Everyone says that talking to yourself isn't a problem, but answering yourself is. What do they know?


So, what’s it like being an atheist in a country that prides itself on its Christian religiosity?

Some people don’t take me seriously, and they say things like, “You’re too nice to be a REAL atheist.” They mean it as a compliment, like when a racist tells a black person that he’s too smart to be all black. When people do take me seriously, that’s not usually so good either because they look at me as if my hobby was strangling puppies. A majority of Americans say that, if one presidential candidate was eminently qualified but was an atheist, whereas the other was appallingly unqualified but was a Christian, they would vote for the Christian.

If another pollster were to ask people who they hated more: atheists, child molesters, or serial killers; I’m not sure I would fare better than the other two. Ironically, atheists are typically (note that I'm emphasizing this word) better educated and have higher IQs than theists. They are also more likely to oppose war and torture, support universal healthcare, favor stem cell research, and work to defend civil liberties. The same holds true for religious liberals compared to religious conservatives. I surmise from this that the prejudice against atheists comes partly from America’s hatred of intellectuals. A country that elevates the common man is just naturally suspicious of uncommon people. Sarah Palin isn’t popular because she’s brilliant and learned.

What do you think made you an atheist?

When I was a boy in the South, I went to church three to four times a week and listened to preachers bash atheists, Communists, liberals, secular humanists, and godless professors, all to congregations in which most people left school after the eighth grade to work on the family farm. Such denouncements left me exceedingly intrigued by the ungodly, the moreso since I had never laid eyes on one or even knew where to look—preachers said they mostly lived up North. Preachers also opposed sending kids to “godless universities” (state run schools) because they might be converted to atheism. “Better to remain ignorant and save your soul than to become learned and be sent to the lake of fire that burns forever and ever.”

I thought that such statements contradicted the concept of a wise and loving God, but what really set me on the sliding board to hell occurred when I was eleven. Women weren’t allowed to teach Sunday school, and none of the men wanted to because they considered it unmanly, so the preacher taught Saturday school instead. On this particular Saturday, we were reading a section of the Old Testament in which God ordered the Jews to take away another people’s land. He told them to kill every man, woman, child, and animal who lived on that land, except for the virgins whom they could keep for themselves. I was devastated, and I asked the preacher how God could do such a thing. He seemed perturbed by my question, and suggested that I ask God when I got to heaven.

I thought this was an unconscionable copout, and I spent most of the following two decades trying desperately to find answers to an ever-growing list of questions that first led me to doubt God’s goodness and then his very existence. Sometimes, I would go into the woods and absolutely rail against God for ignoring my search for answers. Other times, I would try to make it easy for him by opening my Bible and pointing to a verse with my eyes closed in the hope that he would guide me that way. When the verse was so far off that there was no possibility of it being a message (something like, “Samson smote them hip and thigh with a great slaughter…”), I would try again. Even after becoming an atheist, I still wanted desperately to believe because I had been told from my earliest childhood that the life of a man who didn’t believe in God is miserable and pointless. It’s hard to get beyond that kind of indoctrination.

Did you ever?

I still feel a great deal of what you might call existential angst. I mean, life is scary. It comes, and, after a few short decades, it goes. I have trouble accepting the fact that all I am and all I love will soon perish. I want there to be more. Compared to the fundamentalist Christianity of my childhood, atheism is bleak. Yet, I simply can’t believe, and even if I could, the God of the Bible would still seem every bit as evil to me as Satan himself. I don’t think anyone really loves that God. What they do is to pick out verses that make him look far better than the Bible as a whole makes him look, and they cling to those verses and ignore the rest. Either that or they simply pretend to love him because they’re afraid of hell. As a small child, I would literally come home from church and hide under the bed for fear of the “righteous wrath of God.” One Sunday, my father and I stayed home and played checkers during a rainstorm, and I was scared out of my mind that God was going to drown us because we missed church.

