The Wait

Monday, April 5: I see my internist (Kirk) for my yearly physical and tell him about the sunburn-like pain in my lower leg bones. He thinks it’s the early stage of a rare and devastating disease called CRPS (chronic regional pain syndrome), and orders a bone scan. I know someone with CRPS, and have often comforted myself with the thought that, as bad off as I am, at least I don’t have THAT. I learn from the Internet that the disease is progressive and incurable in the absence of early treatment or spontaneous remission. I also read:

“At an advanced stage of the illness, all patients develop significant psychiatric problems and narcotic dependency, and are left completely incapacitated. Some commit suicide.”

Deborah M. Shanley
Executive Director
International Research Foundation for RSD/CRPS

I’m scared shitless.

Thursday, April 8: The bone scan people haven’t called to schedule an appointment, so I call Kirk’s office. Trinity tells me that the paperwork is in process.

Friday, April 9: I call again, and again Trinity tells me that the paperwork is in process. I ask to speak to whoever is handling “the paperwork,” and I get Casey’s voice mail. I leave a message, but she never calls back.

Monday April 12: Trinity tells me the same thing, so again I ask to speak to Casey. I leave a second message on her voice mail. Becky calls back, and repeats the line about paperwork in process. When I ask “what paperwork?” she says Kirk’s signature. “When will he sign it?” I ask. She says she doesn’t know, that Casey is in charge.

Tuesday April 13: I call a fourth time and am told the same thing.

Wednesday April 14: I set my alarm so I can be there when Kirk’s receptionist opens the door at 7:00. I hand her a letter marked “please deliver immediately.” In it, I remind Kirk that this is a very serious disease, that treatment within the first three months is vital, and that my symptoms appeared two months ago. When I don’t hear anything by noon, I call the bone scan office and make an un-referred appointment for the next afternoon, which I anticipate having to pay for myself.

That night, I read on the Internet that a special kind of bone scan (called a triphasic) is the diagnostic test of choice, but my appointment is for a Dexascan, which is the only kind I knew existed. I call Kirk’s office the next morning to ask what kind he ordered. Becky says he ordered a Dexascan. I ask if she is certain, and she says yes. “Why has it taken so long for an urgent referral to go through that I had to order my own test?” I ask. She says that Kirk didn’t mark it as urgent and implies that, as a result, all my efforts to speed things along were wasted. The pain has now spread into my thighs.

Thursday, April 15: I get my Dexascan, and learn from the technician that it is almost certainly the wrong test. I anticipate changing doctors, but I’ve been with Kirk fifteen years and have always considered him a caring doctor and an excellent diagnostician, albeit one with a sometimes difficult staff. Also, it’s a sorry-ass time to start with someone else, so I make an appointment to see him the next day.

Friday, April 16: I ask Kirk if he got my letter. He says he didn’t, so I tell him that I gave it to the receptionist who, as I had since learned, gave it to Becky who gave it to Casey. He apologizes repeatedly and effusively, promises that such a thing will never happen again, and goes looking for the letter. Casey has it.

He reads the letter in my presence, and notices that Casey had me down for the wrong test. I WAS supposed to get a triphasic scan. I ask how soon he can arrange the test, and he says he will shoot for Monday. He calls the nuclear imaging department at the hospital, and they tell him that I will have to wait until late next week at the earliest because the radioactive isotopes used for the test have to be ordered fresh from Iceland. I ask him if I can get it done sooner at Oregon Health Sciences University in Portland. He says no, that they would still have to order the isotopes fresh.

I point out that the isotope test is inaccurate 55% of the time, and suggest that he go ahead and start treatment based upon his tentative but confident diagnosis. He says the treatment might foul up the test results. He also disputes the idea that there exists a three-month window.

I tell him that I got my physical therapist to send a referral to a pain management specialist since I anticipated an anesthesiologist or a neurologist overseeing my CRPS treatment anyway, and that I had already made an appointment. He approves of the clinic to which my physical therapist referred me.

I say that I would prefer a disease that would kill me to one that might force me to kill myself. He advises that I not focus on the worse-case scenario.

