I see my new neurosurgeon tomorrow to hear her thoughts about a spinal biopsy. Peggy is sick with worry and can’t understand why I am not. I tell her that my biggest fear is pain; my second fear is disability; and my last fear is death. I still have hope that I can stop the pain. The other two fears may or may not be realized, but pain is the only one I don’t think I can handle, yet it is the only one I am having to handle.
Permanent and unalterable pain would, in all likelihood, lead me to suicide. I should imagine that Peggy could better survive my demise if it wasn’t voluntary, and that is one reason I fear a fatal illness less than I fear pain. In the face of unalterable pain, a fatal illness would be a godsend. In the absence of a fatal illness, I might feel it necessary to continue my life on Peggy’s account alone.
I just hope I have time to finish editing my writing. When everything has been added to my blog, I will create a synopsis. Whether I am gifted at recording my life on paper, I cannot say, but there it is, the exemplary and the shameful, the trivial and the profound, the sane and the crazy, the boring and the entertaining; a quarter of a century worth. Very little will be left out; it will just be cleaned up for the sake of readability. I entertain little hope that anyone will be interested in it, and I can’t even think of a compelling reason why they should be, but such considerations are of no great importance; only the work is important.
If I had the wherewithal, I would seek publication, but that would mean taking topically oriented portions of what I have written out of journal form and putting them into chapter form. Next would come working with others to make my work saleable. I do not say that this is a low end, it is just not an end that I can see my way to accomplishing.
I’m tripping today, and I haven’t even taken any mind-altering medications since last night. I don’t altogether like the feeling because it’s too near the outer edge of control. I’ve been here before, and I know that all I have to do is ride it out as if I were a surfer…. I feel tired, cold; every thought and every fact seems equally and unbearably profound; every object looks equally distant. It is a very old feeling; it puts me in touch with my childhood, as if what I feel now, I felt then, and what I felt then, I feel now; as if time hasn’t moved, as if my whole life is happening at once, and I’m observing my life through eyes that aren’t entirely my own.
I think my present state comes from being too inwardly focused. I’m not taking on projects, not seeing people, not exercising, and not leaving home except to run errands; my mind is feeding on itself. I am tempted to stop surfing, to lie back and see what will happen, how bad it will get, and then to see what lies beyond how bad it will get. When we come to an intersection, are we really free to choose which way we go?
Christmas songs I wish had never been written
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* ...include, in no particular order: "Grandma Got Run Over By A Reindeer"
"I Want A Hippopotamus For Christmas" "Rudolph, The Red-Nosed...
2 comments:
'I entertain little hope that anyone will be interested in it, and I can’t even think of a compelling reason why they should be, but such considerations are of no great importance; only the work is important.'
I'm sure your writing would be of great interest and in many ways comfort to others in pain, finding out you're not alone in that, and that there is such diversity in experiences can really help people. Why not try posting a link to your writing, when you're ready to, on forums for people who have either similar complaints (complaints...what a term for it, as though it's on a par with a parcel being lost in the post), or are simply looking for others who are in pain. I haven't been to any myself as I have other ways of dealing with it, but I have found your blog has given me a connection I appreciate.
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