Update

I am now living a life in which I am desperate for sleep. I don’t know why I’m in such pain, but since I felt similarly after my previous surgeries, only to eventually reach the point where I could sleep for up to four hours at a time, I can but hope that this time will be that way also. After all, I only had my third surgery nine weeks ago today.

Before my final awakening this morning, I dreamed that I flew bodily to the home of my friends—long since dead—Jim and Doris Bateman. I was so happy to have surrogate grandparents whom I could drop in on at any time that I cried, partly out of gratitude and partly because I couldn’t allow myself to believe that I was really welcome. When I awoke, I was desperate (it seems that I’m desperate about everything anymore) to have such people in my life again. I then realized that I do, really. I have Bella, and I also have a couple of elderly neighors who would love to have me visit. It’s not the same though now that I’m 62. Sadly, the time for grandparents is past.

I’m taking fewer narcotics because they don’t work well enough (outside of elevating my mood) to risk liver damage. Double doses of sleeping pills still deaden the pain enough for me to at least rest a little, although I worry far more about becoming dependent upon them than I ever worried about Demerol or Dilaudid. I’m still pursuing marijuana, and, because of my desperation, I have placed what is surely an inordinate amount of hope in it. Meanwhile, Obama just reversed his promise to not bust medical marijuana users, doctors, growers, and everyone else affiliated with the drug. Because Peggy is a nurse, I worry that she might lose her license simply by being married to me—sort of a collateral damage scenario. The waste, bigotry, and short-sightedness that is America leaves me aghast. I violate my conscience everytime I pay taxes. I mustn’t dwell on that though…. I see that the mailman just delivered my seventh medical bill of the week.

When I go to a doctor, I take along a summary of my problems so that I can express myself succinctly and not forget anything. The rest of this post consists of my summary from last week.

Treatments that have been of little or no benefit in relieving my bilateral shoulder pain:

Three shoulder surgeries in two years
Numerous steroid shots
Several courses of physical therapy
Dalmane, Restoril, Ambien, Lunesta, Hydrocodone, Oxycodone, Ultram, Demerol, Dilaudid, Naproxen, Piroxicam, Celebrex, Neurontin, Elavil, Tofranil, DMSO, Ginger, Turmeric, SAM-e, Habanero Peppers, Topical Anesthetics
Ice packs
Massage, Yoga, Acupuncture
Sleeping in a recliner

It is a good night when I am able to sleep two hours in a row before the pain awakens me, at which time I have to take more pills, get a fresh ice pack, or stay up for awhile. The pain makes it necessary for me to sleep entirely on my back, but my middle back hurts so much in that position that it combines with the shoulder pain to keep me awake.

Before the onset of shoulder pain, I enjoyed yardwork and handyman projects; but I have to be very cautious about such things lest the nighttime pain becomes so bad that I am challenged to sleep at all. I also enjoyed camping, but the pain now prevents me from doing that as well. Life as I had lived it for decades ended in 2006.

I’ve spent 4 ½ months out of the past two years in a sling, and 4 ½ additional months during which I couldn’t lift anything heavier than a cup of coffee. Now, I’m facing at least one more surgery. As with other treatments, I will submit to it simply because I am desperate for relief and don’t know what else to do.

Other complaints:

Burning pains in both shins was diagnosed by one doctor as complex regional pain syndrome and by another as syringomyelia. A third doctor disagreed with both diagnoses but didn’t have one of her own.

Raynaud’s Disease in both hands.

Advanced osteoarthritis in my left knee accompanied by a Baker’s Cyst and chondromalacia (a 2006 knee debridement failed to help).

An osteonecrotic C-5 vertebra that was initially thought to contribute to my shoulder pain, although a vertebral biopsy and a series of steroid shots to my neck failed to reduce the pain.

Sleep apnea for which I use a CPAP.

*Photo by O'Dea

“If you gaze long into an abyss, the abyss will gaze back into you.” Nietzsche

For decades, I’ve written my way through depressive periods, but this last one was too deep. The more I despair of ever being free from crippling pain, the harder life becomes, so when something else upsets me—and something about the group I lead did upset me—I sink to a place that is cold and dark and from which words cannot escape.

