Hopalong and me

Now that Peggy’s gone. I get up between 10:00 and 11:00, eat oats or Grape Nuts for breakfast, work all day while I listen to Western audiobooks, watch a Western movie at night as I eat sardines and tidy-up, down 8mgs of Dilaudid, take a hit of bud (despite what my pain specialist says, pot and Dilaudid makes for one hell of a delightful combination), and read a Western novel until the words start floating off into space—this doesn’t take long. Then I lie in a warm glow until sleep overtakes me within anywhere from two minutes to two hours depending upon whether the drugs keep me so entertained that I can’t sleep. It’s a good life, this working everyday and getting loaded every night, although I do hate being repeatedly awakened by the pain.

Taking on what is to me a hard physical project makes me feel like a man again. Only people who have been there can understand the extent to which pain and disability can take away a person’s pride, especially if his entire adult life was devoted to physical hobbies and occupations. I’m happier than I’ve been in years because I know that if I can survive this job, I can survive other jobs too. It’s just a matter of keeping a good supply of drugs. I had rather die than to go back to being unable to work.

I wrote most of the following paragraphs in the comment section, but am going to add them as an appendum.

It’s not that I have suddenly decided to take on hard projects despite the pain, but that I have improved enough that, with narcotics, I can now bear what pain there is when I take on what is for me a hard project--this project being my test of that. There was a time when movement hurt so much that I had to grasp my shoulders with my hands in order to walk, and I couldn’t even dust furniture for the pain. For an entire year, not a night went by that I didn't sleep in a recliner while taking narcotics every few hours and using ice packs continually, and I would still hurt too bad to sleep for more than brief periods. If I were in such pain now, I would be screaming in agony were I been silly enough to attempt my current project. It would be like fire to my body.



I don’t know what to attribute this recent improvement to. I went back to physical therapy with yet another new therapist a month ago, and he is the first therapist who has been able to devise exercises that I can bear. I’m also taking Sam-E and Cymbalta, so maybe all three of these things or none of these things are responsible for my improvement.

Although I long since stopped trusting that good times will last, these last few weeks have been the best period I’ve had since the pain got really bad four years ago, so it is tempting to be hopeful. However, both the pain specialist I saw last week and my physical therapist have told me that I will always be in pain (the longer a person is in pain, the less chance there is that he will recover). In fact, the therapist asked me whether I'm more interested in building strength or in reducing pain, and I told him unhesitatingly that I value strength above reduced pain. Being strong helps me to want to live. Some people seem able to slide into invalidism with little angst, but I can’t imagine ever reconciling myself to such a life.

I take great comfort in knowing that, whatever is causing my pain, at least it can’t be as bad as syringomyelia or chronic regional pain disorder, two of the diagnoses I’ve had that turned out to be wrong.


The painting is by Frank Earle Schooner (1877-1972), and is entitled “Hopalong Takes Command.” It's owned by the Delaware Art Museum

What I've been feeling and doing, and why I'm not visiting blogs

I saw my new pain doctor today, and he loaded me down with Lidoderm, Cymbalta, and Butrans (I already had Dalmane, Ambien, Restoril, Neurontin, Dilaudid, oxycodone, Vicodin, Demerol, Fentanyl, Requip, and probably a few more that slip my mind at the moment). He also referred me for acupuncture, hypnotherapy, physical therapy, biofeedback, and a half dozen other therapies, and finished off by telling me to consider a TENS unit and a lidocaine infusion (I obviously looked wealthy). All this plus a new diagnosis. No, it’s not CRPD like my internist said, and it’s not even syringomyelia like my last pain specialist said, and it’s hardly a complete mystery like my surgical neurologist said. Oh, no, it’s CPS (central pain syndrome, whatever that means—I rarely even Google diagnoses anymore). I damn near fell on the floor laughing when he said that. God, I could diagnosis myself by closing my eyes, opening a medical encyclopedia, and pointing at a disease, so what the hell do I need these overpaid morons for? Oh, drugs. That’s it. I need them for drugs, man.

I’m going to rant—or should I say “continue ranting”? The son of bitch had me piss in a goddamn cup so he could fucking test me for drugs (“I told you what I’m taking,” I said. “Don’t take it personally,” he said). He even insisted that I bring all my medications so he could look at the bottles, but he wasn’t content with just looking at them; he counted the pills—or rather his nurse did. I knew that a drug test awaited me before I went in, so I hated him from the start, and tortured myself about whether to go at all since I didn’t really expect any good to come of it anyway (you lose faith after your 30th doctor). I agonized right up until the last minute, at which time I concluded that I would put up with his drug test shit until the first of the year when my insurance cycle starts over, and I have to start paying through the nose again. The whole time I was there, I kept wanting to slap him silly. If I were a hair’s breadth less stable, I would have too. Although I’m not entirely unsympathetic to a doctor's need to protect himself in the event of a lawsuit, I doubt that it sets well with many people to be forced to prove they’re not lying.

After I left his office, I went to another doctor’s office for an Orthovisc shot in the knee. He missed the joint three times, and kept having to jab that long old needle around. (Why, yes, thank you, it did hurt about as bad as it sounds like it would). I’m glad that I’m able to handle pain as well as I am. I’ve been so near absolute panic and/or despair so many times that I’ve lost count, yet I persist in believing that I handle pain better than most people. I’m probably a fool for thinking this, but it somehow helps me to maintain that illusion, if it be an illusion.

I’ve all but stopped smoking the medical marijuana (I’m still eating it in small amounts). After I poisoned myself (see August 8), it just never felt the same. When I smoke it now, the first thing that happens is that everything that makes me anxious or unhappy hits me at once and is multiplied by a factor of ten; and the second thing that happens is that I become a complete idiot. I can still write—I’m ripped right now in childish rebellion against the fact that the pain specialist told me not to mix pot with one of my new drugs—and it even makes me write when I wouldn’t otherwise want to, and about things I wouldn’t otherwise write about. Like now. Peggy’s off to New England for two weeks, and I had just as soon be working at a job that I started three days ago after postponing it for years for fear the pain would become unbearable. That job is painting the laundry room and building a new shelf unit for it. The work entails filling holes, moving heavy things, scrubbing the walls and ceiling with trisodium phosphate, cleaning up the mess, and then applying three coats of paint. Six years ago, it would have been a small job, but now it’s killing me. It’s also making me very happy because I do love manual labor.

With Peggy gone, I let Bonnie the dog and Brewsky the cat sleep wherever they please instead of locking them away like we usually do. Surprisingly, Brewsky has taken to sleeping with me in my twin bed. Two dudes together, you might say. I feel badly that Bonnie can’t join us, but it would be a bit much for me even if it wouldn’t invite trouble between her and Brewsky—it would also mean a move to Peggy’s double bed.

So, there you have it; I’m busy, so I’m not visiting blogs, and I wouldn’t be writing in one now if I hadn’t smoked that pot, because I really want to get this job done as a surprise for Peggy who after forty years still hasn’t learned that I’m dumb enough to do such a thing.