Eleven days after I first saw Kirk, the wait for the right bone scan begins again.

Aussie women do it like dingoes


The following is a quote I included in my last post regarding my sorry situation. Following it are questions from my readers, which I have ever so thoughtfully answered.

“At an advanced stage of the illness, all patients develop significant psychiatric problems and narcotic dependency, and are left completely incapacitated. Some commit suicide.”

Reader one wants to know: Which of these things are you looking forward to most?

My response: I’ve always heard that there are no dumb questions, but you’re skirting the cliff edge. You might as well ask kids at a birthday party to choose between cake and ice cream.

Reader two asks: How will we be able to tell when you develop psychiatric problems—you already act pretty weird?

My response: If you’re normal, and you go crazy, people can tell it pretty easily. If you’re crazy and you go crazy, the two crazies cancel one another out, and you become normal. But, if you add another crazy to the two you already have, you’re back to where you started.

Reader three is wondering: It says you become a druggie, and then you become completely incapacitated. Do the drugs make you incapacitated, or does the pain make you incapacitated?

My response: The pain makes you roll around on the floor and scream a lot. The drugs knock you on your bum so that you don’t move or make a sound. Either way, you’re not going to be out training for the Olympics.

Reader four: Are you going to commit suicide now or wait a few days?

I’m not going to do it for quite some time. Instead of focusing on how much I hurt, I’m going to focus on booze, cigars, dark chocolate, and cream-filled donuts—all at the same time. I’ve indulged in these things all too little, and I’ll be making up for lost time.

Reader one again: Do you think you’ll die recanting your infidelity and begging Jesus to forgive you like most stupid atheists?

I don’t think so unless I’m running a really high fever on a really hot day, and the air conditioner breaks. In such a situation, I might think my feet are hanging over “the lake of fire that burns forever and ever,” and start recanting. Of course, if I come to my senses in the midst of recanting, I would naturally have to de-recant. Then if I became delirious all over again, I would probably re-de-recant. By the time I finally died, even Jesus wouldn’t know where I was supposed to end up.

Reader five: Have you heard the rumors that having sex with a different woman everyday for only a month (six at most) will bring about a complete remission?

Yes, I started them. Women are forever telling me how much they want to help and how badly they feel because they can’t help, so this was my way of cheering them up. Then I remembered my lesbian and male friends, so I started another rumor to the effect that large gifts of money would cause a remission. So far, I haven’t gotten my first screw or my first dollar, and I’m starting to think that my friends didn’t really mean what they said. I’m really bummed about this, especially in the case of Australian women who are said to screw like dingoes. I’ve seen dingoes screw, and they’re even more athletic than Arctic Foxes (Canucks) or coyotes (Yanks). Of course, given my condition, maybe an old and arthritic daschund would be about all I could safely handle.

Reader six: Do you think that maybe the woman who wrote that thing at the top of the page was maybe just funning people—like for a really bad April Fool’s joke or something?

Well, you never know. I always thought World War II was an April Fool’s joke that went a little overboard, so it’s certainly possible.

Reader two again: Have you considered giving up your constant bitching and whining, and trying to be an inspiration and a role model to other sufferers and to the world at large?

I hadn’t thought about it—is there money to be made for that sort of thing, or a Nobel Prize even? Since it would be hard for me to work at an ordinary job, being brave for money might be a great career move. I could even be on reality TV, where I would grimace a lot so people would know I was in horrible pain, but then I would smile through the grimace so they would know I was bearing up bravely. I could also say soul-wrenching things like:

“Take it from one who is dying, one who’s only remaining dream is that you might learn from my misery and suffering so that you will be better able to enjoy the kind of rich and rewarding life that I’m getting screwed out of for no good reason. So, my friends, here are today’s words to live by: Don’t forget to turn the compost every few weeks if you think of it, and be sure to give the dog extra water on hot days unless you’re too busy getting drunk. That’s all for today, but I’ll be back tomorrow, if I’m still alive. Until then, keep remembering that you’ve got youth, health, looks, and money, and all I’ve got is old age and misery, so I hope you’re awfully, awfully, awfully happy.”

Things could be worse—I could be in the end stage of this disease.