Peggy and I took an overnight trip last week, and, as sometimes happens, I threw out all the stops in order to get enough pain relief to enjoy myself, but when I couldn’t feel 20 mgs of oxycodone (2-4 times the normal starting dose), I gave up. Same thing yesterday when we had an overnight guest. I took my strongest sleeping pill (Dalmane), but it only worked for ninety minutes before I had to consider what to take next. So it is that I can no longer quiet the pain without taking high doses of so many different kinds of pills that I fear for my safety. I’m going to look into getting some marijuana because it’s all that I know to do. At least pot won’t kill you.

I haven’t smoked marijuana in fifteen years. The last time was at a large party, which is the last place I should smoke dope, but, what the hell, it was good shit, and it was free. When the social terror kicked in, I went outside and sat in a car with a woman, and things were good until she got cold and went back in. I soon became cold too, but I couldn’t face all those people, so I drove home. It wasn’t a long way, but it seemed like a long way because my sense of time and speed were so warped that I had to stare at the speedometer the whole way. Things stayed bad for me once I got home, but at least I was alone.

Around midnight, I went back to the party, and that was good because the pounding music and deafening chatter were gone, and enough people had left that things were mellow. I couldn’t find Peggy, and no one remembered having seen her for hours. I figured she would turn up eventually, so I settled into the conversation until around 2:00 when someone finally found her asleep on a bed upon which people had thrown their coats. Never a woman to hold her liquour, she had gotten sleepy after two drinks, burrowed to the bottom of the coat pile, and missed most of the party.

In 1980, I had my worst—and my best—experience with marijuana at another party. What made it so bad was that I had no place to get away to because I was a hundred miles from home in the Louisiana Delta—near Tallulah. Another problem was that there were only twelve people at the party, so I would have needed to explain my departure, but I couldn’t very well have done that because I had lost the ability to make words come out when I opened my mouth. Imagine an animal that rolls itself into a ball when it’s afraid, and imagine that this animal doesn’t know when to stop, so the ball keeps getting tighter and tighter until the animal’s every thought and every function are drawn into a psychic black hole. That’s how marijuana makes me feel sometimes.

It was nightime, and we were on a screened-in porch sitting around an empty cable spool that had been turned into a table. My mother was there and she was drunk, but she never smoked marijuana. Joints and water pipes were being passed around so fast that I hardly had time to exhale from one before someone handed me another. I knew that things were about to get really bad for me, but I didn’t do drugs for fun but because I wanted to explore every corner of my being. When I was with a group of people or with people I didn’t trust, the result was very bad, but when I was alone—or with one other person whom I did trust—it was very good.

There were citronella candles on the spool, and I was staring at a raised area on the one nearest me when it morphed into the face of a monster. The monster stared at me—and me at it—until it suddenly leaped from the candle into my face. I jumped, and then I turned the candle around to make the monster go away, but another monster took its place. I turned the candle again and again, but a different monster appeared each time, and it never occurred to me to stop looking at them. Then I realized that everyone had stopped talking. When I looked up, eleven smug monsters with lying smiles on their evil faces were staring at me.

With a Marlboro held high in one hand and a Miller High Life in the other, my monster mother drawled in her best drunk Southerner accent, “Boy, I think that stuff has affected your brain.” Everyone laughed. Everyone, that is, but her and me. Another monster asked if I was okay, and I nodded because I wanted them to stop looking at me, to stop thinking about me, to stop knowing that I was even there, because what I was seeing and what I was feeling was too personal to share with people whom I didn’t trust, even if I had been able to talk. It’s always mistrust that shuts me down, that balls me up, that makes me leave parties. It’s knowing that my reality isn’t “normal.” Yet, what is “normal” but society’s demonic child, and society is bullshit. All societies all the time are bullshit, and, that night I could no longer carry on the illusion of being an oh-so-normal person at an oh-so-normal party in an oh-so-normal society. This meant that there was there was no reason for me to stay, yet I was too balled-up to get out of my chair and, besides, I had no place to go.

Later, I found myself in bed, and out of the darkness came colors and patterns that flashed and revolved before my eyes. They comforted and delighted me all night long, and it was very good. When the darkness turned to gray, I went outside in the already muggy heat and sat atop a truck cab. There was a grove of water oaks nearby, and I watched them do a joy dance as the gray turned to blue and the sun moved down their branches. Then, other people got up, and called to me and looked for me, and when they found me, the trees no longer danced, and the kaleidoscope of night no longer comforted me, and I too had turned back into bullshit. People ruin things. That’s mostly what people are good for.