Could it be then that it’s not really God you don’t believe in, but the fundamentalist version of God?

After age eleven, I just wanted to believe in God, period. At age fifteen, I started studying other religions with the hope they had information that would justify a belief in a benevolent deity. I literally visited every Christian denomination and every non-Christian worship service I could find, whether near home or sixty miles away in Jackson.

How does Peggy feel about you being an atheist?

Peggy doesn’t care what I am short of becoming a Moslem and trying to make her wear a burka. She grew up in a devout Southern Baptist household, but the day she left home at age 18 was the day she left church (she literally flunked chapel at the Baptist college her parents sent her too because she failed to show up once a week). Whereas I have been obsessed with religion in one way or another for my entire life, I can’t even get Peggy to talk about it. If I do bring it up, her eyes glaze over. I just know she doesn’t believe in the supernatural, yet she doesn’t consider herself an atheist. I think she might qualify as a pantheist, but she refuses to be labeled.

I don’t understand people like Peggy, but I’ll tell you something that might surprise you if you think nonbelievers are unethical. Peggy might very well be the most ethical person I’ve ever known. For example, after years of being shorted on her paycheck almost every single pay period, she was overpaid $1,400. I would have pocketed that money in a heartbeat to make up for the hours I had spent fighting for what was rightfully mine, but she returned it.

Have you ever felt personally persecuted for your atheism?

I lost the friendship of everyone I went to church with for my first eighteen years, and the way I was treated by religious people in general was a major reason that I left a home in Mississippi that I built and loved and moved to Oregon. I was also dismissed from jury duty once, but I can’t say whether it was because I told the judge I was unwilling to say, “So help me God,” when I took the juror’s oath, or because I told him I was unwilling to follow his instructions in reaching a verdict if they violated my conscience. Another time when I had jury duty, the woman behind me struck me on the back of the head because I refused to stand while the district attorney led the jury in prayer.

What did you do when the woman hit you?

I stayed in my seat until the same woman said, “You had BETTER stand up!” I stood up. I still lived in rural Mississippi at the time, and fear and paranoia had become such a big part of my life that I didn’t have the guts to remain true to my convictions. I would now. The more hostility I’ve experienced over the years, the more courage I’ve gained.

When someone wrote in response to my last post that’s it’s important to act in a godly manner even though I don’t believe in god, I remembered the woman who struck me. The person who wrote no doubt equates godly behavior with ethical behavior, whereas I think of godly people as arrogant, intolerant, hypocritical, and often downright mean.

That’s a bit harsh, don’t you think?

I speak the truth as I see it based upon how I have been treated as a nonbeliever. If you are a person of faith, your experience will be very different—as was mine. It’s like the difference between how blacks were treated by whites in the South of my boyhood versus how whites were treated by whites. When I see a religious person being loving, generous, compassionate, and so forth, I assume it’s despite their religion rather than because of it. Religious people are mostly clueless about how they appear to other people because they’re accustomed to thinking of themselves as the good guys and everyone else as the bad guys. If dividing people into sheep and goats—the way Christ did—isn’t the whole point of religion, it’s certainly a major point.

I mean, think about it. For most of its 2,000-year history Christians—Catholics and Protestants—tortured and murdered everyone they could get their hands on who disagreed with them. The pope didn’t decide that torturing people was wrong until the 1800’s, and even in the 1900’s at least one pope sent gifts to those who murdered his enemies. Of course, Christians today don’t seem the least bit bothered by all that. They’re like Moslems who see no irony in calling Islam “The Religion of Peace” despite the fact that people are murdered in the name of Allah everyday of the week. What religious people say they believe is often the exact opposite of how they behave.

How did your life change when you decided you really were an atheist?

