Peggy’s doctor failed to order the patient
controlled narcotic pump he promised, so her pain level was six and rising
when I reached the hospital at 7:00 p.m. Friday. While walking
the stairs to the seventh floor, I got the call that my sister, Gay, had
died, but didn’t answer it.
Peggy is not one to cry wolf, but Sophie, her busy and distracted nurse, had to be reminded repeatedly to call Peggy’s doctor, and even then we couldn’t be sure that she had done so because she was nowhere to be found. By 8:00 o’clock, Peggy’s post-surgical anesthetic had worn off, and she was crying and moaning. I called Peggy’s doctor myself, but his answering service wouldn’t put me through because, “Your wife’s nurses are supposed to control her pain, and if they can’t, it’s their responsibility to call her doctor.”
Peggy then demanded to see a hospitalist (a doctor on staff at the hospital), but was told that her surgeon hadn’t okayed it. Twenty minutes later, Sophie brought her two oxycodone tablets which Peggy refused to take, saying that they weren’t nearly enough; that her nasogastric tube made it impossible to swallow; and that she’s 74-years-old and has trouble swallowing pills on her best days. When Sophie offered to turn her tube off and kept urging her to “give the pills a chance,” Peggy asked to speak to the unit’s charge nurse. A half hour later, Sophie injected morphine into Peggy’s IV, and her pain level slowly dropped to 3.5. At 9:00 o’clock, Melissa, the charge nurse, came by to say that Peggy’s doctor-on-call had ordered a Dilaudid-powered pain pump and had authorized an IV injection of Dilaudid to tide her over until the pump was installed (Dilaudid is many times stronger than morphine).
I’ve spoken to Peggy twice today, but won’t visit her until tomorrow unless some new calamity arises. Although I spent much of today sleeping, I’m as tired now as when I went to bed last night. I am also finding it ever harder to power my way through situations that I can’t do much to remedy. Peggy told Melissa that she didn’t blame Sophie for the fact that she had spent two hours in horrific pain, but I mostly remember Sophie repeatedly saying “I’ll be back in just a minute,” before disappearing down long and empty corridors for twenty minutes at a time as Peggy’s pain worsened. Assaults on healthcare providers are a growing problem in America, and I had fleeting fantasies of running amuck myself because of Sophie’s emotional detachment. God help anyone who trusts her caregivers to stay on top of things.
Since coming home, I’ve bounced between obsessing both over Gay’s death and the world’s suffering, especially the suffering of animals in vet clinics who can’t tell their providers how much they hurt, and of wild animals who have no providers. During America’s Civil War, the Union blockade made it impossible for the South to import morphine with which to ease the pain of wounded soldiers (among them my relatives), and then there were the thousands of wars that were fought before morphine even existed. Peggy suffered increasing agony for two hours, yet I never lost faith in the thought that, if we persisted, she would eventually receive the help she needed even if I had to knock on doctors’ doors at midnight, but what if she had been in Gaza? What happens when the unbearable must be borne? Where is the justice? Where is the mercy? Even if a case could be made that our sorry species—from infancy on—deserves to suffer, how does this justify the suffering of dogs, cats, and polar bears? People who are more religious than myself have much to explain.
Peggy is not one to cry wolf, but Sophie, her busy and distracted nurse, had to be reminded repeatedly to call Peggy’s doctor, and even then we couldn’t be sure that she had done so because she was nowhere to be found. By 8:00 o’clock, Peggy’s post-surgical anesthetic had worn off, and she was crying and moaning. I called Peggy’s doctor myself, but his answering service wouldn’t put me through because, “Your wife’s nurses are supposed to control her pain, and if they can’t, it’s their responsibility to call her doctor.”
Peggy then demanded to see a hospitalist (a doctor on staff at the hospital), but was told that her surgeon hadn’t okayed it. Twenty minutes later, Sophie brought her two oxycodone tablets which Peggy refused to take, saying that they weren’t nearly enough; that her nasogastric tube made it impossible to swallow; and that she’s 74-years-old and has trouble swallowing pills on her best days. When Sophie offered to turn her tube off and kept urging her to “give the pills a chance,” Peggy asked to speak to the unit’s charge nurse. A half hour later, Sophie injected morphine into Peggy’s IV, and her pain level slowly dropped to 3.5. At 9:00 o’clock, Melissa, the charge nurse, came by to say that Peggy’s doctor-on-call had ordered a Dilaudid-powered pain pump and had authorized an IV injection of Dilaudid to tide her over until the pump was installed (Dilaudid is many times stronger than morphine).
I’ve spoken to Peggy twice today, but won’t visit her until tomorrow unless some new calamity arises. Although I spent much of today sleeping, I’m as tired now as when I went to bed last night. I am also finding it ever harder to power my way through situations that I can’t do much to remedy. Peggy told Melissa that she didn’t blame Sophie for the fact that she had spent two hours in horrific pain, but I mostly remember Sophie repeatedly saying “I’ll be back in just a minute,” before disappearing down long and empty corridors for twenty minutes at a time as Peggy’s pain worsened. Assaults on healthcare providers are a growing problem in America, and I had fleeting fantasies of running amuck myself because of Sophie’s emotional detachment. God help anyone who trusts her caregivers to stay on top of things.
