What I've been feeling and doing, and why I'm not visiting blogs

I saw my new pain doctor today, and he loaded me down with Lidoderm, Cymbalta, and Butrans (I already had Dalmane, Ambien, Restoril, Neurontin, Dilaudid, oxycodone, Vicodin, Demerol, Fentanyl, Requip, and probably a few more that slip my mind at the moment). He also referred me for acupuncture, hypnotherapy, physical therapy, biofeedback, and a half dozen other therapies, and finished off by telling me to consider a TENS unit and a lidocaine infusion (I obviously looked wealthy). All this plus a new diagnosis. No, it’s not CRPD like my internist said, and it’s not even syringomyelia like my last pain specialist said, and it’s hardly a complete mystery like my surgical neurologist said. Oh, no, it’s CPS (central pain syndrome, whatever that means—I rarely even Google diagnoses anymore). I damn near fell on the floor laughing when he said that. God, I could diagnosis myself by closing my eyes, opening a medical encyclopedia, and pointing at a disease, so what the hell do I need these overpaid morons for? Oh, drugs. That’s it. I need them for drugs, man.

I’m going to rant—or should I say “continue ranting”? The son of bitch had me piss in a goddamn cup so he could fucking test me for drugs (“I told you what I’m taking,” I said. “Don’t take it personally,” he said). He even insisted that I bring all my medications so he could look at the bottles, but he wasn’t content with just looking at them; he counted the pills—or rather his nurse did. I knew that a drug test awaited me before I went in, so I hated him from the start, and tortured myself about whether to go at all since I didn’t really expect any good to come of it anyway (you lose faith after your 30th doctor). I agonized right up until the last minute, at which time I concluded that I would put up with his drug test shit until the first of the year when my insurance cycle starts over, and I have to start paying through the nose again. The whole time I was there, I kept wanting to slap him silly. If I were a hair’s breadth less stable, I would have too. Although I’m not entirely unsympathetic to a doctor's need to protect himself in the event of a lawsuit, I doubt that it sets well with many people to be forced to prove they’re not lying.

After I left his office, I went to another doctor’s office for an Orthovisc shot in the knee. He missed the joint three times, and kept having to jab that long old needle around. (Why, yes, thank you, it did hurt about as bad as it sounds like it would). I’m glad that I’m able to handle pain as well as I am. I’ve been so near absolute panic and/or despair so many times that I’ve lost count, yet I persist in believing that I handle pain better than most people. I’m probably a fool for thinking this, but it somehow helps me to maintain that illusion, if it be an illusion.

I’ve all but stopped smoking the medical marijuana (I’m still eating it in small amounts). After I poisoned myself (see August 8), it just never felt the same. When I smoke it now, the first thing that happens is that everything that makes me anxious or unhappy hits me at once and is multiplied by a factor of ten; and the second thing that happens is that I become a complete idiot. I can still write—I’m ripped right now in childish rebellion against the fact that the pain specialist told me not to mix pot with one of my new drugs—and it even makes me write when I wouldn’t otherwise want to, and about things I wouldn’t otherwise write about. Like now. Peggy’s off to New England for two weeks, and I had just as soon be working at a job that I started three days ago after postponing it for years for fear the pain would become unbearable. That job is painting the laundry room and building a new shelf unit for it. The work entails filling holes, moving heavy things, scrubbing the walls and ceiling with trisodium phosphate, cleaning up the mess, and then applying three coats of paint. Six years ago, it would have been a small job, but now it’s killing me. It’s also making me very happy because I do love manual labor.

With Peggy gone, I let Bonnie the dog and Brewsky the cat sleep wherever they please instead of locking them away like we usually do. Surprisingly, Brewsky has taken to sleeping with me in my twin bed. Two dudes together, you might say. I feel badly that Bonnie can’t join us, but it would be a bit much for me even if it wouldn’t invite trouble between her and Brewsky—it would also mean a move to Peggy’s double bed.

So, there you have it; I’m busy, so I’m not visiting blogs, and I wouldn’t be writing in one now if I hadn’t smoked that pot, because I really want to get this job done as a surprise for Peggy who after forty years still hasn’t learned that I’m dumb enough to do such a thing.