I started looking around for like-minded people, and this led me to join American Atheists in 1982. I was thrilled to learn that there was both a North Mississippi Chapter and a South Mississippi Chapter until I discovered that Madalyn Murray O’Hair had padded the books somewhat, and that each of these chapters only contained one person. Paul Tirmenstein was a fit looking man in his eighties, and John Marthaler was obese and in his fifties (see photo). They were forever writing letters to their local newspapers slamming Christians about one thing or the other, and they both had pro-atheist bumper stickers all over the backs of their cars. People occasionally vandalized their cars—and John was even assaulted on a few occasions—but that just inspired them to add more stickers. It also inspired John to carry a cane with a brass handle.

I soon started writing my own letters to the newspaper, and was often amused by the responses. For example, I had people tell me that they supported my stand on school prayer. This surprised the hell out of me since I was totally opposed to it. I finally realized that they had completely misinterpreted my letter because they just naturally assumed I was in favor of school prayer like everyone else they knew.

I attended a couple of atheist conventions with John and Paul. The first one was held in Lexington, Kentucky, and we drove up in John’s old Toyota that leaned toward the driver’s side from the strain of carrying him around for 200,000 miles. I was sick with a cold during the trip, so I spent most of the drive trying to sleep in the back seat. I say trying because people were forever leaning out their windows and screaming profanities at us. This scared me pretty good, but it just made John and Paul laugh.

Kentucky was also a part of the Bible Belt, so we were stared at and cursed even inside the hotel where the convention was held. I couldn’t even enjoy my food because I didn’t trust the staff to not put filth in it. I still had a great time though because there were atheists there from all over the country, and this enabled me to regain a little of the fellowship that I lost when I stopped going to church.

I was warmly received by Madalyn O’Hair (see photo) because she was fond of something I had written for her magazine (I was later made a non-resident editor). In fact, she asked me to call her Grandma, and I got a real kick out of that, what with her being the “Most Hated Woman in America.” I was very sad when Madalyn, her son, Jon, and her granddaughter, Robin, were murdered. I had asked Robin at one point how she was able to handle being hated and even threatened by thousands of people, and she said she tried to not take it personally.

Paul and I drove to the next convention—in Austin, Texas—without John because John had gone early for some reason. It was after that convention that Paul killed himself. He had told me he was going to do it because (a) he was nearing the point that he could no longer live independently, and (b) he wanted his money to go to American Atheists instead of being spent on healthcare. He ended up using carbon monoxide because he didn’t have anything else. He had asked me to get pills for him, and I could have, but he had asked for them over the telephone, and I worried that my line was tapped. I later realized that this was unlikely, but it’s easy to become paranoid when you’re convinced that everyone hates you. Never one to waste anything, Paul donated his body to a medical school.

I came to have the deepest respect for the “evil atheists” that I had been warned against all my life. It’s easy to be true to your Christian beliefs when everyone around you validates them, but it takes real courage to uphold your values when you’re a reviled and isolated atheist who doesn’t imagine himself to be under divine protection or have heaven as his reward. When Christ said “wide is the gate and broad is the way that leadeth to destruction,” he sure wasn’t talking about atheists. In fact, the only people whom Christ consistently reviled were religious people, and the only people he consistently befriended were sinners. Of course, most of the religious people I know don’t appear to read too much into that.

2 down, 141 to go


I see that I just lost two long-term and devoutly religious followers, presumably due to my response to Just_because_today following my last post. I would have softened that response had I done as I often do, which is to go away and get myself into a better mood after writing something but before publishing it. I didn't though, and rewriting such things after they're published is of questionable benefit to those who have already received my first response in their email.

My goal in writing posts about controversial topics is not simply to preach to the choir. It is also to promote understanding among those who disagree with me. I am painfully aware that such people might very well hang in there—however tenuously—through several posts on a subject, and then leave because I expressed myself poorly in just one sentence in the response column. This leaves me feeling as if I'm walking on eggshells.

