had read by Peggy (my resident nurse who was doing a Sudoku at the time); she doesn’t seem alarmed.

Okay, I remind myelf, I told the doctor what drugs I take, and Peggy knows what drugs I take, yet neither of them are worried, so, unless they’re trying to kill me so they can run away together, maybe I shouldn’t be worried either. I am though. I’m real worried, but I don’t want to take the patch off because the first commandment of my religion forbids the waste of good dope. Since it takes up to 24 hours to achieve maximum absorption, I figure that, well, I’ll just see how I’m feeling as the night passes, and with that happy thought, I go to bed. After five minutes, I can’t handle the fear anymore, so I get back up and use some pointed scissors to cut the patch in half while it’s still glued to my belly (carefully saving the half I removed). It looks solid—like a little sheet of plastic—so I figure what could be the harm since there’s nothing to leak out?

I go back to bed and congratulate myself on my sagacity, my perspicacity, and even my pederasty, but I don’t go to sleep because I’m way too happy to waste the night sleeping. Life has gone from ho-hum to highest heaven in less than an hour because of that little bity patch. Oh, but do I ever love Fentanyl! Forget sex, fame, money, power, luxury, and even food; all I will ever want and need from this day forward is Fentanyl. Take ten years off my life (or whatever I have left), but don’t take my Fentanyl. Yeah baby! I lie in bed certain that, having found such joy, I’ll never lose it—I’ve been down that road a few times by now.

I woke up around noon (I did sleep some) feeling sort of ground down, and, as Peggy and I had our morning cuddle, I told her about cutting the patch in half, more or less expecting her to praise me for my prudence. Instead, she flipped out, which pissed me off since she didn’t have a word to say the previous night when I told her I was wearing a drug patch strong enough to kill 50 Navy Seals. I then called the pharmacy to prove to my wife that she was wrong (that’s important in a marriage even when the issue isn’t anywhere near as important as a drug overdose). To my horror, the pharmacist—who was also a woman—flipped out too, and said I was lucky to be alive—dumbass that I am—because, although the patch looks solid, it’s not, and this means that I was still at risk of dumping three day’s worth of Fetanyl into my bloodstream all at once. Upon hearing this, I ripped that patch off like it was a rabid rhino, and then I sat down to finish reading the directions. They informed me that, in case of an overdose, I could be at risk of respiratory failure for 24-hours (this isn’t a drug that comes on all at once, so I didn’t trust myself to know if I had overdosed or not), and that I should be under intense observation. So, I observed myself, intensely. As bad as that marijuana trip was two weeks ago, I now looked back upon it with a certain nostalgia because never once during that long night did I worry about being dead before the sun came up again.

Things just keep getting stranger and stranger

Russell—my habitually jobless brother-in-law—lived by the motto: “Dope will get you through times of no money better than money will get you through times of no dope.” If Russell was out of marijuana, he would drive as far as it took and spend as much as necessary to get some, and he would smoke it all day everyday until he ran out. Then he divorced my sister, married a woman with three children who vehemently opposed drugs, and took a sixty-hour job at an egg factory (picture a filthy, smelly, ear-shattering, disease ridden, standing-room-only hell for a million defenseless creatures, and that’s an egg factory). Go figure.

I never wanted to smoke dope all day long, but I’ve been high to some extent for weeks now, and I can’t say that I oppose staying that way. Pot lessens my pain, lightens my mood, helps me sleep, decreases my stress, renews my sense of wonder, heightens my appreciation of music, helps me get along better with Peggy, makes me tolerant of—and interested in—other people, and enables me to be more honest yet more tactful. On the downside, it shreds my memory, makes me accident-prone, messes with my coordination, decreases my ability to judge time and speed, and probably has long-term consequences that I don’t even know about. This leads me to ask which are more important to me, the good things that pot gives or the good things that pot takes away. Right now, my vote is with number one. Sometimes, you don’t know how bad things have been until they get a little better, and pot has made things a great deal better. Fuck having brains; I just want to feel good.

As I see it, pot is different from narcotics, anti-depressants, and sleeping pills (all of which I’ve relied on heavily at one time or another) primarily in that it does a better job with less risk. I’ve taken a lot of powerful drugs, but they all scared me so much that I never had the balls to take as many as I actually needed, and my fear increased dramatically as I built up a tolerance to every one of them. One virtue of pot is that you’re not going to wake up with yellow eyes or failed kidneys, and I would sacrifice quite a few brains cells to avoid either of those. Brains are good, obviously, but you have to ask yourself after a certain point how many are strictly necessary. Of course, I’m assuming here that marijuana-related memory loss is long-term, and I don’t know that to be true… Now what was I saying?

