We are besieged by nutria, which I have been dutifully chasing away. Last week, one growled and feinted toward me before running away. I’ve since been carrying a square-pointed shovel with which to better intimidate nutria. The next time one growled and moved in my direction, I threw the shovel, the point of which hit him in the hip. As he limped away, I picked the shovel up to finish him off, but I couldn’t go through with it. Peggy’s struggle to live has so sensitized me to how beautiful life is and how fragile our bodies are that I’ve become a different person. I felt such remorse for injuring the nutria that I briefly contemplated getting a live-trap and taking him to the vet, but Oregon law requires that nutria be euthanized as a destructive species.
Peggy’s last CA-19-9 test was higher despite being back on chemo. If next week’s results are even higher, she will stop chemo. Various people have asked whether she has access to the new treatment for pancreatic cancer. No, she does not. The drug will almost certainly be FDA approved in late 2026, but Marc (her oncologist) says she will be dead by then. He’s trying to get her early access to the new drug on the basis of “compassionate use” whereby an unapproved medication can be given to someone who will die without it. The application process will take the better part of two months, and we’re three weeks into it.
Peggy’s pain is increasing along with her anger at the delay in getting the new drug, and her hopelessness over the fact that the cancer has spread to her liver. She has also lost weight. Soon after she was diagnosed, she saw an emaciated woman at the cancer center and expressed horror that she too might look like that someday. The prospect of death hangs heavy between us, and we want her to die at home. If she so deteriorates that I cannot care for her at home, we want her to be brought here if she decides to end her life. All our hopes are pinned on this new drug; we don’t know if she can get it; and we’re both concerned that her death could kill me too.
We are badly in need of the help of my church, but I’m sad to say that the church shows little interest in helping. After I stopped attending in January in order to protect Peggy from infection as she awaited two surgeries, I missed the loving community that I had experienced. To regain some of what I had lost, I emailed the thirty members of the church’s men’s group to tell them of Peggy’s illness and of my reason for missing church. Not a single man responded. I also emailed ten or more other people who had been particularly friendly to me, but only one of them responded. Because some people at church receive an outpouring of love during hard times, I can but conclude that Peggy and I are unimportant because I only started attending a year ago, and have had to stay home for the past six months in order to protect her from infection as she prepared for two surgeries. However, the two active priests and the retired priest have been very loving, and Bob and Tom, two of the men whom I met at church, have also promised to be there for us.
All our hopes are pinned on this new drug, yet we already know of two people who died while waiting.
All is not quiet on the Western front
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*While you have been waking and sleeping and going about your daily
routine, things have been happening on the Western front, which is what I ...
4 comments:
My dear Lowell,
Things are, indeed, looking grim. At this stage they really need to throw the new drug at her without regard for consequence.
I like that you are planning for Peggy's end of life. Knowing what might happen and how you might meet it reduces trauma and allows you both to eke what love and meaning you can from the experience.
Love to you both
Kylie
I'm sorry to say this, but it really seems you have to prepare for the worst outcome. Make Peggy's last days calm and easy.
Of course you and Peggy are important to the world. You are simply beaten down by your circumstances. I hate that she has to go through all this. It is just as hard for you when you feel helpless to make it better for the person you love. I am hoping for good results with you.
At times like this, it is hardest to say "Hang in there" and even harder to hear it. So all I will say is - sending you love and hugs from here. Please know that you and Peggy are loved and prayed for. I wait for your updates.
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