I'm sure some of you will wonder why the hell I even bother, and you might advise me to write whatever I please and let the chips fall where they may. My answer is that I find it far more interesting and constructive to communicate in a way that is true to my best thinking and that causes no more offense than I can avoid. It's a challenge that I mostly enjoy and from which I derive tremendous benefit, but because I work so very hard at it, I naturally feel badly when I fail. Of course, I also recognize that losing followers is inevitable. We all do it no matter what we write or how well we write it.

I would just ask those of you who disagree with me to cut me as much slack as you can. I am quite possibly familiar with your orientation in regard to religion, at least, because I have walked on both sides of the fence, but odds are that you know little if anything about mine. To this end, my next post on the subject won't contain rational arguments but personal experiences.

Does God exist? Why I think the answer is no.


If God does not exist, where did the universe come from?


It came from previously existing matter and energy in what’s called the Big Bang. Now, let me ask you, if God does exist, where did God come from?

God is eternal. This is part of what it means to be God.

You are saying that the universe had to come from somewhere, therefore God must have created it. Yet, you are also saying that God didn’t have to come from somewhere because he always existed. Why is it impossible for you to believe that energy and matter always existed, yet you have no trouble believing that God always existed? Wouldn’t God have to be far more complex than energy and matter and therefore in greater need of an explanation?

But there is also the problem of design. No machine that we can create is nearly so complicated as the human body, yet if you found so much as a watch on a deserted beach, you would know that someone HAD to have created it. Yet, you look at your own body, and insist that it just happened.

I don’t believe my body “just happened.” I believe it is the product of eons of organic evolution by natural selection. We can actually see organic natural selection in process and in the geological record, yet no one has found the least evidence that watches evolve through natural selection. Indeed, this is how we know that a found watch was created.

Does it not worry you that, even if you are right, it would be morally disastrous for society if everyone embraced atheism?

If atheists are immoral, why are there far more of them in universities than in prisons (93% of National Academy of Science members are atheists versus one-fifth of 1% of federal prison inmates), and why are those times and places where religion had its greatest influence infamous for ignorance and cruelty?

Even so, it would seem at least plausible that the fear of eternal punishment would lead many people to behave better than they otherwise would.

I am unaware of any evidence to support the belief that vast numbers of people would suddenly go out and commit crimes were they to become atheists. In fact, I don’t know of even one person who was ever harmed in the name of atheism. It’s the people who act in God’s name that scare me. Look at the Middle East today, and you will get a pretty good idea of how Christians behaved for most of their 2,000-year history.

But why wouldn’t atheists be more likely to behave badly?

They would risk being sent to prison for one thing. I also suspect that much of our morality evolved right alongside our other characteristics. For example, I would be astounded to learn that many of us harbor a secret desire to hit people over the head and steal their money. Whenever someone tells me that the only thing that keeps us all from running amuck is that we’re afraid of hell, I wonder if he’s telling me that he would run amuck if he wasn’t afraid of hell. If he is, then I’m glad he’s afraid. As for most people, I think it is their nature to behave well more often than not. Unfortunately, it’s bad behavior that makes the news. Can you imagine a newscaster saying, “937,000 Americans let another motorist change lanes in heavy traffic today”?

If God does not exist, why do so many people believe in him?

People generally believe whatever they were taught from their earliest childhood. This is why most Americans are Christians and most Indians are Hindus.

But if most people in every part of the world have always believed in God, doesn’t that in itself prove his existence?

Prior to the blossoming of scientific knowledge, a belief in God wasn’t logically justified, but it was readily understandable. Now that science has explained many of nature’s more obvious mysteries, I suspect that there are more atheists. However, people’s belief in God goes beyond an attempt to understand nature. It also offers emotional comfort in time of sickness, death, or other loss, and this is why it is harder to give up than, for example, the belief that the sun revolves around the earth.

Even so, science can’t explain everything.

That is true. Maybe someday it can, but I doubt it.

Doesn’t this leave the door open to a belief in God?