I study the causes of pain because after two shoulder surgeries in one year, my pain is far worse than it was—and spreading—and my surgeon doesn’t know why. During my studies, I have occasionally come across RSD/CRPS (Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndrome). I’ve found strange comfort in its nightmarish nature because when my own hurting was at its worst, I could always tell myself, “I might be bad-off, but at least I don’t have that.”

Well, it looks like I do. At least, my internist thinks so. Usually talkative, he articulated the dreaded acronym and walked out without another word. I have no idea what he was thinking. I'm now awaiting a bone scan.

“At an advanced stage of the illness, all patients develop significant psychiatric problems and narcotic dependency, and are left completely incapacitated. Some commit suicide.”
Deborah M. Shanley
Executive Director
International Research Foundation for RSD/CRPS

I don’t see suicide in my future, although I think about it all the time—you might even say I’m obsessed with it. I don’t even see narcotics in my future unless my doctors can give me something that works a whole lot better than Demerol, Dilaudid, Percocet, Vicodin, and Norco, none of which helps enough to justify the side-effects.

But what DO I see in my future? Sometimes, the most cheering thought that I can come up with is that I’ll probably be dead in another couple of decades if I can but hang in there. It’s not a sunshine and lollipops sort of thought certainly, except in a “jump off a skyscraper to avoid being burned to death” kind of way.

So far at least, the pain is not so overwhelming, but what I can often enjoy my time with Peggy, and nothing means more than that. I get support from two places—her and my fellow bloggers. A few local friends try to be helpful, but they truly don’t have a clue, and when we’re together, it’s ever in my mind that I still look healthy. If I were they, I might very well be saying to myself that, surely, the problem just can’t be THAT bad.

Does the US deserve to survive?

The question arose as I wondered if America could do its part to win another war like WWII. Well, no. Then, we were lean and Depression hardened. Now, we’re waddling diabetics with telephone earrings. Then, we were physical laborers. Now, we’re clerks and service representatives. Then, we could convert heavy industry to making the weapons of war. Now, we have little heavy industry to convert. As the realization of our inadequacies came to me, the question changed from whether we could survive another such war to whether we would deserve to survive.

Americans commonly describe their nation as “number one,” “favored by God,” “leader of the free world,” and “greatest nation on earth.” All this is, of course, true. No nation comes close to us in conspicuous consumption, and no nation can match us in waste (many a Third World family would be the envy of their neighbors if they were allowed to clean out just one of our dormitory dumpsters at the end of the school year). We’re also the fattest nation on the face of the whole entire worldwide world—yay! What’s more, American ingenuity enables us to lead every other developed nation in poor health while also leading them in the cost of health care! Beat that, you smart alecky foreigners.

Then, of course, there is the matter of our moral authority. YES, we lead the world in that too. That’s why our secretary of state is constantly having to travel around the globe to chide other countries for their ethical shortcomings. Oh, I almost forgot bankruptcies caused by medical bills—yet again, we’re number one. Gratuitously violent films? “USA! USA!” Church attendance? But, of course, we’re the leaders, at least of the developed world. That’s where we get our moral authority, and that’s why we’re “favored by God,” and you’re not.

“Ah, ha,” you say. “How about torturing prisoners or at least locking them up without a trial and throwing away the key? You don’t lead the world in that.” Well, no, not if you compare us to the whole world, but our last president was making great strides in that direction until another guy took his job. However, we do lead the world in the percentage of our population that is behind bars—prison maintenance and construction stocks are major traders on Wall Street. And don’t forget that we’ve started two completely unnecessary wars in just eight years, and that George Bush even intimidated a few other countries into joining us with his post 9/11 threat: “…it’s going to be important for nations to know they will be held accountable for inactivity. You’re either with us or against us.”

Talk about leadership—what other world leader can compete with that? And if our presidents weren’t effective enough all on their own, our Congresscritters would fill the gap. Even though they are unwilling to provide government healthcare benefits to any but the poorest of their fellow Americans, they themselves enjoy premium benefits for life after serving a single two-year term.