I have been blessed by hallucinogenics. I regret nothing. I would do them all again.

The art is called “Dizzy Thorns” and is by a fellow named Marcello from Potenza, Italy. Blow it up, and and stare at it for a few minutes. When the nausea, the fear, and the exhilaration become too much, you can turn away; but what if you couldn’t; what if it became your entire reality, and you didn’t know if it would ever go away?

About friendship

Until I was ten, my family lived in the country, and I substituted TV characters for playmates. My favorite program was The Huckleberry Hound Show, and I cried each afternoon when it went off.

I made friends readily when we moved into town, and I didn’t feel lonely again until I was in my mid-twenties. During the years when I had a satisfying number of friends, they and I visited one another frequently and without notice. I still miss that, but even at the time, I thought that some people carried it a bit far.

My high school friends and I came from low middle-class families and were under-achieving outsiders. I loathed wealthy, high-achieving insiders because they were snobs, yet I longed for them to like me. I have never gotten over my hatred.

After college, I discovered that people often lose friends to marriage. I can think of various reasons for this: (1) Your friend’s spouse will sometimes hate you—or you her; (2) Even if your friend’s spouse likes you, she will have first dibs on his time; (3) Jobs and children deprive people of leisure and spontaneity; (4) Our interests—and hence our friends—change as we age.

As I progressed through my twenties, I became increasingly lonely. I still had a few male friends, but I wanted more depth than I was getting, so I often felt bored and disappointed. I began having affairs, and these relationships were characterized by excitement, intimate conversations, and boosts to my ego. I therefore lost much of my interest in my male friends. As the years passed, I came to miss them, but not the women. Unfortunately, most of them are dead.

I tried to cure my friendship deficit in various ways. One thing I did was to get a pilot’s license because I didn’t want to move away from my house and land in Mississippi, and I thought that my social options would expand if I could fly. The problem was that my little Cessna was slow and easily grounded by bad weather.

I then decided that I wanted more than just friendship; I wanted people to share my life with, so I decided that I would like to live in a commune. I spent most of two years visiting such places all over the country. I wanted Peggy to go with me, but she wasn’t willing to give up the security of a job, so I went alone, and had her fly out whenever I found a place I thought she would like. Our desires were so different though that the place I liked most (an intensely personal international commune in NYC) was the place she hated most.

Then I found out about a new social movement called “polyfidelity,” which was defined as an egalitarian group marriage. Right away, I knew it was for me. Peggy wasn’t so keen on it, but she wasn’t closed to the idea either. The headquarters of the movement was in Eugene, so that’s the main reason we moved to Oregon. Within a week, I had more friends in Oregon than in Mississippi.

Peggy and I eventually became involved in a polyfidelitous relationship with a woman named Vicki who was a doctoral student in Minneapolis. We lived there for two years until that relationship failed. During my time in Minneapolis, I continued to have a satisfying number of friends. However, I was ecstatic to move back to Eugene where, again, both friendships and affairs flourished.

I soon founded a group called Family of Choice Network (FCN) that quickly grew to fifty members and sponsored two support groups and frequent social events. What I discovered about this group (and others since) was that I had no problem with finding enthusiastic supporters as long as they weren’t expected to do any of the actual work.

In the late ‘90s, things on the friendship front began to fall apart due to the demise of FCN and of the polyfidelity group that had brought us to Oregon. I also had a serious falling-out with my best friend, Walt, and, worst of all, I became involved in a peer counseling organization known as Re-Evaluation Co-Counseling (RC). I threw myself into the intensity of RC whole-heartedly, and became the darling of many people in the female dominated community.

Unfortunately I committed the cardinal RC sin of becoming romantically involved with two of my co-counselors, one of whom was an RC leader. When these relationships fell apart, I experienced severe anger, which I had imagined I could work through with the help of other co-counselors. Instead, I found myself shunned, and I became thoroughly disillusioned with RC and with people in general. During the seventeen years since RC, I’ve only had two affairs and one close friendship—all of but one of which ended badly. Nothing remains of my former idealism regarding the possibilities for human intimacy.

By contrast with my own friendships, Peggy’s friendships are characterized by an absence of drama and intensity, and whereas she never loses old friends, she sometimes gains new ones.