My search for god

Christians often assume that atheists regard Jesus as a great man, but that they either don’t believe he was real or else they don’t believe he said and did the things in the Bible. Personally, I don’t care if Jesus was real—or about the events of his life if he was real—because I consider many of his teachings to be appalling. This astonishes a great many Christians, just as their willingness to overlook the absurdities, cruelties, and contradictions of their 3-in-1 deity astonishes me. Even so, I could enjoy attending some ultra-liberal “church” where even the conservative members would make Billy Graham blanch, but it would be for a sense of ritual and community rather than any love of Jesus. In fact, the reason that I don’t go to such a church is that I don’t want to hear about Jesus because of the horrible injustices that have been committed in his name.

I could get on board with some other concept of god—say some quality like peace, beauty, or compassion—but I don’t feel the need to call such things god. I’ve done it though. That’s how I got into the Freemasons and the Odd Fellows. When they said I had to believe in an undefined something that I called a deity in order to join their clubs, I assumed that any definition would do. The rub about such groups is that they actually expect you to believe a lot more about god than the simple fact of his existence (for instance that he’s a supernatural entity that answers prayers), but they don’t tell you this upfront—they save it for a surprise. It also rankles me that the very existence of the god-requirement suggests that a man who believes in god is more virtuous than one who does not. I have never found this to be true except in regard to tolerance, an area in which the atheists have an easy lead, having never killed, maimed, imprisoned, or otherwise oppressed people in the name of atheism, whereas such things have always been a prominent feature of monotheism.

I’ve flirted with quite a few non-Christian concepts of god, but none of them ever stuck. Take A Course in Miracles. I stumbled upon that back in the ‘90s when I was feeling even more strongly than usual the need for an anchor to my life. According to A Course in Miracles, neither matter nor evil exists. What does exist is god, and god is us. It naturally follows that we would do very well to live with this knowledge of our true identity—and the identity of other people—emblazoned across our consciousness. I spent most of a weekend really trying to find some way to open myself up to believing all this, but I failed—or rather A Course in Miracles failed. For one thing, there’s no evidence for it (as with most religions, you’re supposed to believe it’s true before you believe it’s true in order that you might believe it’s true), and for another, evil as an illusion struck me as being hardly less evil than evil as a reality.

I’ve also flirted with Buddhism, pantheism, panantheism, hylozoism, animism, Unitarianism, Yoganandaism, Bahaism, Wiccanism, New Age Sufism, and even totemism. (During my totemic phase, I decided that tree squirrels would be my totem, and I made a point of moving dead squirrels out of the street. This constituted my one and only totemic observance, and I must have done it upwards of six times.) I’ve also read a fair amount about atheism, which, despite what I often hear from Christians, is in no way a substitute for religion, although some atheists develop what believers might call a religious zeal for protecting the civil rights of nonbelievers. To my mind, atheism is nothing. This is why atheists often say to would-be proselytizers: “You and I are alike in that we both disbelieve in hundreds of gods. It’s just that I disbelieve in one more god than you do.”

I’ve heard that there’s a gene for religious faith, and if that is the case, I don’t appear to have it, and I think the world would at least be a more tolerant place if no one did. While I have every confidence that my Christian readers are people of exemplary tolerance (otherwise, they would be long gone from this blog), the rarity of such believers in my life makes me think that their tolerance is a rarity. I also think they are somewhat ignorant of how mean-spirited their fellow believers are to outsiders. If not for religious intolerance, I might very well have stayed in Mississippi instead of moving to the opposite corner of the country.

If you want to see the evil of the dominant form of American Christianity personified, look at Texas governor Rick Perry because that’s IT, that’s what I grew up with, that’s what I took seriously into my middle teens, and that’s what I somehow rejected. It seems screamingly obvious to me that the religion of such politicians could inspire them to commit almost any atrocity, yet America’s fundamentalists, evangelicals, and many Catholics support them. Otherwise, Rick Perry would not be the governor of Texas, and he would not be a contender for the Republican presidential nomination.