Since coming home, I’ve bounced between obsessing both over Gay’s death and the world’s suffering, especially the suffering of animals in vet clinics who can’t tell their providers how much they hurt, and of wild animals who have no providers. During America’s Civil War, the Union blockade made it impossible for the South to import morphine with which to ease the pain of wounded soldiers (among them my relatives), and then there were the thousands of wars that were fought before morphine even existed. Peggy suffered increasing agony for two hours, yet I never lost faith in the thought that, if we persisted, she would eventually receive the help she needed even if I had to knock on doctors’ doors at midnight, but what if she had been in Gaza? What happens when the unbearable must be borne? Where is the justice? Where is the mercy? Even if a case could be made that our sorry species—from infancy on—deserves to suffer, how does this justify the suffering of dogs, cats, and polar bears? People who are more religious than myself have much to explain.
The photo to the left was made of myself, my half-sister, Anne, my half-brother, Jim, and my sister, Gay, on the day of our Mother’s funeral in 1988. I’m
leaving the arrangements for Gay’s funeral to our eighty-eight year old
sister, Anne, although when she guessed Gay’s age for an obituary, she
was off by twenty years. It’s easy to tell myself that I should be doing
more for Anne—and for Peggy—but making myself follow-through seems
impossible when I can’t seem to stay out of bed. Today, though, I feel
better than I did yesterday, and I will stay out of bed.
It is now Sunday, and Peggy’s throat had recovered
enough from being intubated that she no longer talks like Gay, a
55-year smoker. I will now breakfast, shower, and pay her a visit.
Diego’s plans to send Peggy home today (Monday) had to be cancelled when her
always low blood pressure suddenly went high, so now I have no idea when she can come home. For her
part, she wants to stay in the hospital another night because she
worries that the BP meds will drive her pressure so low that she will
become dizzy.
14 comments:
I’m so sorry for the loss of your sister.
Your really being bombarded with stress and sadness right now.
I’m so very glad they finally got Peggy’s pain under control.
If your nurses are anything like ours they’re very understaffed and over worked. That’s not an excuse it it helps to remember that they’re not just ignoring you
I can't even think of what to say. The whole pain meds issue has me so angry. Like you it makes me think of those who can't advocate for themselves. I am sending you guys all the positive energy right now.
What did the doctor say about the outcome of the surgery?
I am sorry about your sister’s passing. So unnecessary
A nice photo of her in her younger days
When my daughter was ten, she had surgery and the recovery was very painful. She was deemed too young for the push button morphine drip. When her drugs wore off, she would writhe in pain. I would call the desk and would be told..just a minute. After being told this ten times, I went to the front desk to ask for the nurse. I found her in a room drinking coffee I was furious. I said you are drinking coffee while my daughter has been screaming in pain for a half hour…do your fucking job
Did not make a whole lot of friends there but no one wants to see their loved ones suffer unnecessarily. Also could never leave her as I could not trust them to take care of her so I understand your anger at Peggy’s pain being ignored
Did the surgery accomplish what was needed?
Sue from Escape from Cancerland
It is good to know Peggy went through the surgery like a champ. I don't know what treatment they have planned for her now. Hopefully it will be short and effective. Best wishes to both of you.
I haven't blogged for ages so I'm way behind with things. I'm so sorry to hear all your sad news like the saying "It never rains but it pours". You must be mentally & physically exhausted.
I hope & pray that Peggy is getting better treatment now bless her & hope things improve for her and for you.
Sad to hear about your sister, love that photo of her flying along on her bike with her hair streaming in the breeze. A lovely memory. Was that a Chopper bike? Don't feel badly Snow, you have so much on your plate at the moment you can only do what you can.
Take care of yourself, keep your strength up for Peggy.
Peggy has been on my mind today. How are things going? Peggy, I am not the only one thinking of you. Feel more like yourself each day. Snow, stay strong and take a few minutes for yourself. It will renew you and help you take care of your wife the way you want to.
"If your nurses are anything like ours they’re very understaffed and over worked."
Peggy's post-surgical nurse had five patients, which Peggy assures me is a lot.
"Like you it makes me think of those who can't advocate for themselves."
Theodicy is the vindication of divine goodness in view of the existence of evil, and every attempt to do this that I know of is a joke. I don't discuss this at church because I know that there is no valid answer, although it bothers me that so few believers appear to question what it is to be a screamingly obvious contradiction that demands an explanation.
"What did the doctor say about the outcome of the surgery?"
Ellen, I will assume that you have read the next post.
" I would call the desk and would be told..just a minute. After being told this ten times..."
If "I'll be back in just a minute," isn't true, then it's either a mistake or a lie, so when we were told "I'll be back in just a minute," multiple time I stopped believing it was a mistake.
"I don't know what treatment they have planned for her now."
This week will tell.
"You must be mentally & physically exhausted."
I an finding it ever harder to stay out of bed.
"Was that a Chopper bike?"
I suppose it was. It was the only bike she ever owned, and I don' think the the seat was ever raised.
"Snow, stay strong and take a few minutes for yourself. It will renew you and help you take care of your wife the way you want to."
Thank you. Peggy's sisters, Dianne and Pam, took the opposing view, saying that I have no right to think of myself when my wife has cancer. You might think that such stupid women would follow their own advice, but that wasn't what happened when the daughter of one of them became seriously ill.
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