We might very well lead the world in other ways too, but we don’t brag about them because we also lead the world in modesty. For instance, we spend tons of money on scientific research, and then tell everyone what we found out for free. And despite the fact that our educational standards drop lower every year, we still lead the world in the number of foreign students who attend our universities. And even if we don’t have the world’s highest standard of living for our average citizen, we still do pretty good; after all, thanks to government subsidized Big Macs, the poorest Americans are the fattest Americans. In fact, if every poor American were able to donate 20 pounds (9 kilograms) of his body fat to starving foreigners, there would be no starving foreigners, and most poor Americans could easily donate more than that, many of them 250 pounds (113 kilograms) more than that.

We also give a lot of money to you foreigners (although it’s rather oddly distributed, some might say), and it’s not money we actually have either; it’s money we borrow from China. We now owe so much to China, and they now own so much of us, that they don’t dare nuke us, so at least we don’t have to worry about that anymore. If we didn’t give so much to you guys, and if you didn’t force us into all these stupid wars, and if our government wasn’t bought and paid for by the super rich, we might be able to pay our medical bills, or at least fill our potholes.

So, would we deserve to triumph in another WWII? What do you think?


Footnote: When I wrote that Big Macs are government subsidized, I meant indirectly. Because my country’s minimum wage is not enough to live on, and because McDonalds—and many other companies—doesn’t provide health insurance to its rank and file workers, the government has to support these people. This enables such companies to sell their products far below the actual cost of producing them.

Ghosts I have known and sometimes had the hots for


I made one of Julia Jackson’s pictures (Julia Jackson was Virginia Woolf's mother) into my computer background, and even started talking to her. Peggy didn’t exactly insist that I get rid of, “that awful picture of that depressed looking dead woman,” but I nonetheless replaced it with one of Peggy smiling broadly. When I turned my computer off for the night, Julia Jackson reappeared just before the screen went blank. I was considerably taken aback, but didn’t really believe—despite my desire to do so—that Julia Jackson was inhabiting my monitor.

I remembered a walk I took in the desert ten years ago during which I heard the ghost of Katherine Mansfield talking to me. I challenged the voice to present me with a gift to prove that I wasn’t hallucinating, and I immediately found a large, jeweled, feathered, brightly painted stick in the sagebrush. If the object had been a gaily wrapped first edition of one of her books with the inscription, “Best wishes to Snow from your dead friend Katherine,” I would have been more impressed, but I couldn’t connect the stick with anything I knew about her, and since I was at the bottom of a mile wide volcanic crater during an era when small groups of New Age men were running about the desert trying to get in touch with their primitive selves, I suspected coincidence.

Several observations keep me from believing in ghosts despite my very great desire to do so. For starters, they are seldom said to do anything worthwhile unless moaning, rattling chains, knocking over lamps, and otherwise scaring the hell out of the living, can be considered worthwhile. Secondly, on those rare occasions when they decide to actually say something, they don’t say it to the person it is intended for, but to a stranger who charges money to repeat it.

When I was a teenager, I used to visit country cemeteries hoping to see a ghost. One night I saw a red light slowly arise from my Granny’s grave and move in my direction. I ran like a dog with its tail on fire. I went back the next day, but didn’t see anything to account for the light. I even returned several times after dark, but never saw it again.

Granny died when I was eleven, and I was afterwards afraid of the room in which she spent her last years. It was separated from the rest of our large old house by a long hallway, and I wouldn’t venture into the back portion of that hallway in the daytime much less after dark. Yet, I had a very great curiosity about whether ghosts were real. One night, my mother sent me to the store on my bike. I had two routes by which I could return. One was by a path that ran alongside the house, and the other was around the block.

I chose the first because it would take me directly beneath the window behind which my Granny sat rocking for her last few years. When I passed under her window, I looked up, half hoping and half dreading to see her looking back at me. At that very instant, my bike stopped. It didn’t veer, it didn’t fall over, it didn’t slide, it didn’t tumble; it just stopped. I somersaulted over the handlebars and got up running. Fortunately, I was carrying the bread in a backpack, because I don’t know how I could have found the courage to go back for it.