“God did it,” has always been what people said about a phenomenon that they didn’t understand. Take lightning, for example. Now that we know that lightning is caused by the attraction between positive and negative electrical charges, we give that as the answer when a child asks what causes lightning. If everyone who came before us had settled for “God did it” as an explanation for natural phenomena, we would know little more than we did thousands of years ago.

But you can’t prove God doesn’t exist.

No, but neither can I prove that invisible Martians don’t inhabit my clothes dryer or that my schnauzer doesn’t speak German when he’s alone with other schnauzers. The person who claims that something is true is the one who is obligated to prove it.

If there was no God, there could be no guarantee of justice. People could do horrible things and get away with them.

If there is a God, there can still be no justice. Take the story of Job. His family was killed, his wealth was taken away, and his body was afflicted with boils. His family and wealth were later replaced, and his body was made whole again. Do you imagine that this made up for the injustice he suffered? The only way that justice could really be served would be for injustice to never exist.

You spoke of the emotional comfort that a belief in God brings. Do you not feel a lack of this in your own life?

Yes. Not all atheists do, but I do. Believers often speak of belief as if it were a choice, but I see no evidence that this is true. Certainly, it has not been true in my own life. I grew up believing, and I struggled desperately to hold onto my belief when it began to slip away at age eleven or twelve. But no matter how much comfort I thought it would bring me, I was unable to accept with my heart that which seemed absurd to my mind.

Without God, for what possible purpose do any of us exist?

Without God, there can be no ordained purpose. This is not to say that our lives can have no purpose but that it is up to us to give them a purpose.

Yes, but any purpose we find will be transitory.

This is true, but then our lives and the lives of all those for whom we might do good are also transitory. This means that whatever good I do can be extremely beneficial when measured by the scale of human, animal, or even plant life. It also means that the evil I do can be extremely harmful. I know of no stronger argument for doing good than that our lives are but a flicker against the darkness of eternity.

The Wait

Monday, April 5: I see my internist (Kirk) for my yearly physical and tell him about the sunburn-like pain in my lower leg bones. He thinks it’s the early stage of a rare and devastating disease called CRPS (chronic regional pain syndrome), and orders a bone scan. I know someone with CRPS, and have often comforted myself with the thought that, as bad off as I am, at least I don’t have THAT. I learn from the Internet that the disease is progressive and incurable in the absence of early treatment or spontaneous remission. I also read:

“At an advanced stage of the illness, all patients develop significant psychiatric problems and narcotic dependency, and are left completely incapacitated. Some commit suicide.”

Deborah M. Shanley
Executive Director
International Research Foundation for RSD/CRPS

I’m scared shitless.

Thursday, April 8: The bone scan people haven’t called to schedule an appointment, so I call Kirk’s office. Trinity tells me that the paperwork is in process.

Friday, April 9: I call again, and again Trinity tells me that the paperwork is in process. I ask to speak to whoever is handling “the paperwork,” and I get Casey’s voice mail. I leave a message, but she never calls back.

Monday April 12: Trinity tells me the same thing, so again I ask to speak to Casey. I leave a second message on her voice mail. Becky calls back, and repeats the line about paperwork in process. When I ask “what paperwork?” she says Kirk’s signature. “When will he sign it?” I ask. She says she doesn’t know, that Casey is in charge.

Tuesday April 13: I call a fourth time and am told the same thing.

Wednesday April 14: I set my alarm so I can be there when Kirk’s receptionist opens the door at 7:00. I hand her a letter marked “please deliver immediately.” In it, I remind Kirk that this is a very serious disease, that treatment within the first three months is vital, and that my symptoms appeared two months ago. When I don’t hear anything by noon, I call the bone scan office and make an un-referred appointment for the next afternoon, which I anticipate having to pay for myself.

That night, I read on the Internet that a special kind of bone scan (called a triphasic) is the diagnostic test of choice, but my appointment is for a Dexascan, which is the only kind I knew existed. I call Kirk’s office the next morning to ask what kind he ordered. Becky says he ordered a Dexascan. I ask if she is certain, and she says yes. “Why has it taken so long for an urgent referral to go through that I had to order my own test?” I ask. She says that Kirk didn’t mark it as urgent and implies that, as a result, all my efforts to speed things along were wasted. The pain has now spread into my thighs.

