Do-It-Yourself acupuncture, fun with pain, fun with drugs for pain

I went to the acupuncturist eight times. Seven of those times, I saw no improvement. After the eighth, my shoulders felt better for a few days, and I could only think of two possible explanations. One was the acupuncture; the other was that the pain had gotten so bad that I had stopped doing almost everything. To test the first theory, I went to the acupuncturist one last time and asked him to do whatever he had done on the previous visit. This treatment didn’t work the same magic, but I took careful note of where he stuck me, ordered a box of needles, and have been doing acupuncture on myself. There seems to be a slight improvement, but since I am experimenting with other self-help approaches, I can’t pin it down (ha) to the acupuncture.

One of the humorous aspects of pain itself and the narcotics that relieve it is that you become a complete idiot. Yesterday, I got out the dogs’ collars, leashes, and poop bags; put on my windbreaker and bicycle helmet; and went for a walk. Pretend you are taking an IQ test, and you are asked to identify something that doesn’t belong in the above sentence. Right! But I didn’t find the correct word or words until I was halfway down the street, at which point I sheepishly returned home and put on my cap. Also yesterday, I was frustrated by not being able to find my keys. After a few minutes of furious looking, I discovered them……in my hand.

An updated account of how things have played out

When I last updated, the diagnostic neurologist had referred me back to the internist for cancer screening. The internist ordered a vertebral biopsy, said it could take a week to get it done, and told me to expect a phone call from whomever he referred me to. Unknown to me, he faxed referrals to three specialists (he apparently had doubts about which one was appropriate). When I received no call, I called the internist’s office repeatedly—or rather the internist’s office answer machine—to ask what was happening. I finally learned that two of the specialists had declared the procedure too risky (I have no idea why despite my best efforts to find out) and that the third specialist was insisting upon an open incision instead of a needle biopsy. I got the name of the third specialist and called her office. I was told that no referral had been received, so I commenced more calls to internist’s office. His referral clerk finally called back, and insisted that the referral was faxed a week ago. And so it goes, and so I wait… A procedure that was supposed to take one week won’t be done in two.

My dealings with doctors and their employees have led me to be more surprised when things go well than when they get fouled up, so I am far from childlike naiveté. Even so, having to struggle continually just to get people to do what they said would do, what they were hired to do, is awfully wearying. Clearly, if I had not badgered the internist’s office, I would not have heard from anyone. I have no doubt but what sick people die because they get lost in the shuffle and lack the strength to fight their way to the top. My problem is that the longer I have to put up with all this bullshit, the more obnoxious I am tempted to become. I can imagine calling twelve times a day to rub myself in their faces for being such fuckups. I don’t do this only because I know it would hurt rather than help.

My father had a spinal tumor removed in 1955. The surgeon told him that there was a greater chance of death than of recovery, but Dad said he didn’t really care as long as he escaped the pain. For months he had only been able to sleep standing in a corner propped on crutches. I always thought of my father as emotionally weak. Now I am in awe that he was able to keep from blowing his head off. Doctors then were even more reluctant to provide adequate pain relief than doctors today.

I took three different pills last night to knock myself out, yet I awakened five hours later in pain. I took a Vicodin when I got up, and wish I had something stronger, although I hate taking any narcotic because of the side effects and because the more I anesthetize myself now, the harder it will be to anesthetize myself after I start having surgeries. I had to get the Vicodin from the diagnostic neurologist—my surgical orthopedist just told me to go home and apply ice. I wish for him that he will someday feel the pain that I am experiencing.

It is hard for me to accept that I am but one patient among scores to my many doctors, and that most of them really and truly don’t give a rip. If they see me at all, it is only as whatever body part they specialize in. I can call their offices all I please, but I rarely get a real person, and when I do finally hear back, the caller is often someone who knows less than I did before I called. Then when I go in for an appointment, the typical doctor is in a hurry to get rid of me. I don’t take this personally. That’s the problem; the system is impersonal. No one means to behave badly; they’re just not rewarded for behaving well. The more patients, the more money and the more praise from their employers. The average doctor visit lasts six minutes.

Even so, I can’t say that all this has been a totally negative experience because it has given me a greater appreciation of my strength. Even with Lexapro, there are days when I am obsessed with suicide, and find a strange comfort in fantasizing how I would accomplish it (my latest plan is to make a paste of my medications and wash it down with cognac). Yet I know I won’t harm myself, at least not until I’m pronounced hopeless, and maybe not then. My reasoning used to be that it would hurt Peggy too much. That is still true, but I have also learned that good can—and already has—come from my suffering, and that it would be a mistake to block that good.

