Bone Cancer: Part 3: PET-CT Followup in Kirk's Office





Kirk (see photo) said that the PET/CT Scan showed two areas where cancer is likely. One is the ping pong ball lesion on her ilium that we already knew about; the other is a spot in her pancreas that we didn't know about. Although Kirk assured us that her life can be prolonged, I later learned online that her odds of surviving until next year are only 10%. 

During our visit with him, she asked that Kirk do the following: 

(1) Prescribe something for her rapidly worsening pain. (He gave her Tylenol with Codeine, and told her to let him know when she needs something stronger.) 

(2) Put a note in her chart saying that she wants to begin the process of obtaining life-ending medication through the Oregon Death with Dignity Act. He readily agreed to do this, and added that it's best to apply early (perhaps, he was thinking of instances in which people have been accused of goading a sick relative into suicide).

When we got up the next morning, the results of the blood tests that she had on her way to Kirk's office were online. They were normal with the sickening exception of the CA 19-9 pancreatic tumor marker. The normal value for this test is 37; Peggy scored +1000.

As we were leaving Kirk's office the previous day, my eyes had met his, and I saw in them an expression of horror unlike anything I've ever seen on anyone. I couldn't imagine the reason for this because I had thought that, since Peggy's body wasn't riddled with tumors, we had years, together, rather than months. When I got home and googled pancreatic cancer survival rates, I knew the reason for his anguish.

For decades, he has never seen one of us without also seeing the other, but I fear that we're nearing a time when, for however long I live, I will see him alone. 

I was working on my grocery list while waiting for Kirk to enter the exam room. When I turned the paper over to write on the back, I found a poem that I had written in the late '70s. When Kirk arrived, Peggy shared it with him, and he spent a long moment pondering it.

I would take Peggy's disease into my body in a heartbeat and count myself lucky to do it, so why is it that I cannot escape the selfishness of continually thinking of my own pain? 

11 comments:

Strayer said...

Oh no, Snow. I'm so sorry. For Peggy and for you.

Ruby End said...

Because your love is so deep and strong it is encompassing you, this is not to Peggy's detriment, it's not selfish, it's a natural reaction, and will consequently serve you both better in the coming months, for those who hide their own pain and feelings most can often become numbed by it. Hold each other tight. I know people who have had cancer in the past five years and with treatment they went into remission. They needed three lots but despite their age (the older is 78 the younger 67) they're both doing really well. Hold on to possibility and how Strong a lady Peggy is. Sending all my love and more ❤️ Xxxx

Elephant's Child said...

It sounds to me as if her pain is already past Tylenol and Codeine. I hope I am wrong or that Kirk will quickly prescribe additional pain control measures.
I am so glad that you have the option of death with dignity. It is not yet possible where I live
Hugs. And hopes.

kylie said...

When a couple have been together a long time and are close, there's no "my pain" and "your pain"
Your reactions are valid and in the intensity of the diagnosis I'm sure you're in for a washing machine of emotion.
Peggy's request to make provisions for death with dignity has come early. I'm impressed with her clarity.
I'm so sorry about this. It's devastating

ellen abbott said...

Well, fuck, Snow. Of course you are thinking of your own pain. It does not mean that you aren't also consumed by Peggy's and the horrible months ahead of you both. Peggy's pain will end, your's will continue. No words can be said that will ease any of this for you.

hannah jane said...

I'm so sorry to hear about this incredibly sad news. I am thinking about you both.

How do we know said...

So, so sorry to read about this!! No words. Just.. sorry.

How do we know said...

Just read the 3 posts one after another. What an absolute nightmare!!! Am so, so sorry!! The journey itself was so full of anxiety. You and Peggy will be in my prayers. A LOT.

mimmylynn said...

Please let Peggy know that i wish for her pain to be made bearable. I can feel your pain in your writing Snow. I do not have the words necessary to ease your pain. I am so sorry that you both have to go through this.

angela said...

I am so sorry for what you are both going through
Cancer has touched our lives so many times and it’s never easy
A friend of mine had pancreatic cancer and she too decided to end her life on her terms. I think having a disease that you cannot control, makes your choice to pass, more significant. It’s saying to the disease that I’m not giving you all my power. I’m keeping some for myself
Sending you both hugs from across the world

mimmylynn said...

You and Peggy have been strongly on my mind. Please know that so many of us care.