Thursday, April 15: I get my Dexascan, and learn from the technician that it is almost certainly the wrong test. I anticipate changing doctors, but I’ve been with Kirk fifteen years and have always considered him a caring doctor and an excellent diagnostician, albeit one with a sometimes difficult staff. Also, it’s a sorry-ass time to start with someone else, so I make an appointment to see him the next day.

Friday, April 16: I ask Kirk if he got my letter. He says he didn’t, so I tell him that I gave it to the receptionist who, as I had since learned, gave it to Becky who gave it to Casey. He apologizes repeatedly and effusively, promises that such a thing will never happen again, and goes looking for the letter. Casey has it.

He reads the letter in my presence, and notices that Casey had me down for the wrong test. I WAS supposed to get a triphasic scan. I ask how soon he can arrange the test, and he says he will shoot for Monday. He calls the nuclear imaging department at the hospital, and they tell him that I will have to wait until late next week at the earliest because the radioactive isotopes used for the test have to be ordered fresh from Iceland. I ask him if I can get it done sooner at Oregon Health Sciences University in Portland. He says no, that they would still have to order the isotopes fresh.

I point out that the isotope test is inaccurate 55% of the time, and suggest that he go ahead and start treatment based upon his tentative but confident diagnosis. He says the treatment might foul up the test results. He also disputes the idea that there exists a three-month window.

I tell him that I got my physical therapist to send a referral to a pain management specialist since I anticipated an anesthesiologist or a neurologist overseeing my CRPS treatment anyway, and that I had already made an appointment. He approves of the clinic to which my physical therapist referred me.

I say that I would prefer a disease that would kill me to one that might force me to kill myself. He advises that I not focus on the worse-case scenario.

Eleven days after I first saw Kirk, the wait for the right bone scan begins again.

Aussie women do it like dingoes


The following is a quote I included in my last post regarding my sorry situation. Following it are questions from my readers, which I have ever so thoughtfully answered.

“At an advanced stage of the illness, all patients develop significant psychiatric problems and narcotic dependency, and are left completely incapacitated. Some commit suicide.”

Reader one wants to know: Which of these things are you looking forward to most?

My response: I’ve always heard that there are no dumb questions, but you’re skirting the cliff edge. You might as well ask kids at a birthday party to choose between cake and ice cream.

Reader two asks: How will we be able to tell when you develop psychiatric problems—you already act pretty weird?

My response: If you’re normal, and you go crazy, people can tell it pretty easily. If you’re crazy and you go crazy, the two crazies cancel one another out, and you become normal. But, if you add another crazy to the two you already have, you’re back to where you started.

Reader three is wondering: It says you become a druggie, and then you become completely incapacitated. Do the drugs make you incapacitated, or does the pain make you incapacitated?

My response: The pain makes you roll around on the floor and scream a lot. The drugs knock you on your bum so that you don’t move or make a sound. Either way, you’re not going to be out training for the Olympics.

Reader four: Are you going to commit suicide now or wait a few days?

I’m not going to do it for quite some time. Instead of focusing on how much I hurt, I’m going to focus on booze, cigars, dark chocolate, and cream-filled donuts—all at the same time. I’ve indulged in these things all too little, and I’ll be making up for lost time.

Reader one again: Do you think you’ll die recanting your infidelity and begging Jesus to forgive you like most stupid atheists?

I don’t think so unless I’m running a really high fever on a really hot day, and the air conditioner breaks. In such a situation, I might think my feet are hanging over “the lake of fire that burns forever and ever,” and start recanting. Of course, if I come to my senses in the midst of recanting, I would naturally have to de-recant. Then if I became delirious all over again, I would probably re-de-recant. By the time I finally died, even Jesus wouldn’t know where I was supposed to end up.