The next day, my bike was still standing there, a sight that spooked me considerably until I realized that a horseshoe stake had become wedged between the chain and the back wheel.

Peggy’s grandmother was a great believer in ghosts. She told of hearing her bedroom door open one night, and footsteps crossing the room. She anxiously poked her head out from under the covers and saw a sallow figure in antique clothes standing at the foot of her bed staring at her. She drew her head back in, and spent the rest of the night saying, “Help me Jesus. Help me Jesus. Help me Jesus…”

And, of course, there was my dear demented, departed father who became convinced that he was being haunted by my mother’s ghost. He was notoriously forgetful about where he put things, and she had been able to point him in the right direction. When she died and could no longer do this, he became convinced that she had returned from the grave, and was hiding important papers, stealing money, and even rearranging the furniture.

He went from being annoyed to becoming absolutely livid, and the situation climaxed one night when he felt her pull back the covers and sit on the bed as if to join him. He said, “Kathryn, you’re dead, and I expect you to start acting the way someone in your situation is supposed to act.” She left the room, never to return. Since his death—in this house—Peggy and I often have a good laugh when we can’t find something. “Tom must have taken it,” we say.

If I really were to see my father’s ghost, I would only be worried if he should be as crazy dead as he was alive. Oh, I know, I just admitted to talking to not just one but two women who died long ago, but surely there’s nothing out of the ordinary about that, now is there?

An update offered in lieu of anything better

I’m still unable to write anything creative or thoughtful, but I will at least check-in. The pain is no better on the shoulder that was operated on in December, and it’s significantly worse on the other, presumably due to continued arthritic deterioration. I don’t sleep well because of the pain, and the longer I stay in my chair, the worse it hurts. Narcotics have become all but useless for pain relief, but they still get me stoned, and if I’m having an especially bad night, I had rather lie awake stoned than sober.

My lower leg bones are now giving me fits, as if they had been burned. Shin splints feel that way; only my pain is higher up. I finally connected it to the recliner I sleep in. Peggy bought the chair years ago, and it’s a little short for me, so I tend to lie with my legs bowed. When I finally realized that this had to be the cause of my leg pain, I tried forcing myself to keep my legs straight. This didn’t work, so now I’ve taken to fastening a belt snugly around my lower thighs.

Sleeping is complicated. I tie a blanket to the footrest to cushion my heels; place my pharmaceutical stash and toothguard (I grind my teeth when I sleep) within reach; fill my CPAP tank with distilled water (a CPAP is a machine for sleep apnea); hook the mask and the tank to the CPAP; and get one or two ice packs and a heating pad. I drape one towel over the chair back to protect it and another towel around my neck and over my shoulders so I won’t get frostbite from the ice packs. Now, I’m ready to sit down.

I fasten the belt around my thighs to keep my legs straight; unfold my afghan; lay the ice packs over my shoulders, lean back in the chair while trying to keep the ice packs from falling off; lay towels over the ice packs to keep the cold in; put the heating pad on my chest so I won’t shiver from the ice packs; take off my glasses; put in my toothguard; put on the CPAP mask; and, finally, adjust the mask ten or more times until I get a tight seal. One to two hours later, the pain wakes me up, and I have to go to the kitchen for fresh ice packs.

No one knows why the shoulder that I had operated on in December isn’t improving. My physical therapist suggested that I see an MD who specializes in chemical imbalances, but it would cost a lot, and since my yearly physical—which is paid for by insurance—is in a few weeks, I’m going to wait and see how that turns out. If nothing else, it will provide me with test results to take to the new doctor.

If I had only myself to think about, I don’t know how much more of this pain I would tolerate. I had years of it before surgery—although to a lesser degree—and when I had my first surgery a year ago this month, I figured that in twelve months, I would have both surgeries and most of my rehabilitation behind me. Now, here I am twelve months later, still in pain, partially disabled, and anticipating at least one more surgery on my right shoulder. The final outcome of the surgery on my left shoulder won’t be known until the end of the year.