Things that go bump in the night

I’m going to betray a tree that has provided me with beauty and shade for the 21 years I’ve been in this house. The tree is a Ponderosa Pine that stands ten feet from my back bedroom. Fifteen years ago, an ice storm sent limbs crashing from that tree like artillery shells. For three days, I slept at the other end of the house while Peggy remained in the very bedroom that was most likely to be hit (this is the same woman who worries that airplanes will fall on her). After the ice melted, I told her that there was no way I was going to pass another winter wondering if an evergreen limb four inches in diameter was going to impale us in our bed. She objected strenuously to my pruning proposal, but I used her old mountain climbing gear to get myself to the top of that 80-foot tree, and I pruned it anyway (I’m a woos about crossing Peggy, so this constituted a rare act of defiance). I thought the tree might die from such a severe pruning, but it didn’t even slow down, so last summer, I had to do the same thing again. The tree still looks healthy, but it’s none too pretty, what with most of one side and twenty feet of its top gone—and even after all that, there’s still the possibility that it might heave our foundation.

So, I’m going to have an arborist give me one estimate for cutting the whole thing down and another estimate based upon me cutting the limbs and him cutting the trunk. Ten years ago, I would have rented a chainsaw with a long bar and done the job myself, but given how bad a shape I’m in anymore, even the limbs—which will have to be cut into sections and lowered with ropes—are more than prudence dictates that I tackle, although I probably will.

I’m not doing well with my ever-worsening health situation, but I must say that I’ve gotten enormous comfort over the years by reflecting upon other people’s misery. Based upon my own experiences and what I’ve read, I’ve learned two things about chronic pain: there’s often very little that doctors can do to alleviate it; and the only limit to how much pain a person can experience is determined by the point at which he passes out, and even then he has to wake up again. I’ve read about people whom, if I were them, and had I been able to use a gun on myself, I would have run to that gun. I draw two conclusions from such somber reflections. One is that I’m lucky compared to how bad off I could be. The second is that to truly allow the knowledge of such pain into my heart has made life seem a lot more serious. When I was young, I pretended that life was simply a game that I would someday tire of, and then go back to my real existence; but, no, our lives are as real—and sometimes as horrific—as when a leopard crushes the windpipe of an impala.

One of the things I miss most is the ability to believe that I will ever again be strong and healthy. Life just seems too damn sad most of the time, and what joy I find comes in little pieces, and most of them when I’m writing (I write far more than I share) or spending time with Peggy. I figure that as long as I have her, I can put up with almost anything. I’m 62, and I’ve never been alone or even wanted to be alone. In three months, she and I will have been married forty years—we met in August and were married that December. Scores of people have passed through my life since I met Peggy, but somehow she has remained.

Just as I finished this, a blogger who is surely a lot tougher than I posted her own update (http://black-horse-design.blogspot.com/). It will give you a taste of the kind of cold comfort that I get from other people’s suffering. Bloggers like Carmon almost make me ashamed to complain at all. Yet, I can’t find the strength to bear my lot in silence, and besides, my greatest supporters have often been those who were worse off than I.

Dad

My father quit school in the eighth grade rather than let a teacher whip him for fighting. The next day he left Route 4, Bogue Chitto, Mississippi for Galveston, Texas, where he took a job as an apprentice roofer. Next came the Merchant Marines where he volunteered for hazardous duty (it paid better), and had two ships shot out from under him by German U-Boats. The entire load on one ship was Pabst Blue Ribbon Beer, and Dad never got over seeing men die for beer.

Dad was a transsexual before he knew there was a word for it or that anyone else felt as he did. I only learned that he wore a bra and panties under his striped overalls when he fell off a ladder (he and I remodeled homes and businesses), and knocked himself out. Soon after that, he told me that he learned about there being a name for his condition from Life Magazine during the 1960s. He would have been in his mid-fifties at the time. Even when he was in his seventies, he said he wished he had money for a sex change operation. About the time he hit eighty, he got religion and didn’t talk about his gender problem anymore. Instead, he moved on to telling Peggy and me about his nightly conversations with God. Mostly what God had in mind for my father was to arrange for him to win the Publishers’ Clearinghouse Sweepstakes. As I watched my father waste thousands of dollars buying magazines for those sweepstakes, I developed an intense hatred for Ed McMahon and the deceptive mail that came in his name.