Reader five: Have you heard the rumors that having sex with a different woman everyday for only a month (six at most) will bring about a complete remission?

Yes, I started them. Women are forever telling me how much they want to help and how badly they feel because they can’t help, so this was my way of cheering them up. Then I remembered my lesbian and male friends, so I started another rumor to the effect that large gifts of money would cause a remission. So far, I haven’t gotten my first screw or my first dollar, and I’m starting to think that my friends didn’t really mean what they said. I’m really bummed about this, especially in the case of Australian women who are said to screw like dingoes. I’ve seen dingoes screw, and they’re even more athletic than Arctic Foxes (Canucks) or coyotes (Yanks). Of course, given my condition, maybe an old and arthritic daschund would be about all I could safely handle.

Reader six: Do you think that maybe the woman who wrote that thing at the top of the page was maybe just funning people—like for a really bad April Fool’s joke or something?

Well, you never know. I always thought World War II was an April Fool’s joke that went a little overboard, so it’s certainly possible.

Reader two again: Have you considered giving up your constant bitching and whining, and trying to be an inspiration and a role model to other sufferers and to the world at large?

I hadn’t thought about it—is there money to be made for that sort of thing, or a Nobel Prize even? Since it would be hard for me to work at an ordinary job, being brave for money might be a great career move. I could even be on reality TV, where I would grimace a lot so people would know I was in horrible pain, but then I would smile through the grimace so they would know I was bearing up bravely. I could also say soul-wrenching things like:

“Take it from one who is dying, one who’s only remaining dream is that you might learn from my misery and suffering so that you will be better able to enjoy the kind of rich and rewarding life that I’m getting screwed out of for no good reason. So, my friends, here are today’s words to live by: Don’t forget to turn the compost every few weeks if you think of it, and be sure to give the dog extra water on hot days unless you’re too busy getting drunk. That’s all for today, but I’ll be back tomorrow, if I’m still alive. Until then, keep remembering that you’ve got youth, health, looks, and money, and all I’ve got is old age and misery, so I hope you’re awfully, awfully, awfully happy.”

Things could be worse—I could be in the end stage of this disease.

I study the causes of pain because after two shoulder surgeries in one year, my pain is far worse than it was—and spreading—and my surgeon doesn’t know why. During my studies, I have occasionally come across RSD/CRPS (Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndrome). I’ve found strange comfort in its nightmarish nature because when my own hurting was at its worst, I could always tell myself, “I might be bad-off, but at least I don’t have that.”

Well, it looks like I do. At least, my internist thinks so. Usually talkative, he articulated the dreaded acronym and walked out without another word. I have no idea what he was thinking. I'm now awaiting a bone scan.

“At an advanced stage of the illness, all patients develop significant psychiatric problems and narcotic dependency, and are left completely incapacitated. Some commit suicide.”
Deborah M. Shanley
Executive Director
International Research Foundation for RSD/CRPS

I don’t see suicide in my future, although I think about it all the time—you might even say I’m obsessed with it. I don’t even see narcotics in my future unless my doctors can give me something that works a whole lot better than Demerol, Dilaudid, Percocet, Vicodin, and Norco, none of which helps enough to justify the side-effects.

But what DO I see in my future? Sometimes, the most cheering thought that I can come up with is that I’ll probably be dead in another couple of decades if I can but hang in there. It’s not a sunshine and lollipops sort of thought certainly, except in a “jump off a skyscraper to avoid being burned to death” kind of way.

So far at least, the pain is not so overwhelming, but what I can often enjoy my time with Peggy, and nothing means more than that. I get support from two places—her and my fellow bloggers. A few local friends try to be helpful, but they truly don’t have a clue, and when we’re together, it’s ever in my mind that I still look healthy. If I were they, I might very well be saying to myself that, surely, the problem just can’t be THAT bad.