Aside from one male friend and three or four platonic friendships (I sometimes have trouble distinguishing a friend from a friendly acquaintance) with women, I have no face-to-face friends. I’ve substituted blogging friends to a large extent, but friendships with people whom I have never met and who live thousands of miles away have their limitations. Of course, face-to-face friendships have limitations too.

I would offer the following thoughts about friendship—sexual and otherwise—which are based upon my own mistakes and about which I’ll write in the first person:

It is important that I listen to what people say about their past friendships, because they will almost certainly behave the same way toward me—despite their insistence that they’ve changed.

I have always found that it’s a mistake to attempt to fix a friend even if she (so far, it has always been a she) asks me to.

I have had such bad experiences with people who are charming or charismatic that I’ve come to think of these traits as like fresh paint over rotten wood.

My worst mistake has been that I often mistook sex, drama, and intensity for intimacy. I have since come to realize that these things are usually destructive in the absence of commitment.

No matter how big and strong she makes me feel, I must never assume that I have the upper hand in a relationship with a woman because women have disillusioned me of that notion too many times.

I must never expect anyone to save me because they really and truly can’t, no matter how together they seem or how much they want to.

It is best to assume that other people are just as fucked-up as I, no matter how they appear.

Unless I am really intimate with someone, I must never ask him or her to give me more of themselves than they freely offer because they will almost certainly pull away.

The most trust that I can give to another person is to loan him or her money (I don’t mean just a few dollars for the sake of convenience), but doing so creates a lasting awkwardness in the relationship.

I can never know how someone is going to behave in a given situation until I’ve seen him or her in a similar situation—if then.

Most friendships are founded upon shared beliefs, interests, and geographical proximity, so I must be prepared to lose my friend when any of these change.

Even long-term friendships sometimes end, and I can’t always see it coming.

Having lost friends to death, I’ve concluded that it’s better to be more open, loving, and mature than I might sometimes feel than it is to be haunted by regret when it’s too late.

All friendships have limitations.

I know of no better gift than to take what my friend says seriously.

No matter how strong or prudent I am, intimacy is risky.

Bella

I called Mark’s office (Mark is my orthopedic surgeon) on Tuesday saying that my pain level was through the roof, and I needed to see him. His assistant called back and said that Mark didn’t think that would be necessary. I was seriously perturbed, but decided to give the pain another day or two before I insisted on coming in.

Peggy went out of town on Wednesday, which was just as well because I was awake nearly all night Wednesday night. I repeatedly lay down, but each time I did so, the pain drove me up again before I could get to sleep. Over a period of five hours, I took twice the prescribed dose of Dilaudid plus the maximum doses of oxycodone and Neurontin. I also drank some vodka, but I still couldn’t quiet the pain. It was a long night indeed, yet I wouldn’t say that it was an altogether bad night because, over the years, I have discovered within myself a fortress of serenity and optimism that the pain cannot penetrate. I don’t mean to brag, or to say that no amount of pain could reach it, yet I often stand amazed by my ability to remain upbeat against such a raw, unremitting, stabbing force.

I called Mark’s office Thursday morning, and was told that he could see me at 1:00. I worried about driving after taking so many drugs, so I asked Bella (at 87, she’s the oldest member of my atheist group) to chauffeur me. Mark checked me over pretty good, and then said that my excessive pain was probably caused by two things. One was overdoing my new exercises last week, and the other was the fact that narcotics simply don’t work for me anymore.

“You’re saying what I hoped you would say,” I offered (I had been afraid he would have to redo the surgery), and then I told him about all the drugs I had taken the previous night. Before I could finish, Bella chimed in, “Tell the doctor about the vodka. He’s not supposed to wash his narcotics down with vodka, is he doctor?” “Oh, my god,” I thought, “I’ve found myself a Jewish mother, and I’m not even Jewish.” (I think Bella was disappointed that Mark didn’t give me a hard time about the vodka or about piling on the narcotics.)

As we were leaving the office, Bella twice observed, “He’s really good looking, isn’t he?” Well, the truth is that I almost didn’t go to Mark because in his picture, he looked like what he is, a jock. Yet, I get along with him about as well as any doctor I’ve ever had. Two hours after I got home, Bella emailed me a list containing everything Mark had suggested. My new Jewish mother is just too cute.