In other news, I’ve been spending hours a day creating a synopsis of my writings. I started in February, and have completed eighteen months out of 30+ years—I don’t know the exact number because some of them are handwritten and unorganized. I had previously completed fifteen years, so the job isn’t quite so voluminous as it sounds. I enjoy the work but wish there were less of it. I also wish I could focus better. Unless you have been in pain hour after hour, day after day, for months or even years; you can’t imagine how tiring and distracting it becomes.

I have zero social life because I have no energy for it. I walk the dogs for a half hour each day, but the rest of my time is spent indoors, often close to despair. I’m not without hope however. I also have a bottle of Lexapro, but I’m not taking it because I’m on so many other pills, all of which are tough on the liver and kidneys—I’m in no mood for organ failure.

As for what efforts I’m making to actually help myself, I’m doing my prescribed stretching exercises—when I can tolerate them— eating sparingly, and taking various vitamin, mineral, and herbal supplements. I stand 5’10” and weigh 168 pounds, so I’m already on the lean side. However, a minimal diet has been found helpful for many problems in animal testing even when the animals weren’t overweight. I’m also intrigued by such a diet because, years ago, I fasted one day a week and lived almost entirely on raw smoothies that I made from nuts, grains, fruits, berries, veggies, and soy milk. I found the combination of fasting and smoothies to be a tremendous boon to my general health, so it seems worth trying now. I haven’t started the smoothie part yet, but I lost three pounds this week.

I have contemplated such a regimen for the better part of a year, but because Peggy opposed it when I did it before, and because food is one of the few things I still enjoy, I only made half-hearted efforts. I kept hoping there would be another way to deal with my problems, or that time would work its magic, but neither has happened.

Some of you have suggested various alternative therapies, and I am grateful for those recommendations. However, I have sometimes been accused of preferring to wallow in self-pity when I didn’t do what you suggested. I never reject a suggestion without first learning something about it. I’m just not willing to spend time and money on things that—in my mind—make no sense whatever and lack even a smidgen of scientific validation.

Things that go flat

My air mattress went flat last night leaving me atop a sheet of plywood that probably wasn’t the worst bed in the world but wasn’t the best either. I took my pillow to Peggy’s room planning to spend the rest of the night with her, but when I opened her door, I saw that she was with a guy—a black guy. I’ve put up with her shenanigans too long to be surprised by much of anything, but I was vexed to note that he was in the middle of her bed. This left no room for me to sleep next to her, and I wasn’t about to sleep next to some s.o.b. who was in bed with my wife.

As I turned to leave, the floor squeaked, and he opened his eyes and looked at me in surprise. We glared at each other in silence for what seemed like a long time, but probably wasn’t more than a minute or two. I wondered what he was thinking, and I suspect that he was wondering the same thing about me. Maybe he thought I was going to hit him, but I was just trying to figure out what Peggy saw in him; what he could give her that I couldn’t. All I could think of was that he was younger than I by a lot of years. Okay, to be completely honest, I have to say that he was good looking too—at least for a black guy.

“Sleep with her, but don’t marry her,” I whispered, “or you’ll end up like me: standing in the dark with a pillow in your hand, a flat air mattress on your bed, and some other dude with your wife.” I don’t suppose a marriage between a woman and a schnauzer would be valid anyway, but I wasn’t sure he knew that, and I wanted to say something that would make me sound superior. I slept in Peggy’s recliner. It, at least, was available.

The three of us had breakfast together, but he didn’t talk much, and she didn’t either. I knew better than to ask questions because Peggy doesn’t like questions before mid-afternoon. Even then, she doesn’t like questions that are too personal. Years ago, I asked her about this, and she said, “Just because we’re married, it doesn’t give you the right to go snooping into my affairs.” I knew she was unaware of the pun, but I didn’t have the guts to point it out. The thing about making Peggy mad is that Bonnie Blue Heeler will help her beat me up. I don’t know why this is because the dog seems to like me better the rest of the time.

The black guy is still here—planning to spend another night, I suppose. I couldn’t find the leak in my mattress, so I’m looking at another night in a chair.

What gives life purpose?