The photo is of a psychedelic frogfish and was made by David Hall at seaphotos.com

My continuing adventures with medical marijuana

I started out smoking my pot with a homemade pipe, but I hated that pipe, so I got a store bought one, but I hated it too. I then bought a bong, and it’s far superior to the pipes, but I would prefer to not smoke anything, so last week, I threw two cups of marijuana leaves into a pint of olive oil, and heated the oil at 220° F (104° C) for two hours. The result was neither pretty nor tasty, yet palatable enough on toast. The only real downside to the mixture is that it takes so long to work (up to three hours). I’ve also had a problem getting the dosage right. One night I wouldn’t feel anything after swallowing a rounded teaspoon; the next night, a heaping teaspoonful would practically leave me catatonic. Because I’m trying to make my marijuana experimentation as pleasant as possible to Peggy, the catatonic nights posed some behavioral challenges. When you can barely walk or talk, just saying goodnight is difficult, yet I consider it important that I be able to function more or less normally when I’m high, so the challenge isn’t altogether unwelcome.

Yesterday, I decided to take a new tack, so I bought a bottle of 190 proof alcohol, and mixed it with nearly a quart of marijuana leaves (see photo). Now, I just have to shake the mixture twice a day, and in two weeks, the THC will have leached out of the pot and into the alcohol, at which time the foul smelling and horrible tasting concoction can either be taken with an eyedropper or rubbed into the skin. I will admit to no little curiosity about this combination of two intoxicants, which is infamous for landing people in the ER. Now, going to the ER when you’re having a bad time of it on pot isn’t the best idea in the world because—unless you’re psychotic anyway or your marijuana is impure—your only real danger comes from panic. So, you ask, how does that work, exactly? Well, think of marijuana as being like water in a lake. If you’re learning to swim, and you panic in the water, bad things happen unnecessarily, and so it is with marijuana, although with the latter, the bad things are all inside your head, and should go away after several hours if you are able to remain calm.

Before I close, I’ll report on my physical therapy appointment yesterday. The night before, I was in so much pain from my exercises that I needed marijuana, Requip, Neurontin, and oxycodone to sleep even a little, so I decided to ask the therapist if it made sense for me to keep exercising since, no matter how little I do or how much time I take off, the pain is still intolerable. I never got to ask because he told me straight away to stop exercising for a month, at which time he would like to see me again. As he pointed out, I’m already up to 80% flexibility in the shoulder that I had surgery on in April, and so it would be reasonable for me to give up the exercises for good.

While I’m reporting, I’ll add that I saw my surgeon last week. He said he was unhappy about having done three surgeries on me only to have each of them leave me in even worse pain. I try to stay upbeat around doctors to keep them from becoming discouraged, and so I did what I could to cheer Mark up, but I went away feeling badly about the appointment because I’m afraid he’s going to balk about doing a fourth—and hopefully final—surgery. Before you remind me that it’s the job of the doctor to comfort the patient instead of the other way around, I’ll just mention that what should be the case and what is the case are often miles apart. If you have a doctor whom you like as much as I like Mark, it pays to make your time with him something that he will feel good about because frustrated doctors tend to dump patients, even when, as in my case, a negative outcome is almost surely unrelated to any mistake the doctor made or could have foreseen.

I just realized that I’ve gained eight followers since I started writing about marijuana. Are some of them narcs, politicians, or talk show employees who will soon take my words out of context and feature me as an example of why Oregon’s medical marijuana law should be overturned? I’m torn between wanting to be as honest about this subject as I’ve been about other subjects, and not wanting to harm the future of medical marijuana, or get myself arrested, or make myself into an object of public ridicule. Maybe the mass of conservatives really are well-meaning people of conscience, but all I see in their leadership is greed, bigotry, dishonesty, and the willingness to destroy any and everyone who gets in their way; all in the name of their “Blessed Savior.” Oh, but I forgot; it’s our supposedly liberal president who reversed his campaign promises when he ordered the latest war on medical marijuana. Are no politicians to be trusted, ever? No, no politicians, ever. No politicians, no government agencies, no military spokesmen, and no religious leaders. Power does indeed corrupt, if not always, nearly always.

Getting my marijuana card

Getting my marijuana card and my first batch of legal pot (legal under Oregon law—it’s still a federal crime) took two weeks and a day. Utterly ignorant of the process, I started with a Google search, and then made a few phone calls. I learned that any doctor could write a recommendation (you can’t get an actual prescription), so I took a chance on my internist even after his nurse told me that he wouldn’t do it. Of course, she was right, but I wanted to argue it out with him and at least hear his reasoning. He said that he was so supportive of medical marijuana that he had helped start one of the local clinics, and that I was a shoe-in for a card, but that his insurance wouldn’t allow him to recommend one. So, I had to pay $255 for the clinic’s hippie/earth-mother M.D. to sign the recommendation, and then I had to mail another $100 to the state of Oregon for the actual card.