I used to be too willing to blame other people for their pain, to think that all they needed to do was to exercise, or think positively, or clean up their diet, or stop taking so many prescription drugs. Now, I see that it’s not the Army Rangers who are the toughest of the tough but the people whose lives might appear to be a complete mess. City buses invariably contain old people with walkers and bent up people in wheelchairs. With all my pain and disability, I look at them, and I don’t know how they do it. Their bodies are shriveled, yet their spirits keep moving. I can still walk, and see, and hear, and use my arms for something other than pushing a knob on a motorized wheelchair. No one has to shave me or change my underwear or cook my food. What I can no longer do is a loss, but what I can do is a miracle. There are times when several minutes pass during which I don’t think about how much I hurt, and I am more grateful for those minutes than I used to be for my entire life. There truly can be redemption in suffering, not that I would wish for another moment of it if I had the power to choose.

Buford Stewart and the unpardonable sin

I cursed God when I was twelve. I was delivering newspapers on my bicycle, and I remember the exact spot where it happened. By this time in my life, I was having serious misgivings about Christianity, and my recollection is that I let loose on God out of frustration. As I saw it, God had given Gideon not one sign but two really impressive ones, so I figured he could give me a sign too. Even a mediocre sign would do, I said, but the heavens remained silent, and my anger waxed hot. The curse was hardly out of my mouth before I remembered the Bible verse about the unpardonable sin, and there came into my heart an UH-OH feeling that would torment me for years.

“Assuredly, I say to you, all sins will be forgiven the sons of men, and whatever blasphemies they may utter; but he who blasphemes against the Holy Spirit never has forgiveness, but is subject to eternal condemnation” (Mark 3:28-30)

Now, you would think that God would have gone to great pains to spell out just what constituted the unpardonable sin so that nobody would stumble into it accidentally, but he did not. Some think the sin is apostasy because, as they argue, an apostate wouldn’t ask forgiveness, and that would be the reason the sin was unpardonable. Others think it’s cursing the Holy Ghost, but why would God forgive a person for cursing two-thirds of his august being but not the final third? And why hold this one sin above all the others anyway? If God can’t forgive it, then he is not all-powerful; but if he won’t forgive it, he isn’t all-loving—or so it seemed to me.

In any event, I spent the next several years in mortal terror. Not everyday to be sure, but a lot of days. I would go through periods when my own certain damnation was all I could think about, but just when I thought I couldn’t take it anymore, the fear would lessen. I couldn’t see living that way indefinitely, but I couldn’t see telling anyone what I had done either. When I was sixteen, I screwed up enough courage to drive out in the country to Buford Stewart’s house, Brother Stewart being a preacher whom I regarded highly. I posed my problem in what I hoped would pass for intellectual terms, something on the order of, “Brother Stewart, I’ve been thinking a lot lately about the unpardonable sin, and I just sort of thought I would drive out to your house at nine o’clock on a Tuesday night in the hope that you might be able to tell me exactly what a person would have to do to commit it.” I don’t recall what he said, and I have no idea if he ever figured out where I was really coming from.

Brother Stewart died several years ago, and I miss him—or at least I miss knowing that he still walks upon the earth, for I hadn’t seen him since I was eighteen. He took me along on a revival to Kentucky once, to the area below Bowling Green. The families in whose homes we stayed were poor, and he and I were often obliged to sleep in the same bed. One night, he rolled over and put his arm around me. I knew he was sound asleep and thought himself home with his wife, so I lay real still—so as not to embarrass him—and he finally turned the other way. A poor man himself, he still turned down a pay raise so that the money could be used to “advance the gospel,” and I was mightily impressed by that since I knew there was no way I would have turned down more money, whether for the sake of Jesus or anyone else.

But what stands out in my mind most about him was how kindly and uncondescending he was to kids like myself—and how much he loved cornbread and buttermilk. As a boy, I could no more understand why a man would get all worked up about something so plain and omnipresent as I could understand why pigs loved slop. Now I too love cornbread and buttermilk, more than almost anything else, even more than things like lemon meringue pie and banana pudding made with vanilla wafers, and I often think of Brother Stewart when I eat them. Alas, like Father Abraham, I have moved to a heathen land where the people know not how to make cornbread the way God meant it to be made, neither do they know how to eat it, and I must therefore make my own. Selah.

May the Good Lord bless you, Buford Stewart, wherever you are, and may he be a far better God than your Church of Christ theology allowed you to imagine.