If you discount the existence of a deity or the claim of an authoritarian government or institution, the decision is yours. At the moment, I would say that my life has none. It has its compensations certainly, but mere survival marks the limit of my abilities. My pain is such that I sometimes fight back hysteria. Demerol won’t touch it. Dilaudid is a joke (ha, ha, ha). Percocet and Vicodin are like baby aspirin. I think that, if I were weaker of character, I would lose my mind.

When I ask myself what losing my mind would look like, I picture the drainage canal across the street, and then I picture myself gibbering like Porky Pig while running naked onto the bridge over that canal and throwing myself into the water. The drop is only fifteen feet, and the water is never more than four feet deep, so death would be an unlikely outcome—but that’s the point. Suicide requires judgment, but if I lost my mind, I would lose my judgment, which completely precludes taking the course of a local woman who put on lots of clothes, loaded the pockets with rocks, and drove her car into a lake. Such a woman could not, in any respectable sense, be accused of losing her mind. Losing your mind has to appear profoundly stupid if it’s to count for anything, and the most the woman with the rock overcoat could say was that she was depressed. I laugh at depression (ha, ha, ha)! I left mere depression behind months ago. Depression is for pikers. Depression is okay as a starting point for people whose goal is to lose their minds, but that’s the most that can be said for it.

The more I think about throwing myself into the Amazon (for that’s what the drainage canal is called) the more I doubt the advisability of losing my mind, because it is plain that nothing good would come of it. I might break my legs—or even my back—but in any event I would be locked away in a padded cell and force-fed anti-psychotics. These drugs pose a significant risk of tardive dyskinesia (a permanent condition that causes one to compulsively grimace, stick out his tongue, smack his lips, blink his eyes, and lots of other party deflating activities), and this condition alone is enough to convince me that I really, really don’t want to be locked away in a padded cell.

But then I reflect that, okay, what if no one was around when I threw myself into the Amazon. If that were the case, I wouldn’t have to worry about tardive dyskinesia, but I would have to decide what to do next. I would probably start by sitting in the oil-slicked water until I got cold. Then I would crawl through the blackberries that line the canal’s steep banks until I could peek out and see if anyone was coming. When the coast was clear, I would make a break for my house, take a long, hot shower, and—I suspect—feel relieved that I was all done with losing my mind and could move on to more rewarding activities. In other words, I would be right back where I am now, only bruised, scratched, and with a broken leg or two….

….Since I have no idea what to write next, I paused just now to listen to the clock tick. It’s an electric clock, so I see no reason why it should NEED to tick unless its creator thought he could sell more clocks that way—or had lost his mind. Yes, of course, he lost his mind, and in his psychotic state concluded that ticking noises annoy clock hands, which then run round and round to get away from the racket, and coincidentally tell us what time it is. When the ticking gets tired and takes a nap, the hands stop moving, and then someone has to wake the ticking up again, either by winding the clock or changing the battery.

What I find about being in pain every goddamn moment of every goddamn day is that it takes a lot out of me. I can’t sleep, so I can hardly hold my head up when I’m awake. I’ve taken lots of strong drugs, and they have left me feeling polluted in body and senile in mind. I can’t work at anything requiring two arms, and this means that Peggy has to do her job plus much of my job. I can’t make plans because I have no idea when or even if I will be able to do most of the things I enjoy, plus I’m too despondent to make plans anyway.

This brings me back to the purpose of life. I see life as like a movie that’s weird and not terribly interesting, but that you keep watching just to see how it ends. Only every time I’ve forced myself to sit through some dog of a movie just to see how it ended, I hated how it ended because there was no resolution. It was as if the director ran out of money after 116 minutes and immediately stopped shooting. THAT’S how life is. The different scenes aren’t connected into a coherent whole, and it doesn’t come to a meaningful conclusion; it just stops with a final exhalation of air. It can be a 105-year-old feature length life, or it can be a day old public service announcement length existence, but either way, people try to build a meaningful story out of it (i.e. make sense of it) as an afterthought because we NEED coherency.