After I was approved at the clinic, I put my name and phone number on their bulletin board as that of someone who was looking for a grower. Three men called in one day, and two of those came to my house bearing samples. The first was a disabled man who was driven by his wife in their BMW. He said he was 63, and disliked getting high, but needed marijuana to control his spasms. He left me a couple of ounces in buds and upper leaves to sample, and said I would need six plants a year in order to have enough to smoke, eat, vaporize, and make into tinctures. As for money, he wouldn’t take any—now or ever.

The second grower was in his twenties and came with his girlfriend, both of whom wore dreadlocks. I wondered if they felt odd talking about marijuana to an old and straight-looking guy like me. For my part, I just found their dreadlocks quaint, in a homely sort of way—like Birkenstocks and tie-dye. We had a long pleasant chat, and the woman left me with a single bud. Like the first man, they wouldn’t take any money. I’ve opted to go with the first grower (I can only have one legally-designated grower) because of his intial generosity, his reputation, and because his living circumstances are stable.

As soon as my guests left, I tore off like a shot on my bike to a downtown headshop to buy a pipe or vaporizer. I was the oldest person there by far, but the all-male staff and customers were almost protectively friendly (young men invariably treat me well). What I came up with for a temporary solution was a cheap little pipe that soon proved worthless. While looking for matches, I found an old pipe made of plumbing parts that I didn’t even know I had, so I used it—I immediately hated that pipe, so Peggy and I spent part of her sixtieth birthday bong-shopping (see photo).

My new grower—Stephan—suggested that I start out smoking the leaves since the bud might be too kickass. When you’re as susceptible to the power of marijuana as I am, you take such suggestions seriously, so I smoked a bowl of leaves, and then watched in fascination as the high kept getting more intense for over an hour. When a high becomes uncomfortable, one thing that usually helps is to go for a walk, so I took my blind cowdog, and started out. Wouldn’t you know it, I ran into person after person with whom I felt obliged to talk, but I didn't know any of them well enough to say, “Hi, neighbor, I’m stoned out of my gourd on my first sample of medical marijuana.”

When you’re in that kind of situation, you have no idea whether people can tell that you’re temporarily insane (paranoia being natural when you suspect that someone suspects you’re crazy). However, the more a person who is high listens to people who are straight, the more sure he becomes that they aren’t any too sane either. But then there are other—presumably straight—people with whom you connect strongly, and you know that they’re either oblivious to your mental state, or else they like it. One such person is a neighbor whom I’ve known for twenty years during which I thought of her as gloomy, unfriendly, fault-finding, and an all-around unpleasant person. Then yesterday, we had a long and delightful conversation. Today was the same way. I said hi to a man with whom I’ve never exchanged more than ten words, and he couldn’t stop talking, very pleasantly to be sure, yet with many times more openness and friendliness than I would have expected. I’ve always HATED being around most people when I was stoned, but with a few more interactions like those, I could change my mind.

Last night was the big test, pain-wise, so, having maintained a semblance of sanity with the leaf, I smoked a bowl of bud at bedtime (Peggy even let me smoke it in her bed). Despite being very high, I went to sleep easily while watching movies inside my head, and everytime I woke up during the night, I took another hit. It was one of the first nights in years that I didn’t take a single narcotic or sleeping pill, and I didn’t even use ice. I should have gotten some ice after about seven hours in bed, but the longer I lay there, the more hellbent I became on making it through just one night without having to freeze my shoulder off.

I’m like a kid with a new toy. What a difference legal marijuana makes for someone like myself who remembers a time when people were sentenced to twenty years to life for the possession of a single joint that was 20 times less potent than the pot I’m smoking!

Update. I wrote the above a few days ago, and my appreciation of these new strains of super pot has increased to the point that I think of the drug more as a guide than a chemical. One of the first things that Kush (my favorite strain) taught me was how constricted these years of pain have left my entire body. It did this by first relaxing me into jelly, and then drawing my muscles up into the rigor mortis-like state that I hold them everyday. I was shocked to the point of wondering how I have survived all that I’ve been through even as well as I have. With help from the marijuana, I immediately started training my body to relax, and when I saw my physical therapist today, he was surprised by how loose I’ve become.

Stephan just brought me some more bud. After so many years of pain, I can scarcely believe that something even might be helping. Check with me in a couple of weeks, and I’ll probably tell you that I was mistaken.