Dad would cuss people out over minor things, and he even “enjoyed” getting into fistfights when another man showed an interest, yet he was too shy to order a meal or ask a clerk a question. I knew that something was “wrong with him” (that was how I expressed it to myself) from the time I was a small child. I could see it in the fear that other people showed when they were around him. Yet, he never beat me—or even touched me—and he never beat my mother or sister either. We were all still afraid of him though. When he told me about his transexualism, I wondered how much of his behavior was an attempt to compensate for the manhood that he lacked. He even married several times—five, I think it was.

He died in 1994 after spending his last two years with Peggy and me. I got over his death without a tear. Unlike the 18 months I spent having anguished dreams after my mother died, I never had a bad dream about my father. He appeared in my dreams for years after his death, but he was always old and feeble, and just kind of hanging out in the background, which was pretty much how he spent his last two years. He died here in this house, and that was good because—through hospice—Peggy and I were able to obtain a bottle of liquid morphine so we could do whatever it took to control his pain without having to worry about whether we were giving him a fatal dose the way they would if he had died in a hospital. The last thing my father ever asked me to do was to keep him out of pain even if it meant, as he put it, “easing me out.” I told him I would.

The manner of his death was this. He needed pills to keep his congestive heart failure in check, only he thought that “living out of a pill bottle” was beneath his dignity, so he repeatedly stopped taking them over his last few years. Each time, he would become so bloated and short of breath that he would always go back after a week or so. These continual flirtations with death were a very hard thing for me to witness, and they also put me into a moral dilemma once I discovered that I could sneak the pills into his food. I thought a lot about whether I had the right to do that, and I finally decided that I didn’t. I figured that if he was rational, he had the right to end his own life, but if he was irrational, his life wasn’t worth preserving. I never could make up my mind for sure which it was because my father had always seemed insane. He finally stayed off his pills long enough that he died. He took to his bed on a Sunday and died that Tuesday without me ever having to change a diaper. For that, I was grateful. Either your parents die more or less cleanly, or they deteriorate enough to become a horrendous burden to themselves and to you—and then they die—so it’s not all bad when they die sooner rather than later.

“…existence…monstrous masses all in disorder—naked, in a frightful, obscene nakedness.” Sartre

I see wisdom in approaching life as I would a drug trip, that is to enjoy the good times despite their fleeting nature, and to survive the bad times by remembering that they too will soon end.

Life is absurd, my species deeply and irredeemably flawed. On the one hand, life seems only too real at times both in terms of joy and sadness, but on the other, the accidental nature of our existence makes a joke of any claim to objective meaning.

All that most of us are and all that we do will be forgotten within five decades of our deaths, but even if we’re remembered for ten thousand years, we’ll be no less dead. In his old age, Benjamin Franklin wrote a sketch entitled “The Ephemera” in which he portrayed himself as the senior member of a species whose lifespan was measured in hours rather than decades. His point was that we would do well to take ourselves less seriously. Against the backdrop of eternity, the difference between a millisecond and a million years is inconsequential, and our lives are infinitely less than that.

I often remember bloggers who are now dead, and others who are fighting diseases that might very well kill them. Even as I write, one friend is in the hospital for what is likely to be her death. You and I will join her in a very few years. We can’t hold onto our loved ones, our possessions, or our achievements, and starting in our forties, we begin to observe the disintegration of our own bodies. If that’s not a trip, I don’t know what is.

The painting goes poorly with the title of this post, but I liked it anyway. It's entitled Pleiades and was done by Elihu Vedder in 1885. At the moment, it makes me feel as if I’m swimming atop ocean swells. Because I’m not a swimmer, this is a decentering experience, yet so very beautiful. Maybe tomorrow, the painting will make me feel as if I’m floating through infinite darkness while Simon and Garfunkel sing “Dangling Conversation.” What does it make you feel?