I guess most people don’t feel as I do, but I don’t why. Look, I’m down on my own life, okay? I’ll admit it. I look back at my six decades, and damn if I can figure out what the point of my existence has been or why I didn’t do it all better. But I pass the same judgment on other people’s lives, or at least most other people’s lives. Let’s say you’re a teacher, or a plumber, or a road-crew worker; what’s the good in it? Of course you contribute. You make sure kids can read, people can flush their toilets, and the roads are paved; but, really, is that enough to make you feel that all the shit you had to put up to stay alive was worth the bother?

I suppose most people would argue that there’s more to life than work, as if life were a layer cake that gets better as you add to it. So, you’ve got your job; plus you’ve got your family, weekend bowling tournaments, yearly vacations, popcorn at the movies, and so forth. What I would ask then is this: why do these things give you purpose; why do they make your life worthwhile? I can see that they’re fun or that they contribute to the world to some extent, but, on the other hand, you’re going to be dead really soon, and in a few decades no one will even know you lived, and there will be little if any reason to believe that the world is a better place because you were in it. Doesn’t it bother you that, in the big picture, you’re no more important than a spittlebug?

I would guess that most people, if it really came down to the bottom line, would say they lived for their family or for serving God. Take the plumber. He might feel pride in the years he spent gluing pipes together, but I doubt that many people find purpose through such things. Maybe I’m wrong, but if you were on your deathbed, and someone asked you what you did in life that you were the most proud of, would you talk about your job? I would guess that most people would talk about the people they loved. I’m guessing, so feel free correct me. Pretend that I just arrived from Mars, and I’m trying to understand earthlings.

Right now, my life sucks. It really does. I can’t tell you what a drag my life is. I hurt all the time; I’ve lost most of the friends I ever had; I’ve stopped attending all of the groups and activities that were ever important to me (chronic pain is as isolating as a monastery); and I can neither do the work I love nor pursue the hobbies I enjoy. I spend hours a day loathing the present, panicking over the future, and blaming myself for the past. Great. Some life. Yet, it is not without its compensations, and they are partly due to the fact that things are so bad in the macro that I have become skilled at finding pleasure in the micro.

For example, Peggy and I went to Goodwill yesterday. We call such trips our dates. She bought three CDs and a drinking glass with penguins on it; I bought a four-cup coffee maker; and together we bought a book of cat-inspired art and poetry. When we got home, we made supper together and then watched the Olympics. While we watched, Peggy threw the ball to our blind dog, Bonnie, who would alternate between searching for the ball and humping my leg. Except for the Olympics (we usually watch really old TV shows or even older movies), it was a typical evening. In such small things, I find reason to live. I become inordinately happy at times just because I have a roof over my head and food in my pantry. I rejoice on those few days when the rain stops long enough to take the dogs for a walk. I appreciate the fact that neither Peggy nor I have been diagnosed with cancer. I find happiness just by shifting my arm to some position in which it hurts less than it did in the previous position.

And as much as I dread the late hours when I must finally face getting into my chair for another night of suffering, even then I find rewards. Ice packs feel SO good on my shoulders. They make me cold, but that’s okay because the heating pad feels SO good on my chest. Next, I pull the CPAP mask over my face, and I remember that CPAPs were only invented 25 years ago and that without one, I would almost certainly have died a prolonged and miserable death. Some nights, I listen to the rain or the wind, and feel grateful that I don’t have to be out in it. Other times, I feel appreciative that I have insurance to pay my medical bills. When I finally get out of my chair at 11:00 a.m., I rejoice that I don’t have to set an alarm clock and go to a job I hate; or any job for that matter, because I honestly don’t think I could find the strength.

So, do I think—for me, for now—that life contains some BIG purpose? Hell no. My life is worthwhile only because I am well loved by a good woman and two good dogs, and because I still have the capacity to feel joy, pleasure, and gratitude. That’s it. If I die tomorrow, there will be no traffic jams around the funeral home, and people won’t share stories about how much I accomplished or how many people I touched. If they’re honest—and if they know me well enough—they will be at a loss to find much of anything good to say about me, because I have done nothing more noble than to blunder my way through life pretty much as blind Bonnie blunders her way through the house, bouncing off first one wall, chair, or table and then another until she finally stumbles out the exit. Maybe your life has gone better, but I wouldn’t trade. Mine might not be much, but